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Sirenna

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  1. icon Sirenna reacted to a comment: Most Black People with Biopsy Confirmed Celiac Disease Have Negative TTG Blood Test Results
  2. icon Sirenna reacted to an article: Most Black People with Biopsy Confirmed Celiac Disease Have Negative TTG Blood Test Results
  3. icon Sirenna reacted to a post in a topic: Getting diagnosis
  4. Sirenna
    Thank you so much for your response! I do see several doctors, none of which take my concerns seriously. Today I finally see a gastrointerologist. Hopefully he listens and orders the right tests. I was referred to Dr Hyman a couple years ago but the appointment was canceled due to insurance I had at that time. I was really looking forward to seeing him.
  5. icon Sirenna reacted to a post in a topic: Getting diagnosis
  6. Sirenna
    I did get one last year. Turns out the surgeon did not test for it. No biopsies. He saw a diverticula in my lower esophagus and stopped there unfortunately.
  7. icon knitty kitty reacted to a post in a topic: Getting diagnosis
  8. Sirenna
    Thanks! I can also research this stuff for hours lol.
  9. icon knitty kitty reacted to a post in a topic: Getting diagnosis
  10. icon Sirenna reacted to a post in a topic: Thyroid problems, effects of celiac, or something else?
  11. icon Sirenna reacted to a post in a topic: Thyroid problems, effects of celiac, or something else?
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    Sirenna changed their profile photo
  13. icon Sirenna reacted to a post in a topic: Getting diagnosis
  14. Sirenna
    I suspected I had NCGS because I did have celiac panel done and it was all negative. My doctor then knew I was gluten-free at the time but didn’t say I needed to be eating it to be tested. I was never retested after that. I’ll get too sick if I start again. I’m curious to know if the diverticulum on my esophagus and hiatal hernia were caused by celiac disea...
  15. icon Sirenna reacted to a post in a topic: Getting diagnosis
  16. icon Sirenna reacted to a post in a topic: Getting diagnosis
  17. Sirenna
    Yes! This is very helpful! I’ve researched the link to iron deficiency anemia but haven’t yet researched African Americans with celiac disease so this is very useful information! Thank you so much for responding! I am happy to hear from people who understand and won’t brush me off.
  18. Sirenna
    Thank you! This is good information! I want the diagnosis so my doctors will take me seriously and monitor my symptoms. Since I received the fibromyalgia diagnosis no one listens to me and doctors keep telling me I’m just anxious. I got so frustrated I stopped going.
  19. Sirenna
    I have been trying to find a new doctor but it’s so hard after COVID. I fortunately have been referred to new gastroenterologist and will see him soon. Sadly I feel horrible when I eat even small traces of gluten and cannot go back on that diet. That’s why I did the genetic testing. Thank you so much for your response!
  20. Sirenna started following Getting diagnosis
  21. Sirenna
    Hi everyone. I’ve been trying to get a doctor to take my symptoms seriously and help me receive a diagnosis for 10 years. I was diagnosed with fibromyalgia in 2015 because they couldn’t explain my symptoms with blood tests. In 2017 I decided to go gluten free after doing some research and my symptoms immediately improved. Because my blood tests came back neg...
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