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shadycharacter

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by shadycharacter

  1. shadycharacter
    Perhaps it depends on how you eat barley. The gluten in wheat bread may be partially broken down, especially in well leavened sourdough bread. If you eat barley boiled in soups etc, more of its gluten may be left intact. I've seen very different numbers of how much gluten there is in barley. According to some sources very little, according to others almost...
  2. shadycharacter
    Could it be that she is in such denial that she doesn't understand, or doesn’t want to understand, that she is actually harming you by ruining your allergy safe home environment that you so clearly need? Even though she has been supportive in the past. She accuses you of being mentally ill because you don't see it her way, but what if it's the other w...
  3. shadycharacter
    Do you have or could you get a document from the immunologist to support your case? I'm not American and don't know much about US law, but I've come across the term abandonment somewhere. Is she trying to drive you out of the home and force you to abandon them? If so there is also a term "constructive abandonment" where the person making it impossible...
  4. shadycharacter
    I'm so sorry to hear about the latest development. I think it could count as some form of abuse to deliberately expose someone who is allergic or intolerant to what makes them ill. It could also be abusive to systematically dismiss someone as mentally ill. It could be a good idea to try to document what is happening, even if it's only keeping a diary as a...
  5. shadycharacter
    I think there are DAO supplements. DAO contains copper, so make sure your not copper deficient.
  6. shadycharacter
    Vitamin D is also thought to stabilize mast cells. So it seems to be quite an important vitamin for anyone with allergies. Personally I often feel better after getting vitamin D the natural way, from the sun. But that is not always possible, at least not where I live. 🙂 https://pubmed.ncbi.nlm.nih.gov/27998003/
  7. shadycharacter
    Wheatwacked, He's asking her to spend 20 seconds wiping the car after she's been eating wheat there. Because it gives him symptoms doing it himself. And when he gets ill it may last for days. 20 s for her v days for him. And she accuses him of being manipulative and calls him borderline. Which is her diagnosing him. As long as he's too sensitive...
  8. shadycharacter
    I'd like to point out that I chose my words a bit more carefully than claiming to diagnose anyone with Munchhausen by proxy. I said consider Munchhausen by proxy. As in do not rule out.
  9. shadycharacter
    I suppose it depends on how much is taken. The dose recommended as laxative is many times over the RDI. The dose used as antacid is more moderate. The important thing here is, I suppose, to not overload the kidneys.
  10. shadycharacter
    Magnesium as magnesium hydroxide would double as antacid and supplement.
  11. shadycharacter
    Egg white is alkaline. Not sure if that helps. One egg white contains about 4 g protein. How much protein a day can you eat? I suppose protein is one of the things that are restricted? Apparently newly laid eggs are mildly alkaline, and then they get gradually more alkaline with time due to loss of carbon dioxide.
  12. shadycharacter
    If she tries to keep you in a sick box you need to consider Munchhausen by proxy and be really careful.
  13. shadycharacter
    Do you eat rye and/or barley? They too contain gluten, though not as much as wheat. Perhaps they could be used for a gluten challenge ? The downside is the risk for cross contamination and allergic cross reactivity with wheat.
  14. shadycharacter
    If your wife claims you're borderline, keep in mind that: 1. She doesn't have the formal qualifications to diagnose you (I assume). 2. She hasn't conducted a professional examination. 3. Even if she had, she's too close as your spouse to do that. So please don't start doubting yourself based on what she calls you. There's no reason to...
  15. shadycharacter
    I'm so sorry reading about your situation. To me it sounds as if your wife is gaslighting you.
  16. shadycharacter
    Some soy sauces have very little gluten even if they contain wheat. I think it depends on how they are made. If the wheat is added before the fermentation much of the gluten is apparently broken down. Is the wheat in the fried rice only in the soy sauce?
  17. shadycharacter
    Unfortunately many people have bad experiences of sloppy, rude, arrogant and/or ignorant doctors. Each case is different. I had nutritional deficiencies (despite good diet) that were never followed up as possible celiac. Many years later I tried gluten free on my own initiative and my health improved. Not ideal, but sometimes doctors are not to be trusted...
  18. shadycharacter
    I found the link by googling part of the text. It's from a law firm in the context of malpractice suits. https://whitneyfirm.com/how-accurate-are-blood-tests-for-celiac-disease/
  19. shadycharacter
    They've removed over 99.9 % of the gluten from the wheat. Normal wheat contains around 9 g gluten per 100 g. A product can be called gluten free if it contains less than 2 mg gluten per 100 g. Had to look it up because I realised I had no idea how they manage to separate gluten from starch. After milling and adding water the mix is centrifugated: ...
  20. shadycharacter
    I wonder if there could be something like a "compensated" celiac disease. I'm imagining a mild case where there is an autoimmune attack on the cells but the body is able to compensate with an increased renewal rate, up to a point. It'd still be good to avoid gluten, but perhaps such a scenario could explain a negative biopsy result in the presence of antibodies...
  21. shadycharacter
    You could try low lactose, lactose free or use lactase enzyme supplements to see if that makes you feel better. People sometimes get temporarily/reversibly lactose intolerant as long as the intestines are affected by celiac, because lactase enzyme is released by the villii. Once the intestines heal on a gluten free diet the lactose tolerance may return.
  22. shadycharacter
    If you dont feel too bad eating regular (i e not gluten free) bread, you could make use of that and do a "gluten challenge" where you use regular bread for 6 to 8 weeks and then have your antibodies tested. The pills you mention contains an enzyme that breaks down gluten, but is meant for smaller amounts like from cross contamination. Sourdough have...
  23. shadycharacter
    Did the no dairy help? In case you have a problem with lactose you don't need to cut out all dairy, just choose wisely and maybe try a lactase enzyme supplement. It's quite common with a reduced tolerance for lactose if you're gluten intolerant.
  24. shadycharacter
    A normal (not gluten free) diet contains10‐40 g of gluten. Gluten is a protein, so in a normal diet gluten is a significant part of the total daily protein intake. Many glutenfree products contains less protein, and sometimes people need to cut or restrict dairy, maybe eggs, possibly nuts and legumes - all good sources of protein. So how do you make s...
  25. shadycharacter
    Found an example of nutritional deficiency (b12) causing transverse myelitis. A possible cause of b12 deficiency is of course malabsorption due to celiac disease, so clearly there is a possible connection. Myelopathy due to vitamin B12 deficiency presenting as transverse myelitis Good to hear you're getting better.
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