marcel g
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marcel g reacted to a post in a topic:
Questions: celiac and inflammation, peripheral neuropathy, etc.
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Scott Adams reacted to a post in a topic:
Questions: celiac and inflammation, peripheral neuropathy, etc.
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Update: I’ve retried @knitty kitty’s technique of 1500mg/day of thiamine for 3 days, but it didn’t significantly change my fatigue level. Weirdly, I did feel like I had a bit more physical energy, but I was still fatigued. Still missed work and needed a lot of naps. Tingling and twitching didn’t change, as well as the lightheadedness. I also go...
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Neurological Symptoms
marcel g replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My anxiety has been a lot better since starting an ssri, getting a better therapist, and getting better sleep, as well as removing gluten, and removing all news and Twitter. I feel like an ostrich with my head in the sand, but I can’t really cope with a lot right now and it helps a lot. The brain fog and irritability in particular seems better without gluten. ... -
Neurological Symptoms
marcel g replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I’ve retried your technique of 1500mg/day for 3 days, but it didn’t significantly change my fatigue level. Weirdly, I did feel like I had a bit more physical energy, but I was still fatigued. Still missed work and needed a lot of naps. Tingling and twitching didn’t change, as well as the lightheadedness. I also got my latest blood tests back, calcium and m... -
Ginger38 reacted to a post in a topic:
Neurological Symptoms
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Scott Adams reacted to a post in a topic:
Questions: celiac and inflammation, peripheral neuropathy, etc.
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Thanks Posterboy, although I don't know if I have thyroid problems or if my fatigue is coming from somewhere else. My TSH and T4 levels have been normal, but the doctors I've been seeing haven't seen the need to test my T3 levels. They could be low, but it would be a very rare thing, so I'm going to keep looking elsewhere for the time being. I don't know...
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marcel g reacted to a post in a topic:
Questions: celiac and inflammation, peripheral neuropathy, etc.
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Scott Adams reacted to a post in a topic:
Questions: celiac and inflammation, peripheral neuropathy, etc.
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Scott Adams reacted to a post in a topic:
Questions: celiac and inflammation, peripheral neuropathy, etc.
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marcel g reacted to a post in a topic:
Neurological Symptoms
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If my genetic test says I don't carry the genes for Celiac Disease, and I'm pretty sure that I'm sensitive to gluten, can I assume that I don't have Celiac Disease and have Non-Celiac-Gluten-Sensitivity? My recent test results came back negative for the Celiac genes, but did detect tranglutinimase at 0.5. I told the Dr not to bother with the standard Celiac...
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marcel g reacted to a post in a topic:
Testing for comorbid auto-immune disorders?
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marcel g reacted to a post in a topic:
Testing for comorbid auto-immune disorders?
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UPDATE: It turns out I don't carry the genes for celiac disease. I had it tested when I was in Canada last month. They also did the standard Celiac test, which I knew wouldn't turn up any thing because I'd been mostly gluten free for 2 years and fully gluten free for 3-4 months. The doctor insisted that antibodies don't disappear over time, and I just wanted...
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Thanks Posterboy. Yes, it's a lot of info. My C-reactive protein levels were normal I believe. Virtually everything is normal. I take cal-mag in the morning and magnesium-glycinate in the evening. I had my homo-cysteine a couple of months ago and it was in normal ranges too. I just had the genetic test done and I don't carry the genes for Celiac...
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Neurological Symptoms
marcel g replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My understanding is that neurological symptoms are common with celiac and non-celiac-gluten-sensitivity. I have tingling and pins and needles, as well as muscle twitching. Mostly in my arms and legs. I also have days where I feel like I've been glutened (I live in Asia, so restaurant food + soy sauce is hard to avoid.) and then I feel extra tired... -
marcel g reacted to a post in a topic:
Can effects of glutening be variable over time? Or is it separate glutenings?
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Hi, apologies in advance if this has been asked before: I went out for sushi with my wife on Saturday, and I accidentally dipped one piece into the soy sauce and ate it, due to old habits. As well, I put a piece of cake in my mouth thinking it was egg omelet. I spit it out (my wife was horrified) but I think I did ingest some of it. On Sunday morning...
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Scott Adams reacted to a post in a topic:
Celiac and Sinus/ear problems?
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Update: my tissue transglutaminase ab, iga results came back as “not detected” this was expected, since I didn’t get the full celiac panel done, and I didn’t eat much gluten for 18 months before taking the test. other results and changes: - my EBV igg came back at 639, where >22 is a positive. EBV iga was negative, meaning I didn’...
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Also interesting. I also used to get night sweats. Sometimes I’d have to change my clothes and put a towel down to get back to sleep. I can’t remember when they stopped, if it coincided with going to a low gluten diet.
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Celiac and Sinus/ear problems?
marcel g replied to LJR1989's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Interesting. I’ve been trying high dose thiamine for the last couple of weeks. 1200mg right now. My energy levels improved a lot fairly quickly, but the tinnitus has been pretty constant. the tingling and pins and needles has also improved, but that’s more subtle and harder to quantify. I got some kind of virus last week with a sore throat and headache, an... -
Scott Adams reacted to a post in a topic:
Questions: celiac and inflammation, peripheral neuropathy, etc.
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marcel g reacted to a post in a topic:
Questions: celiac and inflammation, peripheral neuropathy, etc.
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marcel g reacted to a post in a topic:
Negative test results!!! Unsure where to go from here
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Thanks for the reference. It's a helpful list. My wife is at least gluten intolerant, if not NCGS or celiac, and we have one child with anxiety and ADHD and another with frequent mouth ulcers who has also become much more moody and irritable lately, so it's probably a good idea to get them tested.
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marcel g reacted to a post in a topic:
Questions: celiac and inflammation, peripheral neuropathy, etc.
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Update: I accidentally/carelessly glutened myself a couple of days ago. (ate sausages I bought before I went 100% gluten free a few weeks ago, forgot to check the package before eating them.) Result: my symptoms were minor: some pain and discomfort in my abdomen, the pins and needles had increased the next morning, and the next afternoon I became really...
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marcel g reacted to a post in a topic:
Questions about results of endoscopy
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Scott Adams reacted to a post in a topic:
Questions: celiac and inflammation, peripheral neuropathy, etc.
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Celiac and Sinus/ear problems?
marcel g replied to LJR1989's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I've had tinnitus for as long as I can remember, and always assumed it was because of going to rock concerts and clubs in my misspent youth. However, my fatigue got worse recently and I started having peripheral neuropathy symptoms, and my tinnitus also got worse at the same time. My ears always clog up in airplanes and I have to forcibly equalize...