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PME

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  1. PME
    Thank you for all this info, Knitty Kitty! One last question…HOW did you find a doctor who actually was willing to go the nutrient Route and guide you to these recommendations? Did you have to seek a functional medicine practitioner? Or did you find an open-minded gastroenterologist? I find Conventional medicine always seems to dismiss these kinds of treatments o...
  2. icon PME reacted to a post in a topic: Newly diagnosed with DH
  3. icon PME reacted to a post in a topic: Newly diagnosed with DH
  4. PME
    Ok, thank you. I will up it again. I had been taking it twice a day (total of 4000 IUs), but I feared maybe it was the cause of constipation, so I cut back to 1X daily.
  5. PME started following Food designated as “gluten free” really isn’t , Newly diagnosed with DH , Gastroparesis and 1 other
  6. PME
    Thanks, Knitty Kitty. Wondering...How did you determine the dosage of magnesium glycinate? What would you recommend as "good" B Complex and Vitamin D. (I'm currently taking D3 from Puritan's Pride 50 mcg rapid release liquid softgels but now noticing they contain corn oil, gelatin and soybean oil.) Also taking Nutricost Viatmin K2 MK-4, 100 MCG. Also just...
  7. PME
    Again, thank you, Trents. I did read your revised post. I understand that It is critical to know whether I'm staying truly gluten free. I will to to get that lab work done as soon as I can.
  8. PME
    Trents, I resisted taking statins for at least 10 years. I finally gave in a few months ago. Cardiologist started me on Lipitor, but I didn't like the leg pains, so they switched me to Rosuvastatin (Crestor). I was taking 5 mg just 3X a week, but because my cholesterol levels were still not where cardiologist wanted them, about 6 weeks ago, she recommended...
  9. PME
    Knitty Kitty, thank you. I'm so sorry for all you must have gone through! I've read through all the links you provided. This medication info is indeed disturbing, especially knowing you were taking the same combo of BP meds I'm taking. I've been taking 100 mg of Losartan daily (since February) and 25 mg of HCTZ daily for at least 25 years. What medications...
  10. PME
    Thank you so much, Trents, for this thoughtful reply. At the risk of TMI, this morning, for the first time in a while, stools were "normal." That said, I'm immediately switching to a gastroparesis diet, as best I can. Will try to eat multiple smaller meals. I've never had abdominal surgery, other than minor laparoscopic surgery many years ago for a procedure...
  11. icon PME reacted to a post in a topic: Gastroparesis
  12. PME
    Background:,I’m an active 60-plus female. I’m not an athlete, but I play pickleball almost daily and try to get to treadmill and strength training classes. I seldom sit down! I’m 5’4” and weight about 126, so I’m not overweight. My 89 yr old mom suffers from a perilous hiatal hernia. Her stomach resides in her chest cavity. She has had several close calls...
  13. icon Scott Adams reacted to a post in a topic: How to be a celiac guest at destination wedding
  14. PME
    Thank you so much! I emailed the hotel, and they said they cater to all kinds of dietary restrictions and alerted the events manager for the wedding. I'm still planning to bring my Gliadin X, but I am profoundly relieved. I hated the thought of the hosts wasting their money on me!
  15. PME
    I'm traveling to Aruba to attend a wedding. I'm nervous about travel with celiac in general, but I'm terrified of getting sick on an island. Should I just plan to not eat anything at the wedding celebration? Should I reach out to the venue to ask what their capabilities are? Wondering how others have navigated this... Many thanks in advance!
  16. PME
    Thanks so much for the heads-up about "Certified Gluten Free" labeling, Trents! Hard to find but worth seeking!
  17. icon PME reacted to a post in a topic: Food designated as “gluten free” really isn’t
  18. icon Grlybrainiac reacted to a comment: Cross-reactivity Between Anti-gliadin Antibodies and Proteins in Spices May Trigger Symptoms in Some People with Celiac Disease
  19. PME started following Cross-reactivity Between Anti-gliadin Antibodies and Proteins in Spices May Trigger Symptoms in Some People with Celiac Disease
  20. PME
    This is interesting/concerning to me as an asymptomatic celiac. Wondering whether this testing was done with fresh ginger root and whole nutmeg and black peppercorns, etc. -- or the powdered preserved kind...
  21. icon docaz reacted to a post in a topic: GliadinX available
  22. icon PME reacted to a post in a topic: GliadinX available
  23. PME
    Thank you! So very helpful!
  24. icon PME reacted to a post in a topic: GliadinX available
  25. PME
    @Scott Adams, how do you determine how many capsules to take, and how far in advance of consumption do you take them? Going to a community barbecue in a couple days and even though I will be as vigilant as I always am, I am planning to take GliadinX to hopefully mitigate accidental gluten ingestion.
  26. icon docaz reacted to a post in a topic: GliadinX available
  27. PME
    Hey Scott, I'm pretty much a newbie here who was recently diagnosed with Celiac Disease. I am not "visibly" symptomatic following gluten consumption, but I am now in osteoporosis, so for me (and I presume others like me), the damage is being done "silently." I'm wondering if there are statistics as to the percentage of Celiac-positives who are, on the surface...
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