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Parent of celiac teen

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Parent of celiac teen

  1. NOTHING breaks down ALL gluten. This is the ONLY point I was making. If something broke down all gluten there would be celiacs dancing with glee! That is fact !
  2. My comments refer to the statement "GiliadinX helps ensure that even small amounts of gliadin do not make it to the small imtestine" All of the studies I have read state that NOTHING breaks down all gliadin before reaching the small intestine. That statement is false and there are those who may believe that statement and eat gluten freely. I did not address...
  3. My intention is not to be negative. I did not imply that a person can take a pill and freely eat gluten. I simply pointed to your statement that claims gluten is broken down before reaching the small intestine. My understanding of the research is that some gluten is broken down. Not all! This is what needs to be made clear so that people can make an informed...
  4. If , as you stated , "Gliadin X helps ensure that even small amounts of gliadin do not make it to the small intestine" then this supposes that a person can eat gluten and take GliadinX and the gluten protein will be broken down and not reach the small intestine. I think everyone needs to make their own decisions and do their own resewrch on this. But I believe...
  5. The reason a gluten intolerant person can take Giladin is because it breaks down some of the gluten and it helps alleviate the discomfort they get when ingesting gluten. They suffer no damage from gluten, just extreme discomfort. I do not mean to minimize their discomfort! I just mean to say that they do not suffer the same health effects as a person with...
  6. I think everyone needs to do whatever makes them comfortable. 😃 Thank you for the resoonse and information
  7. She thankfully does not have arthritis! Her joint pain has subsided. The only symptom she has after 15 months gluten free is mild joint pain. Our house is 100% strict gluten free Her antibodies were in the normal range after six months gluten free We felt her health was too important to not make the whole house gluten-free
  8. I do not know why it is ok for people who are gluten intolerant. The dr. explained it but I honestly just dont remember. You could research and see if it is ok and why.
  9. Be aware of getting everything gluten free including make up, lipstick, toothpaste, lotion, all hair care products, deoderant, soap, fabric softener, everything! Dont lick envelopes. Make your dentist aware that you have Celiacs so they dont use anything in your mouth with gluten. Powdered gloves may contain gluten! Art supplies! Make your home your...
  10. She was having severe symptoms. Joint pain in her knees, shoulders, ankles and feet bad enough to wake her up at night. Insomnia. Headaches several times a week. Stomach bloating and pain so bad she did not leave the house without antacids and gas pills. Severe fatigue. Brain fog which made learning difficlut. Rashes. Dry mouth. She missed a lot of...
  11. My daughter's gastroenterologist said GliadinX is NOT for Celiac patients-only for gluten intolerant people. Gluten is a very tough protein and the Gliadin X does not break down the gluten before it reaches the small intestines which is where the damage to a celiac is done!
  12. It means her level of gluten antibodies are low. My teens number was four, which is considered low. Her doctor did an endoscopy with biopsy and it was discovered that she has Celiacs. I would insist the doctor do the endoscopy (When a Celiac eats gluten their body has an autoimmune reaction and their body produces antibodies to fight off the gluten...
  13. It is common to have a false negative blood test for Celiacs. Have you had an endoscopy with biopsy? Your symptoms sound a lot like the symotoms my teen gets when she eats gluten. In addition to severe stomach pain, my teen says she feels like she got run over by a truck , is extremely tired and has brain fog after consuming gluten. Her symptoms last...
  14. It can take a year to feel completely better. The things containing gluten my teen daughter missed in the beginning(she is a year gluten-free and feeling great-so have hope) Plastic in retainers, make up(espeically lip stick and lip balm), oats(they must be labeled gluten-free otherwise there may be cross contamination)toothpaste(colgate is labeled...
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