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Kathy8183

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  1. icon Scott Adams reacted to a comment: What Causes Villous Atrophy Besides Celiac Disease?
  2. Kathy8183 started following What Causes Villous Atrophy Besides Celiac Disease?
  3. Kathy8183
    This is such valuable information I cannot thank you enough. It quite possibly explains my antibodies dropped from over 250 at diagnosis to over 59 a year later on a strict gluten-free diet. I gave up lactose because I react so strongly to it since my celiac diagnosis but I have continued to consume cows milk even more than before for it's convenient source...
  4. Kathy8183
    You answered my question so forgive the additional one.
  5. Kathy8183
    I agree and thanks. I see no purpose in another test so soon so I'm holding out for longer given I'm not getting answers to my questions.
  6. Kathy8183
    Here's one to ponder! In August I ended up in ER with a severe diverticulitis perforation, so had emergency surgery. Ten inches of my SMALL intestine was removed and resectioned. Diver is rare in the small intestine. Did I really have diver or did gluten erode my tissue away? Surgeon of course goes with diverticulitis but I wonder. Also I'm wondering how...
  7. Kathy8183
    I've read differing opinions on that and haven't seen a consensus. Some say many things can elevate the results but I haven't heard from experts. If that's true how can one ever know if they're getting gluten by mistake? I also have hypothyroidism which was diagnosed by family Dr long before celiac disease. He never saw the possible connection. I wonder...
  8. Kathy8183
    Thank you!
  9. Kathy8183 started following question on TTG level
  10. Kathy8183
    Ttg iga test result a year ago was over 250 and I've followed gluten-free diet since, diligently. This week it's over 59 which is improved but still positive. I can't get any meaningful information out of the gastroenterologist except to admonish "stay off gluten and retest in 3 months" . That has no meaning for me. Aside from celiac, can that number...
  11. icon Scott Adams reacted to a comment: Gluten Intolerance and Your Pet
  12. Kathy8183 started following Once Promising Celiac Drug Larazotide Looks Doomed After Disappointing Phase 3 Trial and Gluten Intolerance and Your Pet
  13. Kathy8183
    I have often wondered about celiac in dogs and how it had to come from the gluten cereals in their food. I have yet to talk to a veterinarian who doesn't righteously stand by the dog diets with grains. Some still persist that lack of grains is the cause of the heart issues in the news so much yet disputed by FDA as a grain free diet having no connection to...
  14. icon John Scott reacted to a comment: Man Claims Hookworm Treatment Led to Remission of Celiac Disease
  15. Kathy8183
    I don't care how extraordinary a theory or potential treatment or cure sounds, it's a gateway to some hope for dealing with this awful and still misunderstood, often misdiagnosed disease that our medical community seems to prefer ignoring causing more suffering. Cures have often arisen from crazy sounding approaches proving how our health care system in more...
  16. icon Kathy8183 reacted to a comment: Man Claims Hookworm Treatment Led to Remission of Celiac Disease
  17. icon Scott Adams reacted to a comment: Once Promising Celiac Drug Larazotide Looks Doomed After Disappointing Phase 3 Trial
  18. Kathy8183
    I read from this 9 Meters Biopharma is abandoning efforts for a celiac disease treatment. I hope other pharma's build reliable and large enough groups to properly complete a successful test. It's difficult to keep up the hope.
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