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LCAnacortes

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by LCAnacortes

  1. LCAnacortes
    Some folks have issues with "nightshades" - and tomatoes is one of them. I'm thinking of doing a food diary too. Since going gluten free - dairy has become an issue for me.
  2. LCAnacortes
    I have a sensitivity to fragrances too - so buy unscented products. I had to run through the cosmetic section at a department store. I have been that way since I was little. My daughter and I were passing through Nordstrom and they had a wedding exhibit going on and when we passed by the perfume I waved them away because I am allergic. They told me that...
  3. LCAnacortes
    My daughter starting getting kidney stones in her 20's. Her doctor put her on Flomax to pass them. It is a prostate drug but it dialates things so that the stones can pass through. The pharmacist looked at her funny when she picked up the prescription but she said "kidney stone" and they said ohhhhhhhh, okay. They told her low oxalate diet to avoid forming...
  4. LCAnacortes
    I am so sorry. I have definitely been on that road. I have a change of clothes with me at all times. I haven't bothered to take Imodium or whatever because it didn't seem to help. I don't eat out much and I tell my server I am gluten free so no croutons etc. Then I take notes on how it went. If we did okay then I go there again. If not - then I don't. If...
  5. LCAnacortes
    Welcome Hollie - I am new to this too, although I haven't been diagnosed. I figured it out by having a strong gene in the family and the symptoms I was having. I am married so putting my husband out to pasture isn't an option. LOL. We are figuring out how not to cross contaminate here at home. My husband washes his hands after touching gluten containing...
  6. LCAnacortes
    Since early May 2022. I just learned that we had a major celiac gene in our family and did some research and then went gluten free but boy - I mess it up all of the time. There are a lot of ways that you can contaminate what you're eating. We had to buy a new toaster. Your hair products and some supplements might have wheat in them. It's crazy. Things...
  7. LCAnacortes
    I know your pain - I had the same problem and still have it sometimes. The accidents are awful. You get 2 seconds to make it to the bathroom. Not fun. Dairy can be a problem too - it can cause diarrhea/urgency. And I was using open jars of jam, relish, mayo and soft butter among other things before I realized they were also contaminated. All you have...
  8. LCAnacortes
    I had explosive, uncontrolled diarrhea too. Luckily I made it to the bathroom most of the time. I have been gluten free since the beginning of May but I still have issues once in a while. I am suspecting milk/dairy might be an issue. Oats can be a problem too. And supplements have helped. Keeping a diary of what she is eating would be good - that might...
  9. LCAnacortes
    So glad to hear that your wife is getting better. What an awful thing to go through. You are a wonderful caregiver to try to find ways to help her. She is lucky to have you!
  10. LCAnacortes
    Hi there wonderful, super smart people - I am so grateful for this site! In several posts supplements are recommended but I am not sure which ones, what form and how many mg, mcg or IU to take. Do you have a recommended list? I am trying to supplement but am not sure if I'm taking enough. Also I remember doctors use to give vitamin B shots - is that...
  11. LCAnacortes
    Consider eliminating dairy. My daughter had a huge problem with it - and it caused the same kind of symptoms that gluten did. See if that helps.
  12. LCAnacortes
    I also had pain in my diaphragm area and that went away when I stopped eating gluten. So much of the stuff going on with me now makes sense. I am so grateful for this board. Thank you and thank you to all of the wise members found here. 💜
  13. LCAnacortes
    My daughter had an MRI and they saw a bubble in her system. I had a colonoscopy and it was super uncomfortable when they got all of the way up there - so was wondering if I have/had a bubble too. Could that be caused by gluten? An interesting thought
  14. LCAnacortes
    Hi there - I stopped gluten at the beginning of May and I dropped a lot of water initially too and was overjoyed because I had been dealing with it for years. But some water retention came back a week later and I was super disappointed. My mom had water retention all of her life and water pills didn't help - now we know why. Gluten issues come from her side...
  15. LCAnacortes
    Centralia is the city name. I live in Anacortes - also in Western Washington. Consider where the Celiac came from. It has to be on his mother or father's side of the family and there could be silent or unrecognized symptoms there. Once I started remembering things that I heard family members were dealing with - it was apparent that it was rampant in my...
  16. LCAnacortes
    I am so sorry to hear of your problems - but know that you are not alone. If I mess up - I am in the bathroom for hours. I can definitely relate to how you phrased things. Things got complicated for me - living with a person that is not gluten free. Something that might start out as gluten free - ends up getting contaminated. I'm still figuring out all...
  17. LCAnacortes
    I live near Seattle Washington USA and our climate is similar to the UK. One of my early symptoms was really low vitamin D levels. I started supplementing that before I realized that I probably have celiac. I have not been diagnosed officially - but it runs heavily in my family - several cousins have either been diagnosed or have the DNA marker for it....
  18. LCAnacortes
    Actually when I got thinking about it the rash wasn't just around my neck - it was in other personal areas too. I have been taking several supplements - a good B complex etc. but I'm going to have my vitamin levels tested in case I'm not taking enough. My doctor retired so I'll be starting over there.
  19. LCAnacortes
    The uncontrolled, explosive diarrhea for me started more than 10 years ago. At first I thought I ate something bad but then it happened more and more. Within the last couple of years it got so bad that I could barely leave the house. It had to be a good day to go to the store. I kept a change of clothes with me. I have a rash around my neck that...
  20. LCAnacortes
    I found that Canyon Bakehouse Gluten Free bread is good and not so dense so it doesn't need to be toasted. I'm new to this whole deal too - and didn't even think about the toaster so thanks for asking that question! It is taking time for my symptoms to go away. There are others in that boat with you. I had severe diarrhea which has subsided but it still...
  21. LCAnacortes
    I found out in April 2022 that celiac runs on my mother's side of the family and several of my cousins have been diagnosed or has the DNA marker or has symptoms. My mother had serious water retention in her legs, feet and ankles all of her life and water pills didn't help. I started retaining water around the time I turned 30. The doctor wanted to put me...
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