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driftwood7

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  1. icon Scott Adams reacted to a post in a topic: Question about test results
  2. icon driftwood7 reacted to a post in a topic: Question about test results
  3. icon driftwood7 reacted to a post in a topic: Question about test results
  4. driftwood7
    I wouldn't be surprised if I've had celiac for quite a while before being diagnosed but 🤷🏼‍♀️ My doctor had to double my thyroid dose back in August (I was on a very small dose), which I suspect may have been due to celiac malabsorption. Either way, at this point all I can really do is follow a gluten-free diet and get regular bloodwork done to check my vi...
  5. driftwood7
    I have Hashimoto's thyroiditis, as does my mother. Was diagnosed 6 years ago when I still ate plenty of things like seaweed & seafood (sushi etc.) as that was before I met my fiance. So nope on the iodine deficiency. My hypothyroid is just a part of my autoimmune disease collection.
  6. icon Scott Adams reacted to a post in a topic: Question about test results
  7. driftwood7
    I've considered the possibility, and I don't think I regularly eat anything high in iodine. My fiance isn't a fan of seafood so we never have that, I use kosher salt that doesn't have iodine, only eat eggs on the weekend and not excessively, and I don't have a ton of dairy. I am on levothyroxine for hypothyroidism though... Doesn't that have some sort of...
  8. driftwood7
    Thank you everyone for all your input and help while going through this whole diagnosis process. I just got my skin biopsy results back, and it was positive for dermititis herpetiformis. I'm hoping it will clear up soon. It actually seems like it's gotten worse in the last four days. I'm assuming that means I somehow encountered gluten despite my best...
  9. icon Scott Adams reacted to a post in a topic: Question about test results
  10. driftwood7
    I'm not reluctant to accept the diagnosis; in fact, I was very much relieved when they called to say it's actually celiac, as I felt like I was crazy and they didn't believe me or take me seriously. My doctor only reluctantly did the initial blood tests because of the symptoms and the fact that my Grandma had celiac, but she told me the tests would come back...
  11. driftwood7
    My gastroenterologist's office finally called today to discuss my biopsy results. I didn't get to actually talk to the doctor because he's apparently out with Covid, but they said another doctor reviewed my results and said I have celiac. They didn't say much beyond, "You have celiac, go gluten free." They didn't even have me make a follow up appointment...
  12. driftwood7
    I've only been gluten free for about a week now. We did eat out on Saturday night... At a pizza place... Which as I was sitting there waiting for our food I realized what a bad decision that was, despite them having gluten-free crust. Then I had a couple pieces of pizza and it didn't dawn on me until after that while the crust was gluten-free, my fiance had...
  13. icon Scott Adams reacted to a post in a topic: Question about test results
  14. driftwood7
    Raised bumps, very itchy. Although initially, in March, it covered a larger area and was very red and burned as well as itched. It's on the outside of both elbows, but it's much worse on my left than my right.
  15. driftwood7
    Do you know if I need to be actively consuming gluten for a skin biopsy to be accurate? Or is it accurate as long as the rash is still there?
  16. icon Scott Adams reacted to a post in a topic: Question about test results
  17. driftwood7
    Thank you! I don't know why that didn't occur to me.
  18. driftwood7
    And the fact that apparently some doctors only care to put the time and effort into listening and doing things right when you've done considerable damage to yourself.
  19. driftwood7
    I don't really care about having to give up gluten or the taste of things or whatever. It's more the frustration of not knowing if I have celiac or not. Like not knowing if I need to be super careful about CC because I could be damaging my body, vs. accidentally having some gluten and feeling sick for a few days and that's all. I couldn't care less about...
  20. icon Scott Adams reacted to a post in a topic: Question about test results
  21. icon driftwood7 reacted to a post in a topic: Question about test results
  22. driftwood7
    That's very true. I just hate grey areas.
  23. driftwood7
    That's more or less my plan, I guess. But I feel so frustrated that I just want to go binge on all the gluten-filled things this weekend even though I know it will probably make me feel sick. But without an official diagnosis I feel like giving up.
  24. driftwood7
    Well, the results came back, and he did only take two samples. I'm so frustrated. I thought I'd figured out what was wrong with me, and now I have no idea if the biopsies were just botched because he didn't take enough samples or if what's happening with me is actually something other than celiac. I hate this. I haven't heard back from the GI about the results...
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