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T burd

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  1. Oh yes. First thing you do on a ship is go ask food staff what you can eat. During your I was stern. ‘You cannot label that as gluten free!’ His response ‘you must ask the kitchen about everything’ I should have gone to customer service. It was the millennium. And a year ago. Maybe they fixed it?
  2. I went on a celebrity cruise a bit over a year ago and they had a separate dessert table that always had one gluten-free dessert and then the ice cream and gelato were gluten-free. we always had crème brûlée for dessert option for dinner. and they had two other nights, where there were other options that they put together for us. They had regular udis to...
  3. Marie, did they test your ttg iga and ttg igg ever??? Are you eating 100% gluten free with no cross contact?
  4. You should look into keto desserts. Find recipes for them or somebody that makes keto treats. They don’t have sugar in them and sometimes they are good.
  5. Lots of good replies. Just adding You may want to get allergy testing as well. It takes time to heal. Take probiotics. Don’t eat gluten free breads for a while, just go to naturally gluten free fresh foods.
  6. Guess what? I was 38 before I self diagnosed and then went to the doctor and the doctor said “well the thing about Internet diagnosis is you may have all those symptoms but that doesn’t mean it’s what it is. Do you still want to get tested?” Then my blood test was off the charts. My biopsy in my duodenal bulb was positive, but my duodenum biopsy was neg...
  7. A reminder we cannot live in a house that uses flour.
  8. I get sick if I smell the smell of cigarettes on people. Perfumes in some soaps also. Do you guys take daily probiotics? I was more sensitive before I did that.
  9. If I were you I would insist that you be seen sooner by a gastroenterologist. Maybe you can call around and find one that has an opening. you sound like a classic celiac to me. Does take months of being off gluten to feel better, though you likely will notice right away, and a few months of eating it before your biopsy.
  10. I don’t think that’s necessarily true… https://clpmag.com/disease-states/allergy-autoimmune/saliva-test-developed-for-diagnosing-celiac-disease/
  11. My G.I. mentioned refractory or non responsive celiac to me… I hope that isn’t an issue here. Check lotions and face creams and make up, lip gloss, shampoos, soaps, and the new one I just found would be cleaning soaps that spray… I almost threw up after spraying my shower with scrubbing bubbles total bathroom. https://connect.mayoclinic.org/blog/gastr...
  12. have you not had gluten-free cinnamon raisin bread? I know Trader Joe’s used to have it, but hear they don’t now. canyon bake house (I had in UT, but not FL) little northern bake house has it at sprouts. But there is another brand online… are you in Europe?
  13. I did go to a rheumatologist that said that no labs were showing enough to have any diagnosis. Then I moved and went to a new rheumatologist and he found the anti-histone antibody, and put me on the HCQ which did more damage than good. My heart was damaged. he had to give me prednisone in order to come off of it. After just 2 methotrexate pills I decided...
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