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T burd

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by T burd

  1. Slightly low D is what I had at diagnosis. I had developed drug induced lupus (which does not go away for me like it’s supposed to) and low D can cause lupus as well.
  2. also it is more like hives than that and got puffy last time.
  3. I’m not sure I’m following all the info in the rabbit hole. A bit over my lupus head. I saw one study say PMLE is in 20% of Scandinaian population and she has a lot of Scandinavian blood. this is saying PMLE is autoimmune and that vitamin D helps https://clinicaltrials.gov/ct2/show/NCT01595893 Her PMLE May have gotten a lot worse sin...
  4. Interesting. I had seen something about vitamin D and PLE. So is gluten interfering with tryptophan metabolism? Is that possible?
  5. The link is good except it misleads people into thinking only those types of drugs cause it. Diflucan, some antibiotics, HCQ, antidepressants can also cause it in people susceptible to it like me. Very common drugs. I saw stuffers linking most of these to DIL.
  6. Yeah I drank soup after my daughter many times while she was sick and had zero covid illness. Even though I have clear other autoimmune issues going on… Yeah I drank soup after my daughter many times while she was sick and had zero covid illness. Even though I have clear other autoimmune issues going on… Yeah I drank soup after my daughter man...
  7. Oh I heard someone else say their biopsies were negative until the 7th. The gut sometimes gets damage farther down and the tests even biopsy doesn’t work. My biopsy would have been negative had they not done a bulb sample and that isn’t standard. I have high ANA also no rheumatoid factor and lots of joint pain that seems to get worse. rheumatologist fou...
  8. Maybe this is why my symptoms were not always bad because I didn’t eat this much gluten (2 slices of bread) in my 20’s. it takes more than three weeks for your gut to heal. I think you should stop eating it for 2 weeks. It isn’t worth it. Make sure they plan on doing two biopsy samples before they put you under. It is not standard to do a separ...
  9. After 30 years the antibody blood test would not always show Lyme even if you did have it. Lyme hides in joints and bones. I know a girl who is 17 who had Lyme as a 6 year old child and her pill addict mother didn’t put her on the full antibiotic regimen. She is starting to have joint pains now but her blood tests are negative.
  10. I saw a study that showed mono to activate celiac. You’ve likely had celiac for a long time but just didn’t have gastric symptoms. Sounds like you could have other autoimmune issues if they don’t clear up. I think there are new studies this last month or two that have shown the vaccine is causing some extra auto immune responses in people that alrea...
  11. We noticed a few years ago that my daughter was getting rashes from the sun. I had recently been diagnosed with celiac at the time and she was 6. I have her blood tested for celiac and it has been negative each year. I did end up getting her the genetic screening and it was negative for celiac genes. I know that’s only about 95% accurate since there are o...
  12. From what I understand the genetic test is only about 95% accurate. It only tests the most common genes related to celiac. They also don’t really know all the obscure genes for celiac at this time. I think your labs should have one number for ttg iga ? there are other labs that should be done for a full panel. my sister went to an older gastroenterologist a...
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