T burd

Welcome to the forum @Marie Cooper. This thread is pretty old, so you may not get a reply from the original posters. 
Are you on a 100% gluten-free diet? 

Update: the company got back to me, here’s what they said: 
Thanks for reaching out.
 
When labeling products, we make every attempt to list other sources of gluten as reported to us by suppliers such as wheat, ba...

Yes I will update you when they get back to me.  FYI the one thing I hate is when companies don’t have a callable number I had to leave an email .

Please let us know what you find.

Lots of good replies. Just adding You may want to get allergy testing as well. It takes time to heal. Take probiotics. Don’t eat gluten free breads for a while, just go to naturally gluten free fresh foods. 

Hi—sorry you are miserable. I am newly diagnosed as well. I can tell you that I have multiple food intolerances on top of celiac. What you are describing reminds me of when I add something to my diet that is an intolerance. I wonder i...

One of the symptoms I experienced was bloating, burping and reflux. That suddenly resolved after 3 months on a gluten free diet. Other symptoms gradually resolved over a year or so.

Welcome to the forum, Prince Trent!
A couple of thoughts here. You may be going through gluten withdrawal. Gluten has addictive qualities similar to opiates.
I also wonder if you have developed an intolerance/sensitivity...

Guess what? I was 38 before I self diagnosed and then went to the doctor and the doctor said “well the thing about Internet diagnosis is you may have all those symptoms but that doesn’t mean it’s what it is. Do you still want to get t...

The ingredients listed are all gluten-free, however, this does not mean that they could not be cross-contaminated. Spices, including curry powder, as well as other ingredients, can be cross-contaminated. It's usually best to look for...

Thanks, I’ve been taking sublingual D3 & need to order, so I will try piping rock! I live in Southeast now & get a good amount of Sun, but yes, Goiter belt. 👍🏼 Started some iodine liquid, not much because I have not tested and don...

My grandson slapped a small pile of flour on the table as my daughter in-law was baking. I got exposed and was miserable. It was airborne 

Yes, my D is chronically on low end of “normal” even as I take around 5-6,000 IU’s daily plus whatever is in my calcium & diet.
Yes, twice I had symptoms of Rickets shortly after diagnosis and was still pretty sick with diarr...

The following is a long winded way of suggesting to increase your intake of vitamin D, vitamin B6, vitamin B12, Choline and Folate. It may help. It won't hurt.
 It looks like the name of your symptoms is MCS Multiple Chemical ...

@Anonimo9719,
I found some interesting articles...
Having diarrhea for a long period of time can affect how much nutrients you absorb from your food.  Nutritional deficiencies can affect hair loss.
“Let Food be...

Yes, the antibodies originate in the small intestine, but the antibodies circulate in the blood stream.  The antibodies will bind to gluten (or cells in our bodies that resemble gluten) raising an "Intruder Alert".  Immune cells like m...

But the symptomatic celiac reaction is what we're talking about, not the detection of antibodies in some other system of the body. The antibodies themselves are produced at the site of the inflammation which for celiacs would either be...

@trents,
That may be true for the initial trigger for Celiac Disease, but in people already with Celiac Disease, any exposure can stimulate the immune cells already trained to attack gluten to go into high gear again.  This is ...

I freak out on flour/ baking aisle sometimes. I wish regular four was bagged in a plastic package. There have been MANY times flour bags have broken and it flies in the air. Particles are fine and land all over the store as dust. And...

Non-responsive celiac disease may be due to histamine intolerance.  Histamine is released by mast cells as part of the immune response.  Histamine promotes inflammation and stimulates the immune system to make a bigger immune response, ...

Don't think I have had that or know about an EMA test.  I have had an endoscopy that confirmed Celiac. You're right if my result was anywhere above 250 initially I could of still come down just not enough. I guess what is upsetting is ...

Thanks Wheatwacked!!! I've always known the hcy is a problem, but doctors don't care about it because they don't have a pharma pill for it. thanks for reminder about folic acid. i was taking folinic acid, not sure if that is better, but...

I did go to a rheumatologist that said that no labs were showing enough to have any diagnosis. Then I moved and went to a new rheumatologist and he found the anti-histone antibody, and put me on the HCQ which did more damage than good...

Let's remember that the bread stacked in supermarket bread isles is wrapped so that any gluten is contained. Furthermore, when I think about this, an immediate reaction to airborne gluten or gluten fumes or whatever people think they...

If they suspect Lupus, the first referral should have been to a rhumatologist.  It doesn't matter what caused it(in your case, possible Lyme).  It may not be Lupus, it may be RA(my diagnosis had a lot of Lupus indications, but it's a...