CatrionaB
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About Me
Celiac since birth, diagnosed at 26.
Secondary celiac effects due to late diagnosis: IBS and multiple food intolerances (reaction to 20+ foods)
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mspat3 reacted to a post in a topic:
Blood Test results--one low, but the other high?
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mspat3 reacted to a post in a topic:
Blood Test results--one low, but the other high?
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Results came back
CatrionaB replied to Shrek's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Going gluten free is difficult, but it is best if you start with naturally gluten free foods e.g. vegetables, meat and potatoes. Rice has sometimes a may contain gluten warning. All naturally gluten free grains may be contaminated with gluten. Lentils are almost always contaminated with gluten. Only buy certified gluten free oat products! ... -
I agree it is most likely gluten cross contamination or iodine https://celiac.org/about-the-foundation/featured-news/2015/10/dermatitis-herpetiformis-and-iodine-exposure/
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Scott Adams reacted to a post in a topic:
getting worse waiting for endoscopy
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Scott Adams reacted to a post in a topic:
Blood Test results--one low, but the other high?
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IGE is a food allergy test and has nothing to do with celiac disease. You should ask your doctor which foods tested positive! They should tell you what your allergic to.
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It sounds like you just have Wheat allergy, not celiac disease! With wheat allergy you should avoid all gluten, due to cross contamination with wheat, as well as similar proteins, spelt is a form of wheat! All gluten cereals can have contamination with wheat e. g. allthough oats are naturally gluten free they are contaminated with gluten! You should only...
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Could also be dermatitis herpetiformis, a skin condition closely related to celiac disease. I started getting it as 8 month old baby, it took me 26 years and many health issues later to finally get diagnosed with celiac disease. If it is dermatitis herpetiformis, this would mean also celiac disease, they usually do a skin biopsy right beside the rash to check...
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Maybe you have IGA deficiency, this is more prevalent in people with celiac disease, so they should have also tested you for IGA deficiency, this could be the cause of the missing antibodies, if this is the case they should do other blood tests to find celiac antibodies, after the blood tests you can also get an endoscopy. Your symptoms sound like you probably...
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getting worse waiting for endoscopy
CatrionaB replied to cteo's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Try to hang in there until you get your endoscopy, after that you won't have to eat a crumb of gluten ever again in your life! It's your decision if you need an accurate biopsy! The blood tests were positive so it is clear that you have celiac disease, if you can't bare eating any more gluten, you don't have to. There might still be some damage visible in...