LMNmom

It is difficult to get clear answers from her. Understandably, her body awareness is not very good. She never complains of her stomach hurting. Her symptoms were constipation and weight loss. However, she could definitely be guarding for the pain and just not explaining that to us. Thank you for your thoughts!

How long after starting the gluten free diet were you able to bend comfortably? Thank you! I had never heard of them before but it is interesting that they are so common and don’t cause any symptoms in certain cases.

Thank you for all of this information. The surgeon said it can only be fenestrated since it is webbed in the nerves. I will definitely be getting checked for Celiac as well.

Yes, full MRI was done which showed the cyst. She is altering her movements to avoid what hurts for sure. She just stops bending at the waist and can’t go any further.

She was diagnosed mid May and we started a gluten free diet immediately. The constipation has gotten better and we were able to fully wean her from the miralax. She has gained a little weight as well. The ability to bend at the waist has not improved. The neurosurgeons say that the cyst is not directly related to bending at the waist and often these type...

My 4 yo daughter has had a variety of symptoms over the past year, mainly with constipation, no weight gain, gait abnormalities, and the inability to bend at the waist. She was diagnosed with Celiac Disease around the same time that they discovered an arachnoid cyst on her lower spine. After seeing many specialists, doctors still don’t know why she can’t...