MrsTurner
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by MrsTurner
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An update for anyone who may be interested... So I wasn't diagnosed with Celiac or NCGS. I tested negative for Celiac and did a self imposed gluten-free diet as I thought there was a connection. I just reached 6 weeks on my gluten-free diet. After a bit of withdrawal in week one, I then noticed some initial improvements in my symptoms, but then a plateau...
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Thank you. Lots of people have mentioned lots of different deficiencies and it's definitely an education for me! I never quite gave that much thought to how being low on vitamins and minerals can have such an impact on the whole body. The list of things I'll be speaking to my GP about next week is getting longer by the minute 😂
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I'm sorry you feel that way. Of course you know your own experience and nobody can say they know your experience better. I think the point was just being made that not everyone will have that same experience with rice and oats, for example. By saying they both contain gluten, which isn't quite right, it puts more fear and pressure on people already under...
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I have been eating rice regularly since starting my gluten-free diet and not experienced any symptoms as a result. Not sure what else I would eat if I had to knock rice off the list too!
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Thanks for your comment. I also had a full blood count which showed normal amount of red blood cells at normal size, just low ferritin.
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Thank you for your reply. My blood test for iron was actually before I went on a Gluten free diet so it won't have been related to that change. I have a suspicion I've been iron deficient a long time - a combination of being anaemic during pregnancy, blood loss in child birth and always having heavy periods, along with a possibility of having a gluten sensitivity...
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So, as a little update - I started my gluten-free diet two weeks ago now. Some things seem to be definitely improving: decreased joint pain and swelling (I can wear my wedding ring for the first time in about 6 months!) less bloating, less wind, less constipation less rib pain much less nausea (as in not constant) although...
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Thank you so much for all your advice!
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Thank you so much for the advice. Its reassuring to see other people have experienced similar things and come through the other side feeling much better than before. I'll keep crossing my fingers that things pick up quickly for me - he's definitely getting hard to keep up with now and I want to able to enjoy his childhood, not feel constantly poorly. Interestingly...
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Thank you for this. I definitely feel that my symptoms only started after the birth of my son just over two years ago and have quickly got worse in the past months. I lost a lot of blood in childbirth too which was never replaced and GP has never thought to check my iron until just recently.
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Great point, thank you! This is really helpful, thanks so much!!
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Wow, Thank you so much for taking the time to write such a detailed response!!! I get written off as a hypochondriac with anxiety at every appointment, so it's comforting to hear I'm not alone, although I do hope you are feeling well again now! My GP can't even speak to me until the 19th July for a phone appointment, even with all the symptoms and concerns...
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Thank you trents. I've just had a look. My last bloods showed Serum vitamin B12 level 417 ng/L [normal range 211.0 - 911.0] so it doesn't seem to fit (unless I'm misunderstanding the science behind it). My CBC also shows a normal amount of red blood cells, just the ferritin that was low. If I've got it wrong, just let me know - it doesn't...
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Hi there, Wondering how many of you with Celiac or NCGS who also suffer from anemia or iron deficiency, what your symptoms are/were and how you manage it. I'm fairly new here, and may have undiagnosed NCGS after a negative celiac blood test. I've been gluten-free for just over a week now and noticing some positive changes to my symptoms, however...
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Wow, thank you so much for the great response. I'll be sure to read up some more on this and take all the tips on board! Glad I'm not the only one dreaming about donuts 😂
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Thank you so much for this!
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Thank you so much for your reply. I wasn't aware of the low total IgA- you would think they would test that as standard wouldn't you if it made a difference. I will have a look at the home test kits in the meantime.
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There's no mention on my record of a Total IgA measurement so I'm not sure. Thank you so much for your replies. Did you suffer from any withdrawal symptoms during the first week?
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Hi Russ, Thank you. I had Tissue transglutaminase IgA level which came back as <0.5 U/mL. GP said it would have to be over 15.0 to be positive for Coeliac. I did read that there were other tests that can be done but he said we don't do those tests routinely in the UK and the investigation would end there.
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Hello, newbie here! Apologies in advance for the longest post ever but I'm at my wits end and wanted to get some opinions - if anyone has the time to read and respond, I'd be so grateful! I've been feeling not quite myself for about 2 years, but in particular I've felt increasingly unwell in the last 4-5 months or so. GPs must be sick of me but...
