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GlutenFreeFrizz

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by GlutenFreeFrizz

  1. Oh goodness I'm so sorry, I was away from this forum for some time and only just saw this!The irony of this entire situation- I'm STILL waiting to consult with my GI on my results so I still have no idea medically what to think. My GI is waitlisted through JANUARY currently. Ugh. Hopefully I get some news soon!
  2. Thank you for all the insights and the advice! I really appreciate how helpful the community here has been- it's nice to have others around (even if it's over the internet) who've ridden this rodeo before and know so much!
  3. I'll absolutely have to look into the Fasano Diet, and check with my doctor. I do eat a decent amount of oatmeal, especially in the mornings before school (school teacher: quick and easy to make on the stove before heading out!). Everyone has given me so much to think about, I sincerely appreciate it!
  4. Thankfully my doctor said my current folate levels are normal! Currently I'm taking B12 (1000mcg), Iron (325mg), and D3 (2000 IU), just started yesterday after getting her notes in! Couldn't believe how expensive they were. They are all NatureMade and Gluten free! It's strange how little I thought about these things prior to my diagnosis. I was surprised...
  5. I am skeptical of our ibuprofen, which we've had for awhile and may have slipped through our initial sweep. All vitamins and supplements purchased in the last 18 months are gluten free, I made sure to check those!
  6. Thank you Cristiana! It's so encouraging to hear stories like yours at this stage- sometimes it feels like it's just one thing after another the first few years after your diagnosis. Oh that's interesting, I didn't know that about the avenue or the "meat glue" until I started reading these comments today. Thank you for the resources, I'll be sure...
  7. I do consume oats, though I've always been careful to buy the certified gluten free variety. The only "real" dairy product I still consume is cheese at this point, and always with a dose of Lactaid. We've made the switch to Lactaid Sour Cream and Milk in our household, both of which are labeled Gluten Free. However, I think you have a point on the processed...
  8. Thank you so much for these resources! I'll absolutely give them a read. My husband and I plan to sit down and do a serious overhaul of our kitchen and some deep thinking on our approach to the diet thus far- these will go a long way to helping with that
  9. Thank you for the provided information! I'll have to read those articles carefully. It's curious you mention this, my older sister also has Celiac and her son required a surgery on his neural tubes as a toddler. I never knew that could be tied to Celiac!
  10. Hi Hayley! First let me say, I feel your frustration. I was having almost the exact same BM pattern when I was first diagnosed 18 months ago, complete with the classic yellowish narrow stools. My GI and PCP told me that my intestines were so damaged (initial TTG level was 121- yeep!) food was basically going in one end and out the other. Here are...
  11. My GI recommended Citrucel caplets (specifically the caplets, not the powder) after my Celiac Diagnosis, to help mitigate the IBS-presenting issues I was having at the time. They've done wonders for my digestive health in the 18 months since (though we'll see how they pair with the new Iron supplement my doctor just put me on). If you haven't tried them yet...
  12. Hi there all- I joined this group last night after getting some pretty frustrating news from my doctor. Long story short, I got my diagnosis in January 2021- my TTG levels were so high (121) they told me definitely had Celiac before even doing the endoscopy. I've been (what I thought was) meticulously gluten free since February 2021. Whelp. I just got...
  13. Hi everyone- so I joined this group last night after getting a note from my doctor following some bloodwork. My husband and I are just... completely baffled and I'm hoping maybe the kind folks here can offer us some insights! Quick background on me: I was diagnosed with Celiac in January 2021- my TTG levels were so high (121) they told me I had Celiac...
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