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April42

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  1. icon StephNich12 reacted to a post in a topic: Can you get a negative blood test and still have Celiac? Help!
  2. icon StephNich12 reacted to a post in a topic: Can you get a negative blood test and still have Celiac? Help!
  3. icon Scott Adams reacted to a post in a topic: Still seeking diagnosis
  4. April42
    I think i may have a little psoriasis too. Flared up after a recent run in. It’s shocking how undereducated our doctors are on the subject. I see why I takes years for a diagnosis. I know I have one, I just would like reassurance from an actual physician. Although I personally trust myself more at this point, lol
  5. icon April42 reacted to a post in a topic: Still seeking diagnosis
  6. icon Scott Adams reacted to a post in a topic: Still seeking diagnosis
  7. icon Scott Adams reacted to a post in a topic: Still seeking diagnosis
  8. April42
    It was low indeed! And I think we have the latent type of Celiac that doesn’t show up in testing. My daughter’s dh & nausea has gotten worse the last couple weeks from increased consumption:( Do you get the flat hive type of dh or the raised ones that are kinda like weird acne? And no , I need to but got frustrated/mad at my doctor & haven’t b...
  9. icon April42 reacted to a post in a topic: Still seeking diagnosis
  10. April42
    I feel like we have latent Celiac (I think it’s called that) The type that affects skin & neurological more than digestive. I think it doesn’t show up in test from where it doesn’t cause the antibody from digestion damage. I’m scared of any type of gluten challenge from where my grandmother had seizures & I get those terrible migraines when I eat i...
  11. icon April42 reacted to a post in a topic: Still seeking diagnosis
  12. April42
    Oh it looks identical to the dh rash pics online. It burns, itches & very slow healing. My face has recently looked like I’ve been in fight from where it’s flared up so bad & I’ve barely touched it! I was just hoping for someone who’s seen the rash personally before to give the reassurance.
  13. April42
    Hey there , I think you’ve given me advice before. Do you mind to take a look at these & see what you think? I posted a new topic because we are still battling here. But no responses yet , probably because I may not have it posted in right place. Thanks for the help. These are from my daughter’s face & mine:( It’s so upsetting!
  14. April42
    Oh bless your heart! My last one was so painful that if I had better insurance & wasn’t covered up with hospital bills from trying to find what’s wrong with me ..then I would’ve went to the ER! It was a 3 day one after I risked it at KFC:( The acne is horrible, takes forever to heal..months. Hope yours gets better. I’m about to try neem’s oil!
  15. icon StephNich12 reacted to a post in a topic: Can you get a negative blood test and still have Celiac? Help!
  16. April42 started following Rash Mimics Dh But Not Celiac , Still seeking diagnosis , Can you get a negative blood test and still have Celiac? Help! and 1 other
  17. April42
    Hoping to find a “celiac expert” who may be able to help with a diagnosis. Finding doctors educated in celiac disease seems to be almost non existent in my experience! I’m fearful that both my daughters have celiac disease & my 4mo granddaughter as well. My blood work only showed low iga levels & scope testing showed some gastritis & lymphocytes raise...
  18. April42
    Hi there! Do you get a lot of headaches or weird skin rashes or acne? There’s a type of celiac that doesn’t attack the digestive system as bad as it does skin & causes neurological issues & inflammation throughout body. My tests weren’t super clear either. Not sure if from where I I have latent celiac or from where my appetite was so small prior to te...
  19. April42
    Any helpful celiac info could be relevant to your daughter. We aren’t discussing sports here:)
  20. April42
    Demodex mites. I think when my immune system was at its lowest this past year was dealing with a few extra of them. Since gluten-free have put on 2 1/2 lbs so far after not being able to get past 111 lbs this entire past year (normally around 125) & drop to 104 when I got Covid a year ago. My 15 yr old has dropped around 40 lbs the 1-2yrs. Yesterday I...
  21. April42
    Sure:) https://www.cedars-sinai.org/health-library/diseases-and-conditions/d/dermatitis-herpetiformis.html What I get on my face & back looks like this https://www.consultant360.com/articles/dermatitis-herpetiformis & I get these on my fingers after shower occasionally. And my daughter used to on her toes https://www.drhomeo...
  22. April42
    I think there’s the small itchy blister type & type that’s more like an angry infection picked at pimple that won’t heal & scars? Leaves a purplish scar.
  23. April42
    Oh ok! So are you familiar with the DH rash? I think I may have both types of it. Some of mine like to reappear seems like once healed. I was able to get a script for dapsone from my gyn a few days ago & is most definitely healing them faster than anything I’ve ever tried the last few yrs but I’m not sure that’s a diagnosis in itself because I know some ...
  24. April42
    Hey there! I’m having a similar issue! Huge amount of celiac disease symptoms but unclear test results due to low diet in gluten prior. Was she eating at least 2 slices of bread a day for at least a few weeks before her tests? It takes quite a bit. Also a gluten-free diet helps with acne kinda quickly...it’s so hard to eliminate gluten completely that it’...
  25. April42
    I know this post is so old but has been a blessing to find! My answers:)
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