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Tracy414

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    Milwaukee, WI

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Tracy414's Achievements

  1. I’m not sure why there would be food restrictions other than nothing to eat for some number of hours prior to the procedure. The office doing the procedure should be providing you with instructions.
  2. Lymph nodes can be enlarged and tender for multiple reasons, included viral or bacterial infection. You did not provide much information, but either way, if you’re concerned, see a provider for work up.
  3. Are all of his other blood counts normal? He’s not anemic and platelets are normal? Would you be able to provide his results with the lab reference ranges?
  4. Would you mind sharing which company you did your testing through? I’m just curious.
  5. Mine was more on the top part of my ear, but it was intense and has also significantly improved since eliminating gluten. So interesting! Glad you’re feeling better
  6. I have a strange question. Can you tell me more about your ear itch? I ask because I started having itchy ear around the time a bunch of my other symptoms started. Just curious if it’s the same “itch” if you will! All my labs were negative for celiac, but I feel 99% better not eating gluten!!
  7. I agree! I knew for months something was not right, but never would have thought it was gluten. Did an elimination diet and things got so much better!! Started to reintroduce to rule out celiac and once back on gluten, symptoms came back and some worse. I started having tingling in my fingers/toes.
  8. I experienced nausea, headache, increased hunger and generally feeling unwell for a few days after stopping gluten. There seems to be a withdrawal phase for some, which actually tells me a whole lot about gluten. Probably wheat more specifically. It’s bizarre to me, I don’t have withdrawal symptoms when I don’t eat apples for a few days. Wheat is in every...
  9. Not sure where you live, but if you have a Costco membership, you can get two large jars for around $12!
  10. Jovial brand gluten free pasta is good! I prefer that to any regular pasta. The Schär brand of bread is also pretty good $5/loaf). I like the 10 grains and seeds. Loaves and slices are smaller, but taste and texture are good!
  11. I’m not 💯 sure, but that may mean you have two copies of the DQ2 gene. Have you reached out to the company? I did one I got online and it said positive for essentially the same thing, but no clue if it was homo (two copies of DQ2) or heterozygous (only one copy of the DQ2). I reached out and they answered my question. I only have one copy. Two copies = hi...
  12. You can get the celiac antibodies for around $100, online. Poke your finger and send it back to be analyzed. I’m pretty sure you can do vitamins ones too, but not 💯 sure which ones or how they are resulted. May be cheaper and at least give you some ideas about possible deficiencies. Healthcare is so frustrating!!
  13. Is there a different GI that would see you? Not sure where you live, but that seems pretty awful. Is there a way you can self refer? Some insurances allow that. Again, not sure where you are from. I am sorry you are going through all of this and I hope you find a medical professional who will listen.
  14. For background, I’m a nurse practitioner and have worked in palliative care for 6.5 years. We do a lot of pain management. What you’re describing is absolutely nerve pain and I would assume damage from the injury/surgery. Some people find acupuncture helpful. Also wondering if you’ve ever been on gabapentin (some people have luck with that vs pregablin and v...
  15. DQ2 is found in, I believe about 90% of people who have celiac and DQ8 in the other 10%. That being said, I’m learning from this site there is a whole lot of variation in all things celiac. My dermatologist said I probably had eczema or something of that nature on my scalp, but I’m not convinced. I never had flaking anywhere or the typical eczema features any...
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