Aevintiri

Has anyone had any good experiences with Black Forest? Everything I search shows they are safe but how are the certified gluten free but still have an allergen warning on the back that states they are made in the same facility as other products that contain gluten? It is really irritating that GFCO would certify a company that does not have a dedicated facility for allergen sensitive products. I am very hesitant on trying these. What are your experiences?

4 minutes ago, trents said:

Your question to Cristiana about whether or not her friend started slow and built up to it suggests to me you are considering more than just an occasional impulse indulgence. Starting slow implies systematic cheating.

I guess I am just trying to find out if celiacs can naturally reintroduce gluten without causing harm or severe illness. I can’t find any documentation online about it so looking for answers from others who may have experienced it

10 minutes ago, trents said:

Two biscuits, if I recall correctly. I'm fine for about two hours after getting glutened but as soon as the stomach starts to empty into the small bowel, the agony begins. I believe I have also experienced a similar reaction when getting glutened from cross contamination on occasion. Happened once after ingesting a shake with some chia seeds in it that came from India and were not advertised as gluten free. Made me sicker than a dog.

Hmmm very interesting. I wonder what would happen if you took Imodium and zofran prior to eating it. 

1 minute ago, cristiana said:

I have no idea.  

But returning to eating gluten for coeliacs can lead to serious health complications.  I can understand it must be more tempting to take risks if one doesn't have any obvious side effects from eating gluten, but it could still be making one ill.

I do sympathise though - cravings are awful.  I even fancy eating a McDonald's or a KFC meal when my family indulge - even though I never really liked them much before my diagnosis!

I've never been that fond of pizza but I really miss doughnuts and a certain chocolate biscuit we have here in the UK called a "Penguin". But I tell myself that soon these things too will be available in the gluten-free aisle and that helps.  And it is true -  time and time again since my diagnosis things I thought I would never eat again have now appeared in the gluten-free aisles: gluten-free cornflakes, Weetabix type biscuits, and more recently, iced currant buns! 

I don't know the brand of pizza you are speaking of - tell me, what is it that you like so much about it?  Is it possible you could try making something like it yourself?

Yeah I am aware that it does harm us but from what I understand is that, it doesn’t do significant damage unless consumed regularly. So I am curious how like once a month would actually effect our intestines. Unfortunately there is no replicating the pizza gluten free. It is kind of similar to like a Chicago deep dish. The slices are about 3-4 inches tall and the flavor can’t be rivaled for me. I don’t know how you could get anything gluten free to match up. 

21 minutes ago, cristiana said:

The last time I ate something loaded with gluten by mistake - a slice of cake - within two hours I had severe chills, was unable to stand, threw up two or three times (first time I'd been that sick since childhood), palpations, nearly blacked out, and then had days of gastritis like symptoms and a feeling of sea sickness.  So I'm not tempted to cheat.

I cannot believe how severe my reaction to gluten is these days, yet a friend's brother has gone back to eating gluten after years of not eating it and has had no reaction at all.  I can't understand how this can happen.  I do wonder if he was misdiagnosed as coeliac as a child?

Did he start slow kind of like starting a new medication or eating meat after being vegan? I recently started eating steak again after being vegan for years and ate small portions with a zofran but aside from some light nausea, I had no stomach upset. I plan on keeping it going slowly. My gastro said the same thing can work with a lot of celiacs people. Your body is just shocked at a new thing and naturally want to reject it. 

41 minutes ago, trents said:

Most of us who have been gluten free for long periods of time find that when we get a significant amount of gluten (talking more than cross contamination, here) we react much more strongly than before gluten free when we were eating gluten regularly. We lose whatever tolerance to it we once had. Speaking personally, when I mistakenly eat something with a full load of gluten in it (like when I accidentally ate my wife's wheat biscuits instead of the gluten-free ones she made me) I get violently ill. Two or three hours of gut wrenching cramps with vomiting followed by a few hours of diarrhea. No way am I going to give into my craving with that kind of reaction.

Did you eat multiple biscuits or just one?

Does anyone here just completely go rogue on days and consume gluten like normal people? I have been gluten free for about 3 years now since my diagnoses. I have really been craving a Jets Deep Dish pizza which was my favorite meal prior to diagnoses. Who does cheat days and if so are the symptoms the same as before or are they worst since your body hasn’t had gluten in so long?