MinxyMandy

Kefir and cold pressed virgin Coconut oil is the way to go. I am so sorry to hear you are suffering. I was there a year ago and I understand what you are going through. I managed to get rid of candida. Search on google and on this site about kefir, it is a natural probiotic. You can buy grains over the internet and prepare it yourself. Start slowly because the herxheimer effect will be huge initially but keep going slowly for the first few weeks. This will help restore the balance in your gut. The caprylic acid in coconut oil will also kill off the bad bacteria, restore the balance and nourish your body with much needed Vit E and protein.

Best wishes, Flowergirl

Hi Flower girl..x

I am so down on day 8 of eating gluten I know I sound crazy but Ive been told I have so many different things I just need to know if I have or not. I am really worried that the test is going to be negative even if I have got it!!!

I have tried experiementing and still cutting out the sugar and yeast but as soon as I eat even a ryvita my tum swells up also with milk. Its not just swollen its rock hard and massive..

I feel so up set did you really have canida and get rid of it?? Thanks I need someone to tell me that.

Thats why I am getting in a state as if its celiac and my guts damaged it makes sense that even though I did teh Candida diet 7 months it didnt go!!! So thats why I am hoping it is celiac as it makes sense to me..

But I am worried taht if its negative I will fall apart..as what the bloody hell is it I do feel better on the diet but with candida diet aswell I get so fatigued and thin and start getting down...

When I did the candida diet I only ate rice , fish, meat, some veggies Homeopath said I am allergic to caffine, sweetners, msg, wheat, choclate but she said I am okay with skimmed milk so I was have bio yogurt she said I cant have any fat either.....she said I can have ryvita but that played my tum up so I stopped it...

Also took caprylic acid, acpdillolous, vi B's, Mineral complex, Glutemine, homeopathic antifungal and tried enzymes....

If I havent got celiac do you think I should do candida diet again but with no carbs as I have read that carbs also feed candida what did you do did you cut out all carbs???

I am so sorry going on but I am sitting here day after day trying to find some info to lift my spirts as been like this since August 2005 and starting to feel like giving up ...May be eating gluten is making me more depressed..

I just need to know why I did diet for 7 months and it didnt go.....she said I have an underlying problem..

THANKS SO MUCH FOR REPLYING ..I AM SORRY FOR GOING ON...I havent got any support I think people are bored of me being ill so they stay away even my family ...

Take care x

I had some itching, like you have. I have also had hypoglycemia. I found if I ate protein and less carbohydrates my "itchy" problem ended. I think you are torturing yourself by trying to eat gluten, expecially since you know it's a problem. I hope the best for you, hang in there.

THanks to you all for replying..

This is week one done..but its been horrible..I must admit not as bad as before in the sense I know that when I get on the diet I feel better and the aim is too try and eliminate celiac if I can. But I will be going on the diet what ever ..as I know I am better I think I might just do the scd diet for a bit after the test and introduce carbs once yeast is hopefully undercontrol.

God knows...I know it sounds carzy but I hope I have got celiac I think coz Ive spent too long not knowing whats going on with my body..!!

Take care

Mand

X

Firstly, I think you already have a diagnosis - via the diet!

Second, not having D doesn't mean much if anything. Everyone has their own unique set of reactions, and many have C, D, or neither. Try not to look for an exact match to any one person. You'll likely share various symptoms with different people.

If you want to continue to eat gluten, suppose you just have a tiny bit? From what I've read, the antibodies will remain for several days, so as long as the immune system is on the offense, I would hope a small amount of gluten would "keep the charge going" as it were. I'm not an expert in this, but that's my understanding.

Thanks rice guy...

I know you all prob think I am mad doing this but I am still doubting its celiac even whilst doing the gluten challenge as I was being treated for candida before I am aware I get different reactions with sugar & gluten!!!

Ive been cutting out sugar and yeast and when I do have them thats when i get major depression and really sick..however I did follow the anticandida diet for 7 months strictly and the bloat didnt go completley what so ever and she did say I must have a nother problem stopping it going ....

Mind you Ive only had a small bowel of wheat flakes this am bloating is massive got a really bad headache..but when I have lunch with a few ryvitas my tum gets so massive I feel like I am going to

explode.

Yeah I know what your saying about not eating much but I have been informed by the celiac society to eat 4 slices of bread (min) a day to damage the villi for 6 weeks. So, I dont want to go through all this and havent done enough damage seems silly to risk that aswell. Ive tried not eating anything gluten after lunch but still have the symtoms in the morning I suppose it continues longer than just the same day.

Have a nice day thanks for posting nice to feel people want to share this horrible mess we are all in.

Mand:)

Hi all,

I am on day 6 of eating gluten again and look about 8 months pregnant and feel awful.

I ate bread at first but if Candida then yeast would agrevate it. Now eating multigrain porrige and ryitas for lunch and tum is still massive and I get these crampy period type pains. Ive also noticed I do have BM but they arent D they are just big!!

Becuase I havent got D I am getting paranoid that maybe this isnt celiac??

I also get facial swelling does any one get that at all??

I am in an awful situation I have just started working for the NHS and they have told me to make myself ill ready for biopsy and I am worried about my new job. I have tried to go in and my boss doesnt really understand I dont thik as she said dont worry we will get you better here you are why dont use try these suppot tights they may help??????????

Been to docs this am as off work and said what am I supposed to do I couldnt go in and start moving sick people etc as I fel to ill.. He gave me a certificate to stay off work for two weeks but I am so worried...

take care peeps

gluten day number 6 and counting ..

Some time before I knew anything about gluten, I had a case of the yeasty beasties. I took caprylic acid capsules, and felt much better in just weeks. No prescriptions, no drugs. Of course I avoided all sugars and yeasts too.

But yes, it will take some time. And since everyone is different with this, nobody can truly say with any certainty just how long it will take for your symptoms to subside.

I think the suggestion of a probiotic is also a good one. There are also a few common nutrient deficiencies among Celiac folks, so you'd probably benefit from such things like magnesium, B vitamins, calcium, vitamin D, and a few others. There are numerous threads on this, so do browse through the board, and please post any questions you have. The fine members here are soooo very helpful.

Hope you feel better soon!

Thanks Mr. Rice Guy..LOL..good name mines miss ricecake!!!

Yeah, I did the Candida diet for 7 months with a homeopath no yeast, no sugar, no wheat, and loads of other stuff (funny enough she said I could have rye and when I had ryvita my tum was bad) but at the end of the 7 months she said your candida is gone but I was still bloated and she said you must have an underlying problem??? When ever I have sugar now I expand within 1/2 hour and my tum becomes distended and celiac dont react to sugar do they ..mind you when I have had sugar its been in chocolate which has malt I think ..I dont know I just feel like I am going mad thats all I think about and its become me

So if candida has gone why am I reacting to sugar?? Do you think maybe the candida wont go til the celiac is healed on gluten-free diet? I am trying to eat gluten again ready for biopsy and still avoid the sugar I still get really distended but different sort of reaction to when I have sugar ..I get achey belly with the rye..I had 4 ryvitas a few hours ago and my stomach looks like I am going to give birth its tight ...

Ive got really dry lips aswell do you get that my mouths so dry.. hope your okay and doing well

Mand:)

I really wish I could make you feel better! You sound like you have a major reaction to something that is making you so sick.

If you had an allergy, say shellfish, and you swelled up, turned red, threw up, and went into shock would you continue to eat shellfish? That's what the Dr. is asking you to do! THen if your test is negative, he tells you you can eat all the shellfish you want. So would you? Of course not! You and only you can take charge of your diet.

My Dr. also wanted me to eat gluten so he could do more tests. I refused and I am healing quickly.

I hope and pray you can find strength. May God heal you completey!

Thanks to you both for replying...

The thing is when I tried gluten-free I started to feel better but I think there is more going on other than the celiac and believe I had some massive yeast infection which the doctor admitted you can have if you are autoimmune (celiac) so I am thinking if I can get it diagnosed they will then investigate the yeast infection..

The other reason is just so I can be sure that it is celiac as I have been struggling to do celiac and candida diet so I need to know what to do about the yeast....when I started the gluten-free I felt better but had chronic vaginal itching..????

Also I dont mean to sound shallow but I gave up my home, I havent been out for 13 months due to being sick and I am in debt for the amount I have spent on homeopaths so if Ive been sick this long I thought if I can get diagnoses I am going to claim againts them for medical neglegence as they should of tested me at the begining 14 monmths ago whilst doing the endosope but they just dismissed me.

and what if it is something else??/

I just want to get on with my life as it has become me the celiac socitey said I would need to eat 4 slices of bread for 6 weeks to show damage...I am also trying it to eat it again but without sugar and yeast to see if it is the wheat tahts making me swell up or the celiac...

The consultant said to take antifungal for thrush but I have many times and it doesnt work she said if you are celiac you may not be absorbing the tablets but she said she wants to look in my small bowel to see if theres anything else going on as they never looked before....

Best wishes to you all hope you are all feeling better...

Did you get massive stomach distention..and did it take long to go with the gluten-free diet??? I tried the diet for a week and felt happier but my tum was still bloated but not distended...????

Thanks so much

Mandyxx

Hi everyone My names Mandy..

just a quick over view, I had 3 courses of antibiotics follwed by a small op draining a cyst then more anitbiotics came out of hospital with a bloated belly and fuzzy feeling and just got worse and worse.

I started getting really constipated after doc gave me fibre gel for IBS to the point that I ended up in A & E twice with impacted feaces they kept saying eat fruit and I ate loads and kept happening.

My stomach was so distended it felt so tight it was tender and my back was killing me and I felt so anxious. I aslo had a problem with my left eye itching and sore along with a thick rash at the base of my spine. News years eve my friend convinced me to go out (I was ill) I had a few baracrdis and woke up at my friends went to the bathroom and passed out at the loo with a cold sweat came to slighly and was hitting my head agasint the toilet un controllobly with a fit. I cut my lip and smashed my nose???just sitting aropund During this time I was also eating normaly which did include bread etc...

They tested my endescope found histus hernia and inflammation and dismissed me with stress and loads of laxitives.

I then got reffered to a homeopath for candida and started a strict diet no yeats sugar moulds wheat msg etc but she said I could have rye. I started to notice my tum was worse for ryvitas so didnt have them very much but when I asked her she said I just have a sentitive stomach!!

End of 7 months she said you should be okay with sugar now and yeast but you will always be intolerant to wheat 70% & MSG and full fat dairy and sweetners. I started having some sugar and my symptoms were better when I didnt have ryvita no sugar yeast etc but they have never gone competley I am still swollen. She said you have an underlying problem which is why its not going ..

I found out about Celiac in an article tried the diet but the fruit caused a problem form of sugar. Next day did it with out sugar and felt so much happier within 3 days on the gluten-free diet and the candida diet.

Been back to gastro and turns out they hadnt tested me biopsy at the begining when I was really ill so I am now at the start of eating wheat etc as my diet was mainly rice protien and veg.

I feel so ill but need to know whats going on - the blood test was negative but been eating gluten-free without realising.

Do you think the candida would just go when the lining is healed from celiac or would i have to do candida andtifungals again?

I am in such a state feel so ruff eating it all again.

My symptoms : Massive distention stomach // although when gluten-free was always a bit swollen but it takes time to heal. Seizures, Constipation (if I eat sugar) if I dont floaty wierd stools, sores in my mouth, blisters 8 at a time on my lip, back ache night sweats, cravings for bread, sickness after eating wrong food, bad depression low selft esteem, sore tounge, thrush.

Sorry I went on so long thanks for listening Mand