Vicrob
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Scott Adams reacted to a comment:
Scott Adams' Story of His Diagnosis of Celiac Disease
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knitty kitty reacted to a comment:
Scott Adams' Story of His Diagnosis of Celiac Disease
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Scott Adams' Story of His Diagnosis of Celiac Disease
Vicrob commented on Scott Adams's article in Diagnosis, Testing & Treatment
I’d like an add that thanks to knitty kitty I have found benfotiamine very helpful with neuropathy, but buy the right one. It isn’t cheap but it’s good. I’ve found this site so helpful. Doctors don’t know enough about vitamins and minerals. It should be part of their integral training. GPs, (general Doctors we see here in the U.K.) had never heard of gluten...- 171 comments
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This is interesting. I was working in an hotel preparing yummy wheat laden bfast (eating it too) when I had the liver symptoms, fatigue, itchy skin, white poo etc. Then a year later another job in U.K. led me to eat more bread and I worked Wed, Thurs, Fri each week. By Friday nite I had crippling pain back of head, spinning sensations and vomiting. It was...
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Thank you it follows. I’m probably celiac but refused to start eating gluten to facilitate the test. My enzymes raised when I had covid for sure, but the ataxia clinic didn’t accept that. My last LFT was ok but they seem to keep on insisting it’s not related to my condition. My last blood tests also showed no gluten has passed my lips. I’m so strict now.
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Of course I did seek medical attention, this was October 23. I saw two neurologists and had EMG nerve study back in U.K. which was negative. By the time I saw the neurologists I was in recovery - I was stuck abroad with whatever was happening to me and flew back a month afterwards. It was sort of said I’d had a virus and reaction - nothing to do with the f...
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I’ve been taking thiamine and B complex for a few weeks now. Since the flu jab last October I’ve not been well. I think I suggested some awful attack on my nervous system. It affected my speech and swallowing and I couldn’t walk. I couldn’t be tested for celiac as I’d come off gluten, realising myself that I had issues. I’m now struggling with electric pi...
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Thank you I’m taking thiamine benotiamine daily and am much better. But my neurologist tells me my elevated liver enzymes have nothing to do with my gluten ataxia. My latest blood test showed my enzymes as ok but periodically they seem to elevate. I’ve noted it’s when I’m unwell. Also after a mild attack of my central nervous system (like guillaine barre) ...
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It took years to realise it was gluten making me poorly but I’d cut it out my diet when I was finally tested. So, not diagnosed celiac and presume it’s gluten ataxia due to lesions on cerebellum. I’m much better yet still have mild neuropathy especially if I’m feeling unwell. I take thiamine and magnesium for it. I’ve had problems with liver enzymes but last ...
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Celiac16 reacted to a post in a topic:
Mild guillaine barre syndrome
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knitty kitty reacted to a post in a topic:
Mild guillaine barre syndrome
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Hi. I must not have been concise. I had neuropathic reaction to the covid jab - and covid infection but my worse reaction was to the over 65 flu jab. It was most certainly mild guillaine Barr and could have been so much worse. I’ve never known anything like it and was abroad in a house in the mountains. I’m in recovery and hopefully once I get the correct thi...
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Hi. I forgot to add what foods I’m eating. Eggs, butter, milk (often almond) gluten-free bread and crackers, chicken, meat, all veg, lentils, rice, potatoes, fish, gluten-free sausage, chocolate, Greek yogurt, rice pudding, all fruit and cheeses. I’m wondering about dairy and if it could be causing the post nasal drip. I don’t eat pre packaged foods or me...
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knitty kitty reacted to a post in a topic:
Mild guillaine barre syndrome
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Ok the correct one will be with me in 3 days. I’ll update. I do think it’s working though - the wrong one! I’ve ordered 120 x 300 mg tabs of bemfotiamine. Was pricey but I don’t mind - thank you
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knitty kitty reacted to a post in a topic:
Mild guillaine barre syndrome
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I did try to get the one you suggested but unable to source it. I’ll try on line now thanks.
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Thank you so much and yes!!! The doc prescribed an antihistamine for the nasal drip - which has no effect and I’ve now linked the itching to around then. I’m taking daily : magnedium citrate 300 mg, vitamin B complex, thiamine monomitrate 200mg, B12 500mg, A-Z multi vits with minerals I supppse there’s a low dose of D in the multi vits but if I’...
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Hi. An update. Although the doctor doing the EMG nerve study said he thought I was recovering from ‘a virus’ my results have come back negative. There are also no traces of gluten in my bloods. I had a call from the ataxia nurse who said my lesions on cellebrum are minimal and I shouldn’t be feeling so poorly. The thiamine had stopped the neuropathy, she ...
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Hi. An update. Although the doctor doing the EMG nerve study said he thought I was recovering from ‘a virus’ my results have come back negative. There are also no traces of gluten in my bloods. I had a call from the ataxia nurse who said my lesions on cellebrum are minimal and I shouldn’t be feeling so poorly. The thiamine had stopped the neuropathy, she ...