cnazrael89
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by cnazrael89
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That was a good read! Thank you for that! Feeling hopeful that I can eradicate it after treatment for it! Really restricting my diet right now to starve out those bacteria! Spacing out my meals and no snacking whatsoever as well. (Read that helps to starve out the problematic bacteria). Definitely feeling some hunger but trying to just ignore it temporarily...
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I also was diagnosed in October 2022 with Celiac and now a few days ago was tested for SIBO and was positive for Hydrogen SIBO. I was tested due to ongoing celiac-like symptoms yet I am very careful with gluten free diet. I have now been told to take Doxycycline 100mg twice a day for 21 days, do a low FODMAP diet for 2 weeks and then do probiotics for 2 weeks...
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I have been dairy free mostly up until now minus a little yogurt here and there, I use pink Himalayan salt, I eat canned tuna maybe once or twice a week/shrimp 1 or 2x per week....I do eat 2 to 3 eggs per day. But overall I don't feel like I overdo those foods...thank you for the insight!
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Thank you, I looked her up and will read/watch through some of her stuff!
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Wanted to provide an update. I haven't been on much lately but have had a lot going on. I got a second opinion from another Dermatologist because my bilateral hand rash continued to get worse and worse and was becoming quite problematic for me. I ended up having "tapioca-like" bumps coating the palm of both hands, had bumps in between all fingers, rash/bumps...
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Interesting, I have been out in the sun some and I actually felt like the itching and burning eased up after a few days of light outside time. But the relief was temporary and didn't last.
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I 100% agree with you on this and told the dermatologist this and they had total disregard for the information I provided about proper DH biopsy location. I should have just declined but to be honest I was desperate and also so hopeful maybe by chance it would show something instead of trying to arrange another dermatologist appointment as I had active new...
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CLINICAL DIAGNOSIS: Dermatitis unspecified. GROSS DESCRIPTION: This is a shave biopsy. MICROSCOPIC DESCRIPTION: The specimen is a shave biopsy of skin present as multiple H&E stained sections on one slide. The pathologic process is that of compact hyperkeratosis with areas of scale crust overlying a regular psoriasiform hyperplasia of the epidermis...
- 29 replies
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- 1
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- allergies
- eosinophilia
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Interesting little read. Thank you for that. I have looked into the body wash, shampoo and detergent but I may try changing what I use to something else that is safe and maybe tailored more for the sensitive skin now that I am having rash issues. I don't think that could hurt anything. Thanks for the tip!
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I have been taking 10,000 IU of Vitamin D3 since diagnosis 6 months ago. Initially I was mid 20's when checked and last time I checked it in late February it was 68. I have maintained taking the 10,000 IU of vitamin D3 since that time as well. I have been heavily supplementing since diagnosis. I take a B Complex morning and night, Benfotiamine...
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Thanks for your input @Scott Adams. Unfortunately, The dermatologist did some weird biopsies and if it is DH, they didn't see it with the punch biopsy they did. For one, I have been gluten free for 6 months so I don't know if they can get an accurate biopsy on it anyway. Secondly, they took the biopsy in a random clear spot on my forearm not even anywhere...
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Feeling Sick All The Time
cnazrael89 replied to Emma R.'s topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Are you diagnosed Celiac? Your post doesn't mention why you are gluten free but mentions "other food Intolerances". I was diagnosed celiac 6 months ago and initially going gluten free helped my symptoms immensely. However, about 4 months in, I started to have re-occurring symptoms and actually feeling even worse than before. I had some labs drawn and it showed... -
Hello, I have continued to be vigilant in my gluten free diet; sticking with mostly whole foods with the exception of peanut butter, oikos yogurt, larabar's and the very seldom certified gluten free chip/cracker when I just want to have something that makes me feel "normal". I was doing quite well up until the end of February, when I started to have...
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@Wheatwacked Thank you for all the valuable info and links! I appreciate your input and tips! Haven't been using mouthwash and toothpaste is gluten free. I'm not on any prescription meds at this time and did finally find some gluten free labeled generic Tylenol which has been much appreciated as I was just trying to tough my way through the constant...
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I have been free from headaches since eliminating the spices...I have since broke out with the lovely itchy rash on both hands though. I am assuming it is DH as I have had this before but not since going gluten free. Thank you for the reference! I will check this out. My magnesium was 1.9 on blood draw and I had been taking just 200mg of elemental...
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For the large majority of my diet I am eating fresh fruit, fresh vegetables, potatoes (russet and sweet), chicken, beef, pork, canned tuna (labeled Gluten free), eggs, and certified gluten free rice. We have some gluten free oreo's that are certified gluten free that I have eaten a few of, and we have some certified gluten free "pringle" type chips that I...
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Hello, I was diagnosed with Celiac disease via biopsy/blood. I am a 33 year old male. I went gluten free immediately after my EGD on 10/24/22 due to the doctor's recommendations. I am just over 4 months strict gluten free diet. I have not seen the inside of a restaurant since diagnosis and prepare all of my own food in a gluten free household for all meals...
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I was diagnosed via blood/biopsy 10/24/2022 and one very annoying symptom I had been dealing with for about five plus years was anal fissures. Tried lots of different creams, suppositories, etc. but nothing would ever really help and if it did help, it didn't last. Before I was diagnosed, I did bring up the fissures at my GI consultation but she didn't give...
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@Rogol72 Wow, that would be awesome if you would send me the things you've bookmarked. I did read an interesting thing the other day on "UpToDate" about how young adults that get diagnosed with Celiac disease and have osteoporosis at diagnosis oftentimes can improve bone density simply by being gluten free compliant, taking calcium/vitamin D/correcting...
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@Rogol72 So far I was told to schedule a follow up with my primary care physician to "discuss medication options" but i don't know yet if i want the medication route or not...trying to get insight on what is the best plan of attack. I was deficient in copper which I saw can lead to osteoporosis and they did tell me to start supplementation of copper...
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Funny, my wife and I have been making comments like this too. 33 year old male that now has osteoporosis and abnormally fatigued for my age. I had/have (improving) intense irritability, "short fuse" as I was getting sicker, so now we just say I'm a crotchety old man. I am generally a go getter who enjoys staying busy with little home projects and such but...
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Diagnosis query
cnazrael89 replied to Nadia Whiffin's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Is the "TTG level" you had tested the tTg-IgA? A tTg-IgA of 226 with the standard range being 0-19 is markedly elevated. My tTg-IgA at diagnosis was 11 with the normal range being 0-3. I had my endoscopy with biopsies and the GI doctor could see that there were some patchy areas of inflammation but was not able to visualize any villi to determine if they... -
Exactly my same thoughts when I was waiting for my biopsy results too! Hopefully you can find out what labs they drew and see if they did in fact draw any Celiac labs that @trentslinked to above. If you had some positive celiac blood tests, the likelihood is high that you have Celiac Disease. You already have had the "gold standard" test to diagnose Celiac...
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Hello @EmDerrane, On my EGD procedure report the GI doctor said "patchy discontinuous erythema of the mucosa was noted in the duodenal bulb and second part of the duodenum. These findings are compatible with duodenitis." He told me right after the procedure he wasn't able to see the villi with his endoscope to determine if they were atrophied or not...
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I can relate to you on this on some levels. I was recently diagnosed with Celiac disease via endoscopy/biopsy and I have felt weird things in my body that I had never felt before going gluten free. I already had the joint aches/headaches/fatigue, etc etc but since going gluten free I have had some weird belly pains that I never experienced before (I keep...
