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cnazrael89

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Everything posted by cnazrael89

  1. cnazrael89
    @Posterboyso I just thought of something kind of interesting. Whenever I used to drink an energy drink (probably 4-5 years ago) I used to have that bright neon yellow urine every single time I would drink one. I never really thought about this but now if I drink an energy drink my urine is just a normal urine appearance or diluted/clear because it just makes...
  2. cnazrael89
    Quick update: I talked to my GI again and they ended up agreeing to order a DGP IgA and total IgA but still not wanting to order any vitamin/mineral testing until a confirmed biopsy. Originally my Ttg-IgA was 11 (standard 0-3) mid September, my total IgA just resulted 144 (standard range 68-408) and my DGP IgG just resulted 94 (standard range 0-19). I got...
  3. cnazrael89
    Yes, I will talk to my GI doctor. Thank you.
  4. cnazrael89
    It's safe to say I am in need of vitamin supplementation? From what I've seen on this forum it would be safe to take a gluten free multivitamin and B complex supplement without concern for toxicity as any excess would be removed in my urine. I was hoping to wait to start any supplements until after my EGD as my GI said if Celiac Disease is confirmed they...
  5. cnazrael89
    Also important to note....I've been on a heavy gluten rich diet leading up to my EGD (4 weeks of gluten rich so far and "normal" gluten intake prior to that). I'm having continued very bad headaches daily (worse), irritability is increased, my body feels heavy, steatorrhea intermittently, no energy, slight burning in my stomach area (new). This morning I...
  6. cnazrael89
    I got a few more labs drawn today (pictures attached below) . Our local hospital lab had these as an option to order out of pocket so I got what I could. Back story...tTg-IgA 11 (0-3 negative) drawn about 1 month ago. EGD scheduled 10/24. Not able to get B vitamins drawn and provider wouldn't order it. She reluctantly ordered a total IgA and DGP IgG and wouldn...
  7. cnazrael89
    Thanks for that!
  8. cnazrael89
    I did wonder if that was legit or not! Seems to be a strong possibility now that I know about the Iodine connection! Too bad there are no beaches near Wyoming! I'm so curious now! I thought it was a weird allergic reaction when it happened, to be honest! Thank you!
  9. cnazrael89
    Thank you so much for reading and replying to my post! After reading many others' stories and examples of rashes etc. on here I am fairly confident the occasional rashes I described above are DH. I guess I'm not so much trying to find other explanations for the rash but in fact trying to get more confirmation to support a Celiac diagnosis. In my mind...
  10. cnazrael89
    I had a positive tTg-IgA of 11 U/mL (0-3 standard range, 4-10 weak positive, 11 and greater positive), have been experiencing multiple symptoms off and on throughout the years. I had my GI consult and scheduled for EGD with biopsy. One of the symptoms I have had off and on for many years is a skin rash that flares up randomly and I couldn't correlate...
  11. cnazrael89
    This is definitely a theme I have been noticing as I've read through a lot of the posts on here! It feels like that unsettling grey area - the unknown. It certainly helps to know It's not just me and has helped to read other's journey through this period of pre-diagnosis. I've felt a lot more at ease now that the EGD is scheduled and I know what to do up...
  12. cnazrael89
    I totally thought about the risks of possibly getting more celiac labs drawn prior to the EGD and the labs confusing matters some. I'm ultimately okay with how the visit went and just basing the EGD being scheduled off of the positive tTg-IgA. My plan as of now will be to get the results of the EGD/biopsies and then ask for the rest of lab work. I mean, it...
  13. cnazrael89
    Thank you, I most definitely will continue to eat gluten regularly every day until I have results. Thanks to all of the great advice on this website I felt much better equipped going into my GI, knowing what to ask and what to mostly expect from them. Take care.
  14. cnazrael89
    So I had my appointment with the Nurse Practitioner at the GI office. I got scheduled for an EGD with biopsies on 10/24. She is not the provider doing the procedure so she couldn't tell me a specific number of biopsies that the doctor will take (but I plan to talk about that before the EGD with the doctor performing the scope). I asked about getting the other...
  15. cnazrael89
    Thank you so much for taking time out of your day to read and respond to my post! As far as other causes of an elevated tTg-IgA, I am taking zero prescription medications and as far as I know I don't have any of the common other conditions that raise tTg-IgA. Your response was filled with wonderful information and I'm certainly feeling more prepared going...
  16. cnazrael89
    Thank you, I am setting myself up right then to have the best EGD I can have! I appreciate the support and advice! If they're going to find something in there I want to make it as easy as possible. I keep trying to talk myself out of the probability I have Celiac with the tTg-IgA of only 11 U/mL since it is the very lowest positive per my lab scale. I keep...
  17. cnazrael89
    Thank you for your reply! Yes, I am still eating gluten and I have actually picked up on the intake due to realizing I wasn't consuming gluten as consistently as I probably should have been to be getting tests done. For over 2 weeks now I have made sure I have eaten gluten containing foods multiple times per day, every day because I figured they would be...
  18. cnazrael89
    Hello everyone. Brand new to the Celiac scene personally and this is my first post here. I just recently had my tTg-IgA drawn and it came back at 11 U/mL. Standard range 0-3, weak positive 4-10 and 11 or greater positive. A little background: My grandfather was diagnosed late in life (in his 70's) with Dermatitis Herpetiformis via skin biopsy...
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