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Hb333

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Hb333

  1. Hb333
    I don't know if the doxycycline is gluten free. My skin was the clearest it's been in... ever... the 2 months I took it. Rash was only a few teeny blisters and the acne on my neck and back cleared. Just before Thanksgiving I went off of it, rash is back and acne is popping up again on neck. New blister today, best pic I've gotten of their usual appearance...
  2. Hb333
    Yeah, the corn shells didn't seem to do anything to aggravate and I had eaten that one other time since trying to be gluten free. My job is very on the go so being gluten free is quite challenging. I had been on doxycycline for 2 months to clear acne on my neck and back. In that time I'm thinking the rash was also under control because it basically disappeared...
  3. Hb333
    They are blisters but that doesn't really show up except on the one that's big. They're clustered but far apart if that makes sense. They never burst but they itch. They have shown up this way for 13 years! When I get acne it doesn't itch. I was on Doxycycline for 2 months for acne and it AND this maybe DH thing all but disappeared, and I was also gluten...
  4. Hb333
    Celiac neg on all serology Celiac neg on skin biopsy DNA test shows 1 copy of HLA DQB1*02 (.5% risk) Suffered from this on and off for 13+ years. Went gluten free about 4 weeks ago after seeing DNA test and rash cleared for the first time in a long time. But I might've ingested gluten when food was out of my control during a trip a few days...
  5. Hb333
    He definitely biopsied the area adjacent to blisters and told me as he did so. The serology tests, I was not gluten free and had never heard celiac as a possibility so I got the test that day. I wasn't on a gluten challenge but ate bread every day and had many blisters at the time. Blood test 9/20, had been eating gluten, all shown tests negative ...
  6. Hb333
    It's been awhile since I posted. I have been dutifully gluten free and eating at home until the last few days when I went on a trip. During the trip I ate items I believed were gluten free but they weren't prepared by me and there were gluten containing items adjacent so I can't be 100%. Background: I would develop itchy, tingly, blisterlike, pimple...
  7. Hb333
    On mine it shows that and above that a chart saying DQ2 risk allele = yes. If that means anything!!
  8. Hb333
    Yes it sure sounds like it. But it's only on my back, ribcage, a bit on abdomen and butt/hips, never on elbows or knees. Apparently this rare "autoimmune progesterone sensitivity" DOES have dermatological symptoms that can mimic DH but the only way to tell is by a progesterone allergy test and I guess the allergist is just soooooo busy I won't know for months...
  9. Hb333
    Trents - So you're saying because I have the DQ2 it is "possibly" celiac still? I realize these tests only show a propensity and are not diagnostic, only "potentially indicative of maybe." Tracy- The test was RxHomeTest and tested specifically celiac related genes. It was on a recommended list somewhere. I realize some of the tests are gimmicks. This...
  10. Hb333
    Thanks to all. I received back DNA result from the test i purchased and it shows low risk for celiac. .5% But not nothing. I can't get into this allergist to test for progesterone sensitivity until mid December. 🙄 So who knows? Lived with it 11 years.... I'm attempting to be gluten free and do feel better. Rash is better but spots/ scars re...
  11. Hb333
    What was the cream so i can be aware?
  12. Hb333
    Thanks! I went to a derm who didn't do a biopsy even though i had a lot of active, itchy bumps and blisters a few weeks ago but only a few new ones and several old ones now. I wonder why they didn't do a biopsy. He sent me for blood tests and all came back normal including IgA. Is the test for deficiency different?
  13. Hb333
    I was just reading about bicalutamide... that may be better than spiro which gives me horrible leg cramps so i only do half a dose.
  14. Hb333
    My acne is also pretty bad and takes weeks/ months to fade. It's been like that for years esp on my upper back. Spironolactone worked for a few months, but then it came back w a vengeance on my neck and shoulders although the shoulders seem more like DH and itch. I also use tretinoin but it's not touching it. The true what I believe is DH (teeny-dimesize...
  15. Hb333
    Thanks. I'm not sure which one it tested for!
  16. Hb333
    Hello, what supplements and in what dose do you take to help your acne?
  17. Hb333
    Blood test results that showed negative for Celiac were: IGA = 397.3 (normal range 84.5-499) Tissue Transglutamine IgA = less than 20 (normal range) Gliadin AB IgA = less than 20 (normal range) Gliadin AB IgG = less than 20 (normal range) I had definitely been eating all the gluten prior to this test (bread, buns, beer, breading,...
  18. Hb333
    The best diagnosis i heard was flea bites. I was convinced it was shingles and had to beg a few docs for anti viral which didn't touch it really. My back itches all the time. Thank you for this information. My dermatologist is pretty cool. I'll ask him this! Is there info you can provide on the diet? I know even supplements can cause it. I have been taking...
  19. Hb333
    When I donate blood I always have very high hemoglobin or hematocrit before that. High-normal so definitely not anemic, but not high enough to be hemochromatosis. Levels high- normal... for a man not a woman so they aren't diagnosing, just making sure you're not anemic. I worked at a blood bank for awhile.
  20. Hb333
    Thanks for the message. No skin biopsy yet but if the allergy test for the other condition is negative I will ask about this. I almost always have active lesions. Some will heal but others crop up. A GP cultured them for HSV a few years ago and that was negative as was a blood test for that. They are worse in high stress times of my life. I have...
  21. Hb333
    Oh I also have tiny red spots and "cherry moles" all over. More and more every time I look, pinprick looking mostly but some are larger, and I see more every time I look at my skin in the light. I feel like I read somewhere once that this is related to eating bread.....
  22. Hb333
    For 11 years, I've thought I've suffered with ongoing, recurrent shingles until a dermatologist (I hadn't seen one in ages) suggested celiac disease. GPs over the years suggested, initially, shingles, which made sense because of the itching, stinging and burning as well. But it never responded to the antivirals and I "thought" it was responding to the loads...
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