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CeliacMom502

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  1. CeliacMom502 started following Putting the Pieces Back Together
  2. CeliacMom502 started following Facial pain and Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?
  3. icon Scott Adams reacted to a post in a topic: Facial pain
  4. icon OHaraCrazy reacted to a post in a topic: Facial pain
  5. icon Celiacdaughter reacted to a post in a topic: Facial pain
  6. CeliacMom502
    Following is about celiac neuropathy mentioning pain in face: https://www.cureceliacdisease.org/wp-content/uploads/0410CeliacCtr_News.pdf
  7. icon CeliacMom502 reacted to a post in a topic: Facial pain
  8. CeliacMom502
    Thank you so much for reaching out! I am so sorry you and your children have all suffered. I feel that part of my daughter’s childhood has been robbed 😞. 3 years ago she was misdiagnosed in my opinion as having Mononucleosis- fatigue and headaches for several months- it was celiac. It wasn’t until the past few months that a neurologist was smart enough to tes...
  9. icon CeliacMom502 reacted to a post in a topic: Facial pain
  10. CeliacMom502
    Thank you so much!
  11. CeliacMom502
    Thank you for responding. It’s helpful to know that there are others having the same unexplained unresolved symptoms. I too have been wondering about trigeminal neuralgia and cluster headaches. I hope that we both can find answers to help our daughters get rid of these issues!
  12. CeliacMom502
    Thank you! This is very helpful and gives me hope!
  13. icon Scott Adams reacted to a post in a topic: Facial pain
  14. CeliacMom502
    Thanks for this info!
  15. CeliacMom502
    Thanks! As I clarified with @trents above the pain is sinus region. I did have her tested for Vitamins B-1, B-6, B-12, folates, copper and zinc and all came back normal. I’m just hoping these headaches and the facial pain will heal in time.
  16. CeliacMom502
    Thanks! I should clarify that this pain is also felt on forehead and sometimes jaw as well as top of head- bruised feeling- and think may be headache related/neurological. When I say cheeks I mean sinus area under eyes- so pain mostly nonstop in sinus region (forehead and under eyes). The Gastro indicated early stages of celiac- there was more than normal...
  17. CeliacMom502
    Yes. At her last checkup while this was going on. Her teeth are in great shape and no TMJ. Also, she has had a cat scan to rule out sinus infection as well as a brain MRI which was clear.
  18. CeliacMom502
    Hi! My 10 year old daughter was recently diagnosed with celiac disease. Her symptoms were mainly non-gastrointestinal: constant headaches and facial pain. We thought she was suffering from a chronic sinus infection at first. Long story short, she has celiac and has been gluten free since her endoscopy-so for one month gluten-free. I see a major improvement...
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