statguymark
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Scott Adams reacted to a post in a topic:
Newly diagnosed with DH
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I'm sorry you are having that problem. It sounds awful. I'm curious about the Dapsone gel, vs a tablet. I'm not a doctor so my advice is completely amateur, but maybe switch to the tablet if the gel fails to help for another week. And be sure to do the blood tests.
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Thank you Scott. It is clear to me that Dapsone is a mixed bag of good and bad. I am currently taking a 1/2 dose nearly every day with my doctor's guidance. I am continuing to strive for low or zero gluten in my diet and I will continue with the blood tests. My current struggle is to find a physician that has experience with DH and Dapsone. I am lucky...
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statguymark reacted to a post in a topic:
Effects, and side effects, of Dapsone
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Effects, and side effects, of Dapsone
statguymark replied to statguymark's topic in Dermatitis Herpetiformis
Unfortunately, I had a serious side effect from Dapsone so I am no longer taking that drug. My blood oxygen content was lowered by Dapsone. My oximiter (that thing you put on the end of your finger) was measuring in the low 90's and it should be (and has been) in the upper 90's. So I stopped taking Dapsone on the advice of my doctor. And I feel better. Questions... -
Effects, and side effects, of Dapsone
statguymark replied to statguymark's topic in Dermatitis Herpetiformis
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Effects, and side effects, of Dapsone
statguymark replied to statguymark's topic in Dermatitis Herpetiformis
Thank you for that link to the webinar. I'm about halfway through and it's good background information, but a little too technical for me. I will finish it slowly. I am very lucky to have gotten near instant relief from itching after taking Dapsone for the first time. I'm still staying gluten free and I know that I must have a series of ongoing blood... -
Effects, and side effects, of Dapsone
statguymark replied to statguymark's topic in Dermatitis Herpetiformis
Thank you very much. I appreciate the link, and I will check it out. -
Hello all. I've had the appropriate blood and urine tests and I should pick up my Dapsone prescription later today. Please share your experiences about how quickly the drug might help me, and especially what side-effects I should watch out for. I know that I must have more blood tests, weekly at first, then bi-weekly. And what have you done with...
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Scott Adams reacted to a post in a topic:
Newly diagnosed with DH
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Thanks very much. That's the type of advice I was seeking. Best of luck to you and everyone else. statguymark
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statguymark reacted to a post in a topic:
Newly diagnosed with DH
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statguymark reacted to a post in a topic:
Newly diagnosed with DH
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statguymark reacted to a post in a topic:
Newly diagnosed with DH
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Hello all, I'm recently diagnosed with Dermatitis Herpetiformis and I am also new to this website and these forums. I was diagnosed with celiac disease 5 years ago and my symptoms were very mild. I changed a few dietary choices and managed well. Several months ago, that nasty rash came on strong and I finally got to a dermatologist and got my DH diagnosis...