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Arietti

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  1. Too true! My dermatologist somehow knew more about DH than my GI doctor did though, Wwhich is weird. He said celiacs get referred to him for the GI stuff, and he rarely sees the skin problems so he doesn't know much about it. He only recommended to me to stay off gluten (duhh!!).
  2. Thank you for sharing! It's crazy how much cross contamination is out there. Literally can be glutened by anything you put in your body. I will definitely look up the U-lactin ointment too! I'm using clobetasol right now, but I'm not sure if it's working. It's awful that on top of all the celiac symptoms we have, we have to deal with scarring too!
  3. Wow really interesting article! Even NSAIDS are linked to DH!? Jeeze. I've been checking the medicines I take though. When you had your biopsy done, how many did they do? Did it leave scaring? And did you have to do it at the first signs of eruption? Also I'm curious do you have many other symptoms? I was reading many DH sufferers don't necessarily...
  4. Wow! Never really thought about thiamine before, but I have so many of those symptoms with my thyroid. Definitely going to look up some supplements to see if it helps! I really should keep a food journal as I know that helps correlate flare ups. I've been thinking about it! The dairy in my coffee/tea/lattes is a big one. I can't have many "goodies...
  5. Finally figured out how to add photos. Does this look like the various types of DH you have experienced? All erupted after consuming gluten or foods high in iodine. Subsequently was also sick, nauseous with a severe headache (like a hangover) when they started.
  6. Thank you for the reply! Helpful info! Glad to know DH rears it's ugly head in many forms. Makes sense that it could be pressure/friction sensitive too. My current stripe is on my left leg too! I just found out about the iodine!! Catch 22, because I'm hypothyroid the Dr often recommends iodine. But I haven't been taking any extra anyway, because...
  7. I'm glad you found out that it ran in your family! That just makes it so much easier to figure out, because it's often hereditary, so you don't always have to go through the pain of a diagnosis. AND makes it easier for you to learn from and you have a network from the get go! I'm the first one in my family that I know of, so I'm a work in progress... Yes...
  8. It's worth adding, I have an auto immune thyroid disorder (hashimotos), and was negative on the IGA blood test (but was already 6 weeks gluten-free at the time). Doctor agrees that doing a gluten challenge would be a huge hassle for me and not worth it. I tried it for few days and was very sick- severe nausea, headache, dizziness and dh flare ups.
  9. I'm a newly diagnosed Celiacs (multiple drs agree), based off my symptoms. It started 6 months ago with a general itchy scalp and rash. Dr gave me steroids, didn't help. 3 months later it started bilaterally on my elbows, then knees, ankles.. practically my whole lower body. It looked like a cluster of hives almost, swollen, raised pink/red patches. It was...
  10. No I didn't see anything like that at all.
  11. No edit option unfortunately. Even in the app, or in the desktop site. Is it because I have a new account?
  12. Hi! Thank you very much! The three dots only give two options: Report and share. I'm using this on my mobile device. Could that be why?
  13. New to this forum. Hi guys! So for the last few weeks I've been battling this insanely itchy rash. First started on my elbows, cleared up after 10 days ish with a steroid cream. Then broke out on my knees, ankles and now it's moved on to my thighs. Does it look like DH to you? I've mentioned dapsone to my dermatologist and she's looking into it. I've...
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