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Russ H

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Russ H last won the day on September 6 2024

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  1. icon Russ H reacted to a post in a topic: How to navigate living with dermatitis herpetiformis
  2. Russ H started following UK COVID Vaccination Eligibility For Coeliac Disease , False blood test positive? , Grain fed cow milk vs 100% Grass fed cow milk and 7 others
  3. Russ H
    Your initial test showed a moderately raised level of IgA tTG2. There are several causes of this apart from coeliac disease including: inflammation of the joints, bowel and liver. Transient rise in levels can be caused by an infection.
  4. Russ H
    Small amounts of gliadin are detectable in some samples of human breast milk but these are at too low a level to cause symptoms. No gliadin has been detected in the beef of grain-fed cattle. https://pmc.ncbi.nlm.nih.gov/articles/PMC5622696/
  5. icon Scott Adams reacted to a post in a topic: Fibrin glue
  6. Russ H
    I doubt very much that it contains any gluten. It works by producing an artificial blood clot, mixing 2 or more proteins found in the natural blood clotting cascade. These are refined from human blood donations. It comes in 2 vials that are mixed immediately before use and clot quickly.
  7. icon Russ H reacted to a post in a topic: Can't figure this out
  8. icon Russ H reacted to a post in a topic: Can't figure this out
  9. Russ H
    Apart from the symptoms of SIBO there may be other symptoms that you are unaware of because they come on so slowly. It takes a long time to fully recover, especially when diagnosed as an adult. Apart from the classic signs and symptoms, I had all sorts of strange ones that have gradually resolved including: heart arrhythmia, tendonitis, chilblains, body odour...
  10. Russ H
    The prevalence of SIBO is about 5x higher in people with coeliac disease than those without. In people with coeliac disease, it responds well to antibiotic therapy. It can take several years to achieve full recovery of the digestive tract when following a strict gluten free diet. Note that if you are having a biopsy to confirm coeliac disease, you must...
  11. icon Scott Adams reacted to a post in a topic: Pretty desperate for some guidance
  12. Russ H
    Note also that the amount of problematic protein (gliadin) that is found in breast milk of women having a normal gluten containing diet varies but is very small. Although the study referenced below says 'very high', the amounts detected vary between undetectable and a maximum of 1.2 parts per million. Breast milk is considered safe for infants with coeliac...
  13. icon Russ H reacted to a post in a topic: Severe joint swelling from Celiac
  14. icon knitty kitty reacted to a post in a topic: Oats & Coeliac Disease
  15. Russ H
    Hello, and welcome to the forum. More knowledgable people might be able to chime in. Firstly, coeliac disease causes all sorts of bizarre manifestations in adults from chilblains to schizophrenia. There is a direct association between coeliac disease and arthritis in younger people, and coeliac disease has a common genetic predisposition with rheumatoid arthritis...
  16. Russ H
    An interesting presentation from 2023 concerning the effects of consuming purified avenin protein from oats. From my understanding of this study, people with coeliac disease do have T-cells that recognise and react to oats. However: 1. 38% of participants with coeliac initially developed raised blood inflammatory markers following consumption of avenin...
  17. Russ H
    You should be careful with anything containing oats (such as granola) unless they are specifically gluten-free. Oats are often contaminated due to various factors including crop rotation, adjacent crops and the sharing of harvesting and milling equipment. Barley malt extracts can be up to 1000 ppm of gluten unless certified gluten free. Even though only a...
  18. icon Scott Adams reacted to a post in a topic: Newly Diagnosed
  19. icon Russ H reacted to a post in a topic: Newly Diagnosed
  20. icon Russ H reacted to a post in a topic: Newly Diagnosed
  21. Russ H
    Approximately 1 in 3 adults have neurological symptoms on diagnosis. The mechanism and pathogenesis is unknown. These normally go into remission on a strict gluten-free diet. Common symptoms are anxiety, slow thinking, 'brain fog', memory problems and headaches. Although I think I have had coeliac disease in a mild form since childhood, my symptoms suddenly...
  22. Russ H
    For those in the UK wondering whether a diagnosis of coeliac disease alone makes one eligible for a 2024 Autumn COVID booster, it seems that yes, this does make one eligible. There is variability between GP surgeries in proactively calling people in for vaccination, but it is straightforward to use the NHS App to book a vaccination. If attending a pharmacy...
  23. Russ H
    This could be steatorrhoea (fatty stools), which is a common symptom of coeliac disease due to fat malabsorption. Easy to perform a lab test for. Reflux is also a common symptom of untreated coeliac disease. I think trents is correct that a total-IgA test is needed to rule out IgA deficiency.
  24. icon Russ H reacted to a post in a topic: Too early for diagnosis?
  25. icon Russ H reacted to a post in a topic: Seeking Advice about Fecal Transplant to Treat Celiac Disease
  26. icon Wheatwacked reacted to a post in a topic: Confusing results
  27. Russ H
    Those serum tests are for total immunoglobulins in each class (IgA and IgM) and are not specific to coeliac disease. You need the test results for antibodies to tTG2, which is a very sensitive test for coeliac disease. I would follow your doctor's advice.
  28. icon Scott Adams reacted to a comment: Understanding the Role of Transglutaminase 2 in Celiac Disease
  29. Russ H
    There has been some success with creating a tTG2 inhibitor. https://www.nature.com/articles/s41590-024-01867-0
  30. icon Russ H reacted to an article: Understanding the Role of Transglutaminase 2 in Celiac Disease
  31. icon Russ H reacted to an article: Understanding Celiac Disease and Its Implications for Corneal Refractive Surgery
  32. icon Slimkitten reacted to a comment: Gluten as a Proinflammatory Inducer of Autoimmunity in Everyone
  33. Russ H
    Interesting study on gluten cross-contamination. Biggest risk from pasta water, pots and utensils. Toasters surprisingly not! Preparation of Gluten-Free Foods Alongside Gluten-Containing Food May Not Always Be as Risky for Celiac Patients as Diet Guides Suggest
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