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Russ H

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Russ H

  1. Russ H
    I doubt very much that it contains any gluten. It works by producing an artificial blood clot, mixing 2 or more proteins found in the natural blood clotting cascade. These are refined from human blood donations. It comes in 2 vials that are mixed immediately before use and clot quickly.
  2. Russ H
    Apart from the symptoms of SIBO there may be other symptoms that you are unaware of because they come on so slowly. It takes a long time to fully recover, especially when diagnosed as an adult. Apart from the classic signs and symptoms, I had all sorts of strange ones that have gradually resolved including: heart arrhythmia, tendonitis, chilblains, body odour...
  3. Russ H
    The prevalence of SIBO is about 5x higher in people with coeliac disease than those without. In people with coeliac disease, it responds well to antibiotic therapy. It can take several years to achieve full recovery of the digestive tract when following a strict gluten free diet. Note that if you are having a biopsy to confirm coeliac disease, you must...
  4. Russ H
    Note also that the amount of problematic protein (gliadin) that is found in breast milk of women having a normal gluten containing diet varies but is very small. Although the study referenced below says 'very high', the amounts detected vary between undetectable and a maximum of 1.2 parts per million. Breast milk is considered safe for infants with coeliac...
  5. Russ H
    Hello, and welcome to the forum. More knowledgable people might be able to chime in. Firstly, coeliac disease causes all sorts of bizarre manifestations in adults from chilblains to schizophrenia. There is a direct association between coeliac disease and arthritis in younger people, and coeliac disease has a common genetic predisposition with rheumatoid arthritis...
  6. Russ H
    An interesting presentation from 2023 concerning the effects of consuming purified avenin protein from oats. From my understanding of this study, people with coeliac disease do have T-cells that recognise and react to oats. However: 1. 38% of participants with coeliac initially developed raised blood inflammatory markers following consumption of avenin...
  7. Russ H
    You should be careful with anything containing oats (such as granola) unless they are specifically gluten-free. Oats are often contaminated due to various factors including crop rotation, adjacent crops and the sharing of harvesting and milling equipment. Barley malt extracts can be up to 1000 ppm of gluten unless certified gluten free. Even though only a...
  8. Russ H
    Approximately 1 in 3 adults have neurological symptoms on diagnosis. The mechanism and pathogenesis is unknown. These normally go into remission on a strict gluten-free diet. Common symptoms are anxiety, slow thinking, 'brain fog', memory problems and headaches. Although I think I have had coeliac disease in a mild form since childhood, my symptoms suddenly...
  9. Russ H
    For those in the UK wondering whether a diagnosis of coeliac disease alone makes one eligible for a 2024 Autumn COVID booster, it seems that yes, this does make one eligible. There is variability between GP surgeries in proactively calling people in for vaccination, but it is straightforward to use the NHS App to book a vaccination. If attending a pharmacy...
  10. Russ H
    This could be steatorrhoea (fatty stools), which is a common symptom of coeliac disease due to fat malabsorption. Easy to perform a lab test for. Reflux is also a common symptom of untreated coeliac disease. I think trents is correct that a total-IgA test is needed to rule out IgA deficiency.
  11. Russ H
    Those serum tests are for total immunoglobulins in each class (IgA and IgM) and are not specific to coeliac disease. You need the test results for antibodies to tTG2, which is a very sensitive test for coeliac disease. I would follow your doctor's advice.
  12. Russ H
    There has been some success with creating a tTG2 inhibitor. https://www.nature.com/articles/s41590-024-01867-0
  13. Russ H
    Interesting study on gluten cross-contamination. Biggest risk from pasta water, pots and utensils. Toasters surprisingly not! Preparation of Gluten-Free Foods Alongside Gluten-Containing Food May Not Always Be as Risky for Celiac Patients as Diet Guides Suggest
  14. Russ H
    I have a diary somewhere but if I recall correctly, I began to notice an improvement after about 2 weeks, but that is a slight improvement. The major one was 3 months in. I think I had it for at least 45 years prior to diagnosis. I am 3 years in and I think I am still recovering. Most of the recovery was in the first year, by which time I was back on...
  15. Russ H
    You might notice that you were actually symptomatic but you were just habituated to the symptoms. I had all kinds of strange signs and symptoms that just disappeared such as red thickened skin on knees and elbows, chilblains, body odour, tendonitis and a heart arrhythmia amongst others.
  16. Russ H
    It would be interesting to look at populations that have never been exposed to gluten.
  17. Russ H
    The generally accepted as safe level of gluten for people with coeliac disease is 10 mg (although some people are more sensitive and some people less). This is equivalent to a piece of bread the size of a small pea. Even with shared utensils, you can prepare safely so long as you make sure everything is clean. Stainless steel and non-stick pans are easy to...
  18. Russ H
    Lactose-free milk is readily available in the UK. https://www.tesco.com/groceries/en-GB/shop/fresh-food/milk-butter-and-eggs/milk/lactose-free-milk
  19. Russ H
    This is totally false. Gluten is the name for the protein found in wheat, barley and rye flour. When wheat flour is worked into dough, it is the gluten that makes it stretchy and elastic. Adding oil may alter the properties of the flour when it is worked, but it won't affect the actual gluten content.
  20. Russ H
    It may be worth getting yourself tested for coeliac disease as a 1st degree relative of someone with the condition has an increased chance of having coeliac disease (about 10%). https://www.coeliac.org.uk/information-and-support/coeliac-disease/about-coeliac-disease/causes/genetics/
  21. Russ H
    I experienced memory problems, brain fog and anxiety. Gradually faded on a gluten free diet and came back with a vengeance when I resumed eating gluten for testing.
  22. Russ H
    My understanding is that this is a cross-reaction - people with active coeliac disease generate antibodies that cross-react to milk proteins amongst other things. However, the cross-reaction does not drive coeliac disease, and when gluten is excluded and the antibodies fade out, the cross reaction disappears.
  23. Russ H
    The paper is currently freely available: Characterizations of a neutralizing antibody broadly reactive to multiple gluten peptide:HLA-DQ2.5 complexes in the context of celiac disease
  24. Russ H
    It would normally be diagnosed by a combination of endoscopy and biopsy findings combined with blood tests for coeliac disease related antibodies.
  25. Russ H
    An optimistic article from the journal Nature about emerging therapies for autoimmune diseases. Nature: Can autoimmune diseases be cured? Scientists see hope at last
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