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Russ H

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Russ H

  1. Russ H
    Hello ceciceco, Unfortunately I don't think you can do anything. It is a matter of riding it out. The immune response to gluten varies greatly between different people. Coeliac disease seems to fall into 3 different categories: silent (sub-clinical), predominantly gastrointestinal, and gastrointestinal with extra-gastrointestinal effects. I have a theory...
  2. Russ H
    Hello TT0202, Sounds like you have been through the wringer. Sounds like you need to be under the care of a good doctor. What vitamin supplements are you taking, what dose and for how long? Russ
  3. Russ H
    Let us know how you get on. Lots of knowledgeable people on this forum who can give advice.
  4. Russ H
    That is very sad. I am sorry to hear that.
  5. Russ H
    Congratulations! Don't wait for test results, get on a folic acid (folate) supplement immediately if you are not already doing so. 400 mcg per day is the recommended dose (might be slightly more in the US). Reduces the risk of neural tube defects amongst other things. Don't delay this one. https://www.nhs.uk/pregnancy/keeping-well/vitamins-supplements...
  6. Russ H
    Bruising easily may be a result of low platelet count. It seems that thrombocytopenia can be caused by coeliac disease, and generally resolves on a gluten free diet. For example: https://pubmed.ncbi.nlm.nih.gov/20455043/
  7. Russ H
    My joint symptoms resolved over about 6 months. Not completely resolved yet, but improving every day. Watch out for oats, about 10% of people with coeliac react to oats, which contain a similar protein to wheat gliadin.
  8. Russ H
    I hobbled around like an old man for years with painful foot and knee joints and Achilles' tendonitis. It has gradually resolved over 6 months or so since I was diagnosed and went strictly gluten free. My Achilles' tendons are still a bit stiff sometimes but improving and nothing like they used to be. Today, I did a 16 mile walk up over the moors. Glorious...
  9. Russ H
    When you say you are having palpitations, is your heartbeat regular?
  10. Russ H
    What B6 food were you eating? The safe upper limit is 100 mg a day, which equates to 21 pounds of beef liver. If you are eating more than this amount of liver every day, I raise my hat to you.
  11. Russ H
    Chilblains are associated with anorexia and bariatric surgery, so there is certainly a nutritional factor involved. The thing about vitamin D is that it serves as a proxy for being housebound or bedbound i.e. poor general health, so low vitamin D status ends up being associated with numerous conditions even when it is not the cause.
  12. Russ H
    Yes, it could be malnutrition. However, coeliac disease is associated with vasculitis, and I suspect this goes beyond nutritional deficiency and is related to inmmunoglobulins.
  13. Russ H
    I just found an old paper, more of case study - 4 coeliac patients with cryoglobulinaemia. A condition were immunoglobulins reversibly precipitate out of the blood at low temperatures and cause vasculitis and skin lesions. https://gut.bmj.com/content/13/2/112 More on cryoglobulinaemia in this link. I suppose for coeliac disease, it would be from...
  14. Russ H
    I couldn't find much on autoimmune disease and chilblains apart from lupus. I found a study investigating COVID toes (that are similar to chilblains) and the sufferers had raised IgA autoantibodies. Coeliac disease does seem to be associated with vasculitis, so maybe it can cause chilblains.
  15. Russ H
    Maybe not Guinness, but I have seen a few gluten-free stouts available. It would be interesting to have the gluten content of Guinness measured in a proper lab. Someone tested it and got a negative, although I would want stronger evidence before I tried it. https://smartgurlsolutions.com/2018/04/16/guinness-stout/
  16. Russ H
    It was the Cumberland Hotel in Alston. They don't always have it on though, and I drank the last of it. Probably worth phoning ahead to be sure. Quite a few places sell Allendale Brewery ale but you would need to phone to see what they stock. http://www.allendalebrewery.com/where-to-drink
  17. Russ H
    And they would be correct. I had my first decent beer for many months at the weekend. Local brewery makes a gluten-free ale that actually tastes like ale - Allendale Hop On. Nectar of the Gods.
  18. Russ H
    I am in northern England and apparently the GPs prescribe gluten free flour. I want to see if they will prescribe gluten free beer instead.
  19. Russ H
    The Barilla pasta is good. I like Sainsbury's own brand brown rice pasta. It is in the pasta section rather than the free-from aisle but is gluten-free. Have to be careful cooking as it rapidly turns from undercooked to overcooked.
  20. Russ H
    I have always suffered from cold hands and feet and had a mild Raynaud's type condition where my fingers would go white and numb. About 10 years ago, I began to get chilblains in winter. I haven't had a any chilblains this winter after going gluten-free. I also no longer suffer from cold hands and feet. Has anyone else had a similar experience? There...
  21. Russ H
    I think the UK modus operandi is diagnosis via blood test results. Further endoscopy to check for pathology if over the age of 55 or under 55 and symptomatic but negative blood test.
  22. Russ H
    Ha, I know what you mean. The trick is finding a genuine Italian restaurant, staffed by Italians. If they struggle with English, all the better. I have been nomadic for the past year and eating out a lot, so I have learnt to be polite but persistent when asking about food preparation. Only takes a single contaminated meal to boost antibodies.
  23. Russ H
    Btw, I found some good bread and pastry recipes here: https://glutenfreeonashoestring.com/
  24. Russ H
    You get used to it. The main difficulty is eating out. I haven't found a gluten-free bread as nice as real wheat bread but there are some excellent gluten-free pastas. It has severely curtailed my beer consumption, which is probably for the best. Good luck!
  25. Russ H
    Not a bird keeper by any chance?
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