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Russ H

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Russ H

  1. Russ H
    My father was a Scot but I am originally from the South East. Lived in Sweden for several years on and off and now in Aberdeen. Great place to live. Very friendly and hospitable and can get into the hills easily. Have a few pubs with gluten-free beer on tap. What more do you need?
  2. Russ H
    That is just how I felt. A sense of impending doom, anxiety and confusion. Also paranoia and memory problems, particularly short term memory. I saw 5 doctors but did not get diagnosed. I was saying all the right things and had the classic symptoms. Just unlucky I suppose. If I eat gluten my neurological symptoms come on within in a few hours...
  3. Russ H
    Thanks.
  4. Russ H
    I think this is possible. I have a similar experience. I think I inherited it from my mother who was plagued with health and psychiatric problems that emerged in adulthood. Particularly, she developed seizures and calcification of the the occipital arteries and blindness in later life. I was beginning to develop neuropsychiatric symptoms but they have resolved...
  5. Russ H
    Ultrasound will pick up things like diffuse inflammation - useful for detecting a fatty liver and liver fibrosis for example.
  6. Russ H
    I didn't find this in Sweden or Denmark, and I was there for a year. Haven't visited Finland (which is not Scandinavia). It does seem to be EU law, and the UK has similar regulations, which are strictly applied.
  7. Russ H
    In the UK, foodstuffs are marked with a list of ingredients and any possible allergens in BOLD letters. It is easy to see whether something contains gluten. In all of Scandinavia, I never saw this. Eating out is a nightmare because staff don't know and don't seem to care about allergens and food intolerances. The only places that were safe were genuine French...
  8. Russ H
    Definitely not the UK. Diagnosis in the UK can now be by blood test alone, especially for younger people. Sadly, Scandinavia is rather backward in these matters.
  9. Russ H
    That could be a fatty stool. I never had diarrhoea but my stools had the consistency of sticky porridge. Didn't float but were difficult to flush away and stained the toilet pan under the water level. Horrible but began to resolve after a couple of weeks on strict gluten free diet.
  10. Russ H
    I had foul smelling fatty stools, but I did not realise until I stopped having them. I was also plagued with body odour, memory problems, bad breath, difficulty concentrating, tendonitis and weight loss. All pretty much gone now. I feel a little bit better every day. I hadn't realised just how ill I was before, and for how long. I have moved back to...
  11. Russ H
    I think mine started at about the age of 7 and gradually worsened, becoming suddenly much worse at the age of 32 following influenza. Then 20 years of Hell until I finally got diagnosed. I was developing neurological symptoms but they seem to be improving slowly. Most doctors don't seem to be aware of how serious coeliac disease is. I don't know the...
  12. Russ H
    A technical review of coeliac disease and neurological sequelae here. I am increasingly convinced that my mother had celiac disease. Apart from the classic symptoms of celiac disease, this paragraph is an eye opener, particularly occipital calcification (CEC syndrome): https://www.cambridge.org/core/journals/nutrition-research-reviews/article/progression...
  13. Russ H
    That is how I eventually narrowed down my problem. Bloating and burping is a symptom of fermentation in the small intestine, bacterial overgrowth where there should be few. This can be caused by a dysbiosis, leaky valves or coeliac disease. I used to burp for hours after every meal. When I went gluten free it took almost 3 months for the burping to resolve...
  14. Russ H
    Not the gut - aspirin affects the stomach through several mechanisms. It doesn't directly cause inflammation. It is a COX inhibitor and reduces mucus secretion and neutralising bicarbonate production from the stomach walls, allowing stomach acid to cause mucosal damage. I would steer clear of it unless prescribed by a doctor. Now I am of a certain age, I...
  15. Russ H
    When you say you get bloated, is it with gas? Does it make you burp? Do you get upper abdominal distention - just under the front of your rib cage? How about reflux?
  16. Russ H
    I think you can do that in Sweden too, although I haven't tried. I read that screening of blood in Africa shows a similar level of genetic predisposition to coeliac disease as Europe yet the incidence is much lower. So there must be some environmental factor.
  17. Russ H
    Yes, I tried everything to cure my Achilles trouble. Nothing worked. It was very debilitating. It could just be coincidence, but I suspect a connection.
  18. Russ H
    My go-to when I have been glutened is chickpea and leek soup. The leek fibre is very soft and slippery and doesn't irritate my gut. Strangely, I find that a glass of red wine helps - for some reason it seems to stop the burping and reflux for a few hours. Tea with milk is OK for me but coffee, cucumber, sweet pepper, raw salad and anything salty or acidic...
  19. Russ H
    Yes, and there is a common genetic predisposition between coeliac and type 1 diabetes so it is certainly worth my brother being tested. This summer I stopped at a small hotel in Sweden and the owner had coeliac disease. It was the first person I have met in the flesh with the condition, so it was quite interesting talking to her. Her father had coeliac...
  20. Russ H
    It seems that coeliac can affect any part of the body. I used to have painful MTP joints in my feet, and that has resolved on its own. I also used to get chilblains on my toes and haven't had any this year even though my feet have been very cold and wet several times. I have not had dermatitis herpetiformis but I used to get intensely itchy bumps around my...
  21. Russ H
    Thanks for sharing those links. Very interesting. I strongly suspect that my mother had coeliac disease. I cared for her for several years after a stroke, and she had similar physical symptoms to mine. She also had chronic mental health problems and was sectioned several times. Like me she was rake thin. I am trying to get my brother (who has adult onset...
  22. Russ H
    I have been plagued by insertional Achilles tendonitis for 20 years. A used to run and assumed it was an overuse injury and that was it. Curiously it came on not long after my coeliac symptoms become more severe. This year when I went strictly gluten free, the tendonitis began to spontaneously disappear and returned when I went back on gluten for several...
  23. Russ H
    I develop neurological symptoms after eating gluten - memory problems, depression and paranoia which gradually fade over several weeks gluten free. I have read medical reports of it triggering neurological problems as varied as schizophrenia and ataxia. I have been 'glutened' several times this year and just don't risk eating out now.
  24. Russ H
    I don't know how the system works in the US, but in the UK your symptoms would be enough for your GP to refer you to be tested for coeliac disease. For persons under the age of 55, this is now done by blood test alone. People who are symptomatic and have negative blood test, or are 55+ have an additional endoscopy. 1% prevalence in the general population...
  25. Russ H
    I began to experiencing ectopic beats about 13 years ago. I have worn a 24 hour Holter monitor twice and was diagnosed with benign PACs (premature atrial complexes). Stress and alcohol made them worse. Regular exercise made them better. I had 2 episodes when they became worryingly frequent and visited the local hospital. Since I eliminated gluten from my...
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