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Russ H

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Russ H

  1. Russ H
    Sorry, missed this response.
  2. Russ H
    Age of diagnosis, not onset. You may have had it for decades as a smouldering disease. In the UK, coeliac disease is most commonly diagnosed between the ages of 40 and 60 - 70 is not that much of an outlier. You might try excluding oats and dairy products until your gut has healed. They can exacerbate symptoms in active disease. Once your gut has healed and...
  3. Russ H
    In addition to what trents has posted above, it can take 2 years or more to recover from dermatitis herpetiformis. Your rash could also be something else such as weeping eczema or an allergic reaction.
  4. Russ H
    Certainly need a B12 supplement and probably iron. Given the general malabsorption problem associated with coeliac disease, I would take a good multivitamin daily, That's what I do.
  5. Russ H
    Hi Liyak, and welcome to the forum. The results you have posted indicate isolated raised IgA DGP. This is not in itself very predictive of coeliac disease in adults because your other results (assuming you had IgA tTG measured) were within the standard range. The total IgA result means that you are not IgA deficient, and therefore the standard tests...
  6. Russ H
    Maltodextrin is gluten-free: https://www.coeliac.org.uk/frequently-asked-questions/can-i-eat-maltodextrin/
  7. Russ H
    I had a quick literature search and couldn't find anything for adults. In children I found one study that was equivocal but another that suggested H. pylori could cause a rise in IgA-tTG2 antibody levels. Your level was only moderately raised - when 10x standard range or higher, it is almost certainly coeliac disease. Adhering to a strict gluten-free diet...
  8. Russ H
    Hi Magnus - can you describe your symptoms more fully? Abdominal pain - which quadrant and how often? Other gut issues - bloating, burping, reflux? Do you have foul smelling, difficult to flush bowel movements? How often? When you say limb numbness - in all limbs, any sensations (pins and needles) etc? Brain fog - do you have memory...
  9. Russ H
    People with coeliac disease vary greatly in their symptoms and sensitivity to gluten. The generally accepted as safe level of gluten exposure is 10 mg per day. People start to show signs of intestinal damage above 30 mg per day. Studies show that some people with coeliac disease on a gluten-free diet can tolerate the occasional meal containing gluten without...
  10. Russ H
    And keep consuming gluten - you need to do that for 6 weeks before the panel for an accurate result.
  11. Russ H
    So if coeliac disease is a cause of migraines, it is not due to shared genetic predisposition but a consequence of coeliac disease itself - perhaps an indication of gluten-induced-neuropathy. I used to get several migraines a year but haven't had one in 2 years since my diagnosis.
  12. Russ H
    Could you share your test results? Values and reference ranges. Most people with coeliac disease can tolerate 10 mg of gluten a day without provoking an immune response. This is the generally accepted as safe level. Wheat flour is about 10% protein, so 10 mg gluten is about 100 mg of wheat flour. Bread has a specific gravity of about 0.25, giving a volume...
  13. Russ H
    It refers to data presented at https://ddw.org/ . Possibly a poster presentation although I can't find it anywhere. The author is interviewed in the link below and suspects that problems could be related to non-adherence to a strict gluten-free diet. https://www.hcplive.com/view/jansson-knodell-treating-pregnant-women-celiac-disease
  14. Russ H
    It is not unheard of. https://www.nature.com/articles/1001404
  15. Russ H
    Isolated positive DGP-IgG has very poor predictive value for coeliac disease in adults. It is useful in infants.
  16. Russ H
    I was ill for so long that I don't remember what normal is. I think I was ill for more than 40 years. I was diagnosed over 2 years ago. I was totally intolerant to dairy but this has now gone. I probably have a lingering dysbiosis and some foods such as beans cause a lot of bloating and burping. Your iron seems very low. Do you take vitamin C with it...
  17. Russ H
    I do the same thing. Mercifully, I don't go into anaphylaxis as some people do if exposed to allergens, but on the other hand don't know whether I have been exposed enough to provoke an immune response and all the sequelae that involves. Apart from a handful of local places that I know are safe, I don't eat out. I got badly glutened several times in Sweden...
  18. Russ H
    People here a posting rigorous scientific consensus backed information. Kennedy is not.
  19. Russ H
    I doubt that very much. Robert F Kennedy jr. has no scientific or medical qualifications and promotes conspiracy theories and anti-vaccine propaganda. Childhood vaccines do not cause problems for most people - they are thoroughly tested and monitored and are very safe. It is not known what triggers coeliac disease. The allegation that glyphosphate causes...
  20. Russ H
    Exactly. Undigested proteins are excreted in the stool, they don't get into the meat or dairy products.
  21. Russ H
    I got myself a bread machine and found a good recipe based upon gluten-free oat flour amongst other ingredients. It uses psyllium husk to replace the gluten and the result is just like wheat bread. https://www.glutenfreealchemist.com/gluten-free-bread-machine-recipe-bread-maker/
  22. Russ H
    These forearm creases seem to be caused by WHB rather than coeliac disease and go into spontaneous remission after sufficient time. (WHB = women holding babies).
  23. Russ H
    The enzyme has been approved by the European Food Safety Agency as safe for regular human consumption: https://www.efsa.europa.eu/en/efsajournal/pub/4681 They tend to follow the precautionary principle, so if they regard it as safe it probably is.
  24. Russ H
    Would be interesting to see whether vaccination against Strep. pneumoniae affects incidence of coeliac disease. In the UK, it has been given to infants since 2006 so I suppose any affect would have shown up by now.
  25. Russ H
    Blood sugar is the first thing I thought, too. Could be hyperglycaemia if the body cannot control blood sugar well. What happens if you eat a low carbohydrate, low glycaemic index meal?
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