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Russ H

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Russ H

  1. Could you share your test results? Values and reference ranges. Most people with coeliac disease can tolerate 10 mg of gluten a day without provoking an immune response. This is the generally accepted as safe level. Wheat flour is about 10% protein, so 10 mg gluten is about 100 mg of wheat flour. Bread has a specific gravity of about 0.25, giving a volume...
  2. It refers to data presented at https://ddw.org/ . Possibly a poster presentation although I can't find it anywhere. The author is interviewed in the link below and suspects that problems could be related to non-adherence to a strict gluten-free diet. https://www.hcplive.com/view/jansson-knodell-treating-pregnant-women-celiac-disease
  3. It is not unheard of. https://www.nature.com/articles/1001404
  4. Isolated positive DGP-IgG has very poor predictive value for coeliac disease in adults. It is useful in infants.
  5. I was ill for so long that I don't remember what normal is. I think I was ill for more than 40 years. I was diagnosed over 2 years ago. I was totally intolerant to dairy but this has now gone. I probably have a lingering dysbiosis and some foods such as beans cause a lot of bloating and burping. Your iron seems very low. Do you take vitamin C with it...
  6. I do the same thing. Mercifully, I don't go into anaphylaxis as some people do if exposed to allergens, but on the other hand don't know whether I have been exposed enough to provoke an immune response and all the sequelae that involves. Apart from a handful of local places that I know are safe, I don't eat out. I got badly glutened several times in Sweden...
  7. I doubt that very much. Robert F Kennedy jr. has no scientific or medical qualifications and promotes conspiracy theories and anti-vaccine propaganda. Childhood vaccines do not cause problems for most people - they are thoroughly tested and monitored and are very safe. It is not known what triggers coeliac disease. The allegation that glyphosphate causes...
  8. Exactly. Undigested proteins are excreted in the stool, they don't get into the meat or dairy products.
  9. I got myself a bread machine and found a good recipe based upon gluten-free oat flour amongst other ingredients. It uses psyllium husk to replace the gluten and the result is just like wheat bread. https://www.glutenfreealchemist.com/gluten-free-bread-machine-recipe-bread-maker/
  10. These forearm creases seem to be caused by WHB rather than coeliac disease and go into spontaneous remission after sufficient time. (WHB = women holding babies).
  11. The enzyme has been approved by the European Food Safety Agency as safe for regular human consumption: https://www.efsa.europa.eu/en/efsajournal/pub/4681 They tend to follow the precautionary principle, so if they regard it as safe it probably is.
  12. Would be interesting to see whether vaccination against Strep. pneumoniae affects incidence of coeliac disease. In the UK, it has been given to infants since 2006 so I suppose any affect would have shown up by now.
  13. Blood sugar is the first thing I thought, too. Could be hyperglycaemia if the body cannot control blood sugar well. What happens if you eat a low carbohydrate, low glycaemic index meal?
  14. Typical consumption of oxalate is approximately 1/5 g per day. The body doesn't store it. It is a tiny amount and not enough to be visible in the stool. In some people it can cause kidney stones. The coeliac diet is restrict enough without unnecessarily going on a low oxalic acid diet.
  15. Yes, get back on gluten and postpone the test if necessary.
  16. I think that it is very unlikely that you are passing visible calcium oxalate crystals in your stool. It is passed in urine. The vast majority of people do not have a problem handling oxalic acid. 'Oxalate dumping' does not exist.
  17. Thanks for the update. It is very helpful to others experiencing similar symptoms. No more gluten challenges and get on the mend!
  18. Hi Gilly, It is curious that you are passing oxalate crystals. Do you know for a fact that you are passing them? Oxalic acid is not particularly toxic in itself, it is just that it combines with calcium to produce calcium oxalate, which can cause kidney stones. Risk factors are not drinking enough water, consuming a lot of oxalic acid containing food...
  19. https://www.greatbritishchefs.com/recipes/pure-rye-bread-recipe
  20. Good point. It would be nice to have a strict study with weekly tests to see what actually happens.
  21. Rye is absolutely not safe for people with coeliac disease. It has about 1/3 of the gluten of wheat, which is still far too much.
  22. I don't doubt your symptoms or reaction to gluten. It would be nice to have blood work to narrow it down as there is a whole spectrum of gluten related disorders.
  23. The common blood tests for coeliac disease look for antibodies to an enzyme found in the body called tissue transglutaminase 2 (tTG2) and to a fragment of gluten protein called deamidated gliadin peptide (DGP). EMA is endomysial antibody, which is basically a crude test for tTG2 - like running a tTG2 test with a high threshold so is less sensitive but more...
  24. This case is coming down from a high level though. This plot is for IgA competent children, adults are slower. https://link.springer.com/article/10.1007/s10238-023-01040-1
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