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Russ H

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Russ H

  1. Russ H
    I did a quick search and found a couple of cases of transverse myelitis associated with coeliac disease, so it is not unheard of. I had a heart arrhythmia that has gone since I was diagnosed. I also used to get bad chilblains, which are also associated with autoimmune antibodies. How are you getting on?
  2. Russ H
    This suggests 1 in 7. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5155080/
  3. Russ H
    It would be nice to have some references for these claims. Sunburn in childhood is the greatest risk for skin cancer: https://www.nhs.uk/conditions/melanoma-skin-cancer/causes/ UV exposure is responsible for 80% of skin ageing: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3790843/ If you believe that vitamin D levels need to be raised...
  4. Russ H
    According to UK NICE guidelines for coeliac disease, IgA deficiency is defined as total IgA less than 0.07 g per litre. Yours are not low enough to affect the result by this guidance. What leads you to suspect that you may have coeliac disease?
  5. Russ H
    Isolated IgG DGP antibodies are not very specific for coeliac disease. In people under the age of 18, has a positive predictive value (PPV) of about 3% The small study below estimates a PPV of between 2.3% and 51.8% in adults (the large uncertainty is due to the small size of the study). https://celiacdiseasecenter.columbia.edu/wp-content/uploads/20...
  6. Russ H
    Yes, but it isn't clear when the tests and diet were performed and how strict the diet was. I only have brown rice in the cupboard.
  7. Russ H
    There are 3 overlapping conditions with a similar aetiology: coeliac disease, dermatitis herpetiformis and gluten induced neuropathy (aka gluten ataxia). You can have them together or individually. They all involve making antibodies to a class of enzymes in the body called tissue transglutaminase (tTG). Classical coeliac disease involves making antibodies...
  8. Russ H
    Hi yiannis and welcome to the forum. I haven't visited Belgium for many years. I can recommend the app "Find Me Gluten Free" - it is available for Android and iPhone. It is free but you can pay a subscription to unlock extra features. For an example of places available in Ghent, have a look at this link. I must say, Belgium looks excellent for gluten-free...
  9. Russ H
    Soaking rice overnight and cooking in 5x volume of water removes 82% of the arsenic. https://www.bbc.co.uk/programmes/articles/2F1MDzyW55pg97Tdpp7gqLN/should-i-be-concerned-about-arsenic-in-my-rice
  10. Russ H
    Rice is the biggest source of arsenic in the human diet. There are some steps to mitigate the risk from arsenic in rice: choose Indian basmati rice rather than US grown rice (some of the US rice growing areas are heavily contaminated with arsenic from cotton growing days). Soak the rice over night, rinse and then cook 6x rice volume of water. However, this...
  11. Russ H
    So more likely to become hospitalised but no more likely to require or ICU. In the UK, people with coeliac are not considered an at-risk group. Earlier in the pandemic, they were considered immunocompromised due to the possibility of hyposplenia, but this is no longer the case.
  12. Russ H
    It is the best gluten-free bread I have had in the UK. Maybe not as good as what you would get from a small bakery but better than cheap supermarket bread. That recipe you referenced looks good. Also rice flour free. I am trying to moderate the amount of rice I eat due to arsenic.
  13. Russ H
    That looks good, too. If you are a perfectionist, Heston Blumenthal's recipe is below. You can probably get the preparation time down to a few days if you work at it. https://www.youtube.com/watch?v=Zr3Rrzrv8vU
  14. Russ H
    But only ingredients that won't harm the consumer. Allergens must be marked. I am unaware of the UK doing anything similar.
  15. Russ H
    The amount to eat and for how long: https://www.youtube.com/watch?v=byTYmgHUDEo
  16. Russ H
    The Mayo clinic says 2 slices of bread a day for 6-8 weeks prior to blood test and just 2 weeks prior to endoscopy. It is probably enough. I have seen testing centres recommending from 4 weeks all the way up to 12 weeks prior to blood testing.
  17. Russ H
    That would be illegal. https://www.food.gov.uk/business-guidance/packaging-and-labelling
  18. Russ H
    It is quite possible to have coeliac disease with negative or equivocal blood results. Make sure you keep eating gluten up to the endoscopy. In the UK, NICE recommends eating at least one gluten containing meal a day for 6 weeks prior to the endoscopy although they don't recommend how much gluten.
  19. Russ H
    Do you have other symptoms?
  20. Russ H
    That paper does not measure isolated IgG DGP. Most of the positives for IgG DGP were also positive for IgA tTG, which you were not. Recent studies suggest that an isolated IgG DGP positive has poor predictive value (much less than 84%). Your test results neither confirm nor exclude coeliac disease. Here are some studies on isolated IgG DGP. Most...
  21. Russ H
    A bread roll with soft crust, the type used for making hamburgers etc. Called a bun in the US?
  22. Russ H
    That is a shame. In the UK, McDonalds fries are gluten-free.
  23. Russ H
    An isolated IgG DGP has poor predictive power for coeliac disease. Below is a study that suggests somewhere around 82% of isolated IgG DGP positive tests are false positives. Due to the small study size though, there is a wide uncertainty in that figure, and up to 97.7% could be false positives. https://pubmed.ncbi.nlm.nih.gov/28161854/
  24. Russ H
    OK, so basically the blood tests for coeliac disease look for antibodies to deamidated gliadin (which derives from gluten) and tissue transglutaminase (an enzyme that binds to gliadin in the gut). Two classes of antibodies are tested for (IgA and IgG), so this means 4 tests. Your tests show an isolated raised IgG deamidated gliadin antibody. Because of...
  25. Russ H
    Hello and welcome to the forum. Do you have the reference ranges for those results? As they vary between labs, they are needed to interpret the results.
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