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Russ H

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Russ H

  1. Russ H
    I think that you should concentrate on getting used to a strict gluten free diet and dealing with any nutritional deficiencies that you have (e.g. iron). That is difficult enough without disappearing down the rabbit hole of unproven pseudo-scientific diets.
  2. Russ H
    This is false.
  3. Russ H
    This won't help you. Coeliac disease is a serious condition, and you need to concentrate on reliable sources of information to help your recovery. This forum is full of knowledgeable people who can point you in the right direction.
  4. Russ H
    Gluten is quite different to lectins, most of which are inactivated by cooking. Avoiding lectins would be very restrictive - avoiding gluten is difficult enough. Coeliac disease is a specific immune response to gluten. You can read about Steven Gundry and his pseudoscience here: https://sciencebasedmedicine.org/the-plant-paradox-steven-gundrys-war...
  5. Russ H
    tTG2-IgA 10x or greater the standard upper limit is pretty sure to be coeliac disease. More moderate levels outside the standard range (as yours is) can be caused by coeliac disease but also other conditions such as Crohn's disease and rheumatoid arthritis. The EMA test is an old test that is relatively insensitive and course in its results due to the way...
  6. Russ H
    Hello Mary Jean and welcome to the forum. I'm sorry you are struggling with the condition. It gets a lot easier as you learn what to eat and adapt your habits. As your gut heals you will also begin to feel much better. It can take up to 2 years to completely heal but most people improve much more quickly than this. I had terrible gas and it took 3 months...
  7. Russ H
    One of the symptoms I experienced was bloating, burping and reflux. That suddenly resolved after 3 months on a gluten free diet. Other symptoms gradually resolved over a year or so.
  8. Russ H
    That looks like a strong positive for anti-DGP antibodies. It is also possible to have antibodies against related enzymes tTG3 and tTG6 rather than the tTG2 that you were tested for. tTG3 is implicated in DH, and tTG6 in gluten induced neuropathy (GIN). Few centres test for these specific antibodies at the moment. It is also possible to have DH or GIN without...
  9. Russ H
    Do you have the levels measured and standard ranges for those tests? I.e. are they borderline raised or very high? In young children, anti-DGP antibodies come up before anti-tTG but don't know if this is true in adults.
  10. Russ H
    High levels of antibodies to tTG2 (10x standard range or greater) are very likely to indicate coeliac disease. More modest levels as shown in your positive result can be caused by coeliac disease but also other conditions such as inflammatory bowel disease or arthritis.
  11. Russ H
    Hello TTG is an abbreviation for tissue transglutaminase. You show 2 test results for this, 1 negative and 1 positive. Was one for IgA and the other for IgG?
  12. Russ H
    Symptoms vary greatly in range and severity between individuals. It is quite possible to have neuropathy with minor or no damage to the gut. Only about 25% of people with gluten neuropathy exhibit gut damage. Your symptoms sound very much like gluten induced peripheral neuropathy. (This is not a diagnosis). https://www.ncbi.nlm.nih.gov/pmc/articles...
  13. Russ H
    UBOs or white matter lesions are common in the general population - about 1 in 4 young adults and most elderly adults have them.
  14. Russ H
    Regarding IgA tTG2 serum antibodies: a level of 10x upper standard range or greater is pretty unequivocal for coeliac disease. However other conditions can cause moderately raised levels, particularly inflammatory conditions of the bowel, liver and joints, e.g. Crohn's disease, rheumatoid arthritis.
  15. Russ H
    It is possible to have an immune response to tTG6 alone without having antibodies to tTG2, so testing negative for coeliac disease while having gluten ataxia. Gluten ataxia is considered to be a result of the immune response on the brain rather than a nutritional deficiency. It is vital to adhere to a strict gluten-free diet. I would take a good multivitamin...
  16. Russ H
    Not at all. Two thirds of people diagnosed in adulthood experience neurological manifestations. This is important from a medical diagnostic perspective and adds weight to the importance of adhering to a gluten-free diet.
  17. Russ H
    I had a similar experience to yours where I was ill with non-specific symptoms since childhood but became much worse following a very stressful period. It is an insidious disease and sufferers become so habituated to the malaise that it comes as a shock as to just how ill they were on recovery. It takes time: your gut needs to heal and your antibody levels...
  18. Russ H
    It can take 2 years for the gut to completely heal although most people recover faster than this. I recovered gradually for the first 3 months and then experienced a sudden improvement in my gastrointestinal symptoms. It took a good year for me to fully recover. It is common for people with coeliac disease to react to milk. This can be caused by gut...
  19. Russ H
    Why is this nonsense? The study confirms that most people, whether or not they have coeliac disease, experience mild to moderate symptoms as you did. Vaccination provides modest protection against infection but large protection against severe disease and death. Of note from the study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9933522/
  20. Russ H
    Thank you for the interesting review article. Sheffield Teaching Hospital in the UK has been doing excellent research into gluten induced neuropathy. For example, in the prospective cohort study linked below, 67% of newly diagnosed celiac disease patients (mean age 43) had symptoms and/or signs of neurologic dysfunction. 42% suffered frequent headaches, ...
  21. Russ H
    Do you mean getting cross contamination from handling them? If so, then I wouldn't worry - the amount of gluten transferred would be minuscule. The general medical consensus is that most people with coeliac disease can tolerate up to 10 mg of gluten per day without reacting. The is equivalent to a piece of bread the size of a small pea. You won't ingest more...
  22. Russ H
    Coeliac disease clearly has a strong genetic predisposition as an identical twin has a 75% chance of developing the condition if their twin has it. Some of the genes are known but I suspect that the predisposition stems from the interaction of many genes in a similar way to those affecting height: thus, when you are over a certain threshold and exposed to...
  23. Russ H
    Some people are certainly more sensitive to gluten than others. The weakness of that study is selection bias. 8% of the subjects stated that they occasionally consumed gluten, and these are likely to be those less sensitive to gluten. This does not mean that all people with coeliac can occasionally consume gluten without ill effect. As the authors state,...
  24. Russ H
    There is an association between coeliac disease and inflammatory arthritis. It is also quite common to have insertional tendinopathy on diagnosis (even if asymptomatic). The patella and Achilles' tendons are commonly affected. I was plagued with insertional Achilles' tendonitis for 2 decades before diagnosis, and this gradually resolved on a strict gluten...
  25. Russ H
    Your daughter seems to meets the criteria for being tested for coeliac disease. A link to the NICE guidelines is below. From your description, she has: enamel defects borderline anaemia persistent unexplained abdominal or gastrointestinal symptoms https://www.nice.org.uk/guidance/ng20/chapter/Recommendations#recognition-of-coeliac...
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