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Russ H

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Russ H

  1. Russ H
    An isolated IgG DGP has poor predictive power for coeliac disease. Below is a study that suggests somewhere around 82% of isolated IgG DGP positive tests are false positives. Due to the small study size though, there is a wide uncertainty in that figure, and up to 97.7% could be false positives. https://pubmed.ncbi.nlm.nih.gov/28161854/
  2. Russ H
    OK, so basically the blood tests for coeliac disease look for antibodies to deamidated gliadin (which derives from gluten) and tissue transglutaminase (an enzyme that binds to gliadin in the gut). Two classes of antibodies are tested for (IgA and IgG), so this means 4 tests. Your tests show an isolated raised IgG deamidated gliadin antibody. Because of...
  3. Russ H
    Hello and welcome to the forum. Do you have the reference ranges for those results? As they vary between labs, they are needed to interpret the results.
  4. Russ H
    It is difficult at first but I have found that with experience I can negotiate the aisles quite well. There are a few gotchas like brown sauce, Worcester sauce and marmite that you have to watch out for.
  5. Russ H
    It is likely the app. I don't use it as it is clunky and expensive for what it is. Whether or not an app said something was safe I always read the ingredients, which defeats the purpose. Food labelling in the UK is excellent, and clearly marks allergens. For finding places to eat, the 'Find Me Gluten Free' app is good.
  6. Russ H
    In Nature journal from earlier this year. In the unvaccinated, a COVID infection almost doubles the risk of developing coeliac disease. Further, in persons with a pre-existing autoimmune disease, COVID infection increases the risk of developing another autoimmune disease by 23%. The risk for vaccinated individuals was not investigated. Risk of autoimmune...
  7. Russ H
    I have tried this recipe several times, and it is delicious - makes crispy batter. You have to be good to do it in 10 minutes though. I use self-raising gluten-free flour made by freee (contains rice flour, potato, tapioca, maize and buckwheat) and gluten-free beer for the batter. I also buy the tartar sauce ready made. https://www.youtube.com/watch...
  8. Russ H
    The gluten-free bread available in the UK is expensive and not very pleasant. I invested in a bread machine and tried the recipe linked below. It is a complicated recipe and I am going to try to simplify the ingredients. However, it works very well indeed and the resulting loaf smells and tastes like normal bread. This one is based on oat flour but there...
  9. Russ H
    Do you know what your blood test results were?
  10. Russ H
    A good multivitamin and mineral tablet everyday for the first year. That said, the evidence points to gluten induced neuropathy being caused by a direct immunological attack rather than vitamin deficiency. Stick with a strict gluten-free diet. As your antibody levels fall, your symptoms should improve.
  11. Russ H
    I think that you should concentrate on getting used to a strict gluten free diet and dealing with any nutritional deficiencies that you have (e.g. iron). That is difficult enough without disappearing down the rabbit hole of unproven pseudo-scientific diets.
  12. Russ H
    This is false.
  13. Russ H
    This won't help you. Coeliac disease is a serious condition, and you need to concentrate on reliable sources of information to help your recovery. This forum is full of knowledgeable people who can point you in the right direction.
  14. Russ H
    Gluten is quite different to lectins, most of which are inactivated by cooking. Avoiding lectins would be very restrictive - avoiding gluten is difficult enough. Coeliac disease is a specific immune response to gluten. You can read about Steven Gundry and his pseudoscience here: https://sciencebasedmedicine.org/the-plant-paradox-steven-gundrys-war...
  15. Russ H
    tTG2-IgA 10x or greater the standard upper limit is pretty sure to be coeliac disease. More moderate levels outside the standard range (as yours is) can be caused by coeliac disease but also other conditions such as Crohn's disease and rheumatoid arthritis. The EMA test is an old test that is relatively insensitive and course in its results due to the way...
  16. Russ H
    Hello Mary Jean and welcome to the forum. I'm sorry you are struggling with the condition. It gets a lot easier as you learn what to eat and adapt your habits. As your gut heals you will also begin to feel much better. It can take up to 2 years to completely heal but most people improve much more quickly than this. I had terrible gas and it took 3 months...
  17. Russ H
    One of the symptoms I experienced was bloating, burping and reflux. That suddenly resolved after 3 months on a gluten free diet. Other symptoms gradually resolved over a year or so.
  18. Russ H
    That looks like a strong positive for anti-DGP antibodies. It is also possible to have antibodies against related enzymes tTG3 and tTG6 rather than the tTG2 that you were tested for. tTG3 is implicated in DH, and tTG6 in gluten induced neuropathy (GIN). Few centres test for these specific antibodies at the moment. It is also possible to have DH or GIN without...
  19. Russ H
    Do you have the levels measured and standard ranges for those tests? I.e. are they borderline raised or very high? In young children, anti-DGP antibodies come up before anti-tTG but don't know if this is true in adults.
  20. Russ H
    High levels of antibodies to tTG2 (10x standard range or greater) are very likely to indicate coeliac disease. More modest levels as shown in your positive result can be caused by coeliac disease but also other conditions such as inflammatory bowel disease or arthritis.
  21. Russ H
    Hello TTG is an abbreviation for tissue transglutaminase. You show 2 test results for this, 1 negative and 1 positive. Was one for IgA and the other for IgG?
  22. Russ H
    Symptoms vary greatly in range and severity between individuals. It is quite possible to have neuropathy with minor or no damage to the gut. Only about 25% of people with gluten neuropathy exhibit gut damage. Your symptoms sound very much like gluten induced peripheral neuropathy. (This is not a diagnosis). https://www.ncbi.nlm.nih.gov/pmc/articles...
  23. Russ H
    UBOs or white matter lesions are common in the general population - about 1 in 4 young adults and most elderly adults have them.
  24. Russ H
    Regarding IgA tTG2 serum antibodies: a level of 10x upper standard range or greater is pretty unequivocal for coeliac disease. However other conditions can cause moderately raised levels, particularly inflammatory conditions of the bowel, liver and joints, e.g. Crohn's disease, rheumatoid arthritis.
  25. Russ H
    It is possible to have an immune response to tTG6 alone without having antibodies to tTG2, so testing negative for coeliac disease while having gluten ataxia. Gluten ataxia is considered to be a result of the immune response on the brain rather than a nutritional deficiency. It is vital to adhere to a strict gluten-free diet. I would take a good multivitamin...
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