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patty-maguire

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by patty-maguire

  1. patty-maguire
    I have celiac disease and suffered with dermatitis herpetiformis for years. The itchy rash is one of the first symptoms if I accidentally consume gluten. I'm a big fan of Dr. Alessio Fasano, he is the Director the the Celiac Disease Research and Treatment Center at Massachusetts General Hospital and wrote a great book called Gluten Freedom. His recommendation...
  2. patty-maguire
    It may take a little time for the rash to go away but it's hard to really say how long. Until then all you can do is try not to scratch and treat the symptoms. A corticosteroid cream can help. See your doctor for a prescription. Also something to help with itching like Lanacane. If it's really driving you nuts, ice can help to cool the burning itch.
  3. patty-maguire
    We all do it. We are told we have to eat gluten free and we go to the store and buy everything on the self with a gluten free label, come home, try it and conclude that life sucks. The best approach to the gluten free diet is to focus mostly on naturally gluten free whole foods. Fruits, vegetable, whole fresh cuts of meat, eggs, dairy if tolerated. Special...
  4. patty-maguire
    This whole thing is hard to navigate at first, but you'll get it. It does get easier, I promise. Most people with celiac can handle up to 20ppm of gluten or about 10mg per day. For food to be labelled gluten-free it needs to test below 20ppm. I would guess the gluten you got from a stain on a plate would be much less than this. If you didn't get...
  5. patty-maguire
    Yes, you need to be consuming gluten to get accurate test results. As for what to do, it's really a personal choice and you need to weigh the pros and cons. Some of the pros of receiving a formal diagnosis are: 1. Follow up care. If you have celiac disease you should be monitored for things like nutrient deficiencies, bone density and have...
  6. patty-maguire
    Wow! Sounds like an amazing trip! Enjoy! I've travelled in Italy, France and UK. Italy is amazing for gluten-free. France and UK are very good too. Others mentioned printing off dining cards. Definitely do that. On overseas flights you can usually order a gluten-free meal. Check the airline's website. I always bring food on the plane...
  7. patty-maguire
    Autoimmune diseases tend to travel together as you may already know. The fact that you and your sister already have autoimmune conditions may increase the likelihood that you have celiac. There is documented correlation between celiac and Hashimoto's. Anecdotally I've heard quite a few people with celiac say they also have rheumatoid arthritis though I...
  8. patty-maguire
    Hi Whaleroad. Welcome to the community! Trents answered your question about having eaten enough gluten, however, I wanted to address your comment about not believing you have celiac disease. I was there too! So many people have trouble getting their gp to test them for celiac. I was the opposite. After years of mysterious symptoms I was sent...
  9. patty-maguire
    There is no gluten in cigarette smoke, but second hand smoke can certainly make you feel awful. If you feel like you've been glutened, it may have been something you ate or drank. Not all alcoholic beverages are gluten free, so that's something we need to be careful of. Regarding second hand smoke getting on, or in your stuff, anything in a sealed...
  10. patty-maguire
    Some products are higher risk for cross contamination than others. For example: oats, lentils, flax, hemp should always carry a gluten free label because they often come in contact with wheat. Pharmaceuticals need to be manufactured in a very controlled and clean environment, so the risk is very low. If the item doesn't have gluten in the ingredients...
  11. patty-maguire
    Hi and welcome! Gluten is not absorbed through the skin. In order to have a gluten reaction, the gluten must be ingested. You may have read that you need to choose gluten-free skin products because they can get into your mouth and be ingested. Even the small amount you might get from lip gloss or toothpaste is not enough to cause a reaction....
  12. patty-maguire
    I take Ibuprofen (Advil) or Naproxen (Aleve) mostly. If you're looking to avoid NSAIDs then Tylenol (acetaminophen) is a good choice. If you react to these I'd be very surprised if its a gluten reaction. There are no gluten ingredients and sanitation protocols in pharmaceutical manufacturing have to be very stringent. Here is a listing of gluten free...
  13. patty-maguire
    Wow, I'm so sorry you experienced this. Yes the dinner conversations get tiresome and awkward. Especially the "so what happens if you eat gluten" question. Really? Over dinner? I usually just say "it's not dinner conversation", laugh and change the subject.
  14. patty-maguire
    There is a lot of misinformation on the internet and it seems this business of cross-reactivity is one of those things. This article from Gluten Free Watchdog may help to clear this up. "Bottom line: At this time there is no scientific basis for eliminating non gluten-containing foods from the gluten-free diet due to supposed cross-reactivity with gliadin...
  15. patty-maguire
    I spend a lot of time in gluten free forums and such, and have never heard anyone report that their crowns were causing problems. I know there is some stuff on the internet about the MMA resin but I would say the risk is extremely low. Remember 20ppm or 10mg per day of gluten is considered safe for celiac so unless you are extremely sensitive I doubt your...
  16. patty-maguire
    I'm gluten and dairy free. I eat SILK coconut yogurt almost every day with berries and gluten free granola.
  17. patty-maguire
    I'm so sorry you're going through this. You're in the right place though. We all understand and we've all been there. When I get hit really bad, I often go for a total reset. Clear fluid diet for 24 - 48 hours then when returning to food I go with the BRAT (bananas, rice, applesauce, toast) diet for a day. If you decide to go with clear fluids...
  18. patty-maguire
    Their website says their beer is made from wheat and barley and is not gluten free. https://www.samueladams.com/faq#:~:text=Is Samuel Adams gluten free,beer we want to drink. It's important to understand the difference between naturally gluten free beer and gluten removed or gluten reduced beers. Naturally gluten free beer is made with non...
  19. patty-maguire
    TBH I think this is pretty low risk and not something I would personally worry about. That said, here is a good article by Celiac Canada. They tested a bunch of products and found everything well below 5ppm. They've also included some recommendations for patients and dentists. https://www.celiac.ca/oral-health/ This one by Beyond Celiac lists...
  20. patty-maguire
    Other posters have giving good advice for recognizing gluten in your food. To address your ongoing bathroom issues, I have 2 suggestions: 1. At least for a while, avoid gluten free processed foods. They often contain ingredients like emulsifiers and starches that can be hard to digest. If you focus your diet on naturally gluten free whole foods, you...
  21. patty-maguire
    "Should I be losing weight?" The "should" part is up to you. If you were overweight and happy to see some pounds taking leave, then take the win. The weight loss is not from removing gluten per se, but likely from removing the carbs and calories that come along with gluten containing foods like bread, pasta etc. If you're not happy about the weight...
  22. patty-maguire
    Sorry for the tardy reply, I missed your comment. Yes I'm in Ontario. When I was diagnosed in 2012 it wasn't good. My dr didn't want to believe I had celiac even after my tests came back positive. I've since moved to a different town and have a new doc. I printed the follow up care guide from Celiac Canada and took it into my new doc and he's been...
  23. patty-maguire
    Best to get vitamin levels tested rather than just supplement with no info to go on. Also, getting tested will give you a baseline so you can check later to see if things are improving. Common deficiencies that go along with celiac are: iron, calcium, magnesium, folate, Vitamin D and B vitamins. Getting good food sources of these things is the best place...
  24. patty-maguire
    Hi Azazello: It can all be very overwhelming at first, but I think the best cure is time. You'll get the hang of your new diet and start to realize that there is more that you can eat than what you can't. Once you feel more in control you may find the anxiety subsides. Also understand that anxiety may be a symptom of celiac disease. Our gut and...
  25. patty-maguire
    Between the symptoms and family history it sounds like celiac but there is no way to be sure without testing. There are pros and cons. The pros are: You're more likely to stick to the diet and avoid the long term and serious consequences. You'll get follow up care You'll have more luck being taken seriously by friends and family...
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