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Liquid lunch

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Liquid lunch

  1. Liquid lunch
    You might find cordyceps and reishi tincture helps, even if you identify which lectins you react to with an igg test there is still cross contamination and secondary contamination via cows and chickens that have eaten soy, I found mushroom tinctures to be the last piece of the puzzle, they stop you producing the antibodies.
  2. Liquid lunch
    I wonder if refractory celiac is just people reacting to other lectins they’ve not yet identified. If I was rich I’d spend all the money on igg tests and give them out freely to people when they sign up to this site, I’d never heard anything about other lectins until kitty pointed them out, probably lots of people in the same boat as me. My theor...
  3. Liquid lunch
    Thanks kitty, I needed reminding about thiamine. I ran out of magnesium so stopped taking it and that was ages ago, it definitely helps with my energy levels and general function. I just took some now and I’ll get some more magnesium. Although I don’t really understand the gundry list it does seem to correlate with foods I can/cannot eat, lectins are...
  4. Liquid lunch
    @knitty kitty maybe I’m a little out of touch with fashion having been pretty much bed ridden for so long but this seems ridiculous to me.. ‘As a result of their potential for toxicity and their “anti-nutritional effects” it is almost inevitable that lectin exclusion could well become a big food fad‘ I just can’t imagine anyone avoiding lectins if ...
  5. Liquid lunch
    Thanks, sorry for all the questions but in the above link.. ’Remember, nearly all tests and screening for celiac disease require the patient to be eating a gluten-containing diet before testing’ I guess this also applies to other lectins so you would need to be eating them in order to find out via igg/ige testing which ones you’re reacting to? I...
  6. Liquid lunch
    Hi Trents, there’s a test centre here that tests for igg and ige antibodies, would neither of these pick up celiac disease? I haven’t had the test because I didn’t know about it until I’d already been along the elimination diet route and it’s pretty obvious if I eat the wrong thing because I swell up like a balloon and my guts bleed. Possibly another a...
  7. Liquid lunch
    @LookingForAnswers101Ooh I can also eat coconut, and probably because the ingredients are so highly processed I can eat gluten free bread even though it contains ingredients I can’t usually tolerate. I’m currently trying high lectin foods that've been through a pressure cooker but not much luck so far, pressure cooked mashed potatoes are fine but nee...
  8. Liquid lunch
    I don’t think it matters much, there’s another type of cordyceps but I’m not sure if there’s a lot of difference, the one I’m using is cordyceps sinensis from maesyffin in wales, sinensis is the one with a long history of medicinal use in china. I think the alcohol (vodka) in the tincture helps with uptake vs taking capsules. And yes, changing my diet h...
  9. Liquid lunch
    I had these for years, covered in scars from them. Not had any since I started taking reishi and cordyceps tincture, they’re immune modulators, I think that’s how they work. Most of my other symptoms have also disappeared, I take a treble dose if I get glutened and it’s almost an instant fix, 3 days of mild symptoms instead of 3 weeks of horrible. ...
  10. Liquid lunch
    I don’t think it matters much if you trust the supplier, I get them from a Welsh company maesyffin mushrooms but I think the guy there has retired from growing now and just resells eu imports so it’s probably the same mushrooms he uses to make the tinctures as the company you posted. It’d probably be cheaper to buy dried and make your own tincture.
  11. Liquid lunch
    I can’t say this will work for everyone but for me the difference is incredible so might be worth trying. I’ve never been diagnosed celiac but via an elimination diet I realised I can’t eat any lectins, gluten soy and oats are particularly problematic. If I eat them I’m in bed for a week, then heavy bleeding and extreme pain for another, followed by a th...
  12. Liquid lunch
    Ah thanks, it did seem odd people buying stuff as a heath supplement that is so damaging. Not sure I’d risk eating anything extracted from soy or sunflower anyway but it explains the mystery.
  13. Liquid lunch
    Wow I didn’t know Lactobacillus made lectins, these things are everywhere! I know they must have some heath benefits because I see things like soy and sunflower lectins for sale in health food shops, often wondered why people buy them. It’s pretty extreme to cut them out but they are the only common factor in the massive list of foods that make my gut...
  14. Liquid lunch
    I used to like pickled cucumbers but sadly they’re high lectin. There is a correlation between microbiome dysbiosis and auto immune disease, that’s for sure. I tried grass fed a2 raw milk but still had issues. Lactose free milk was worse so it’s not the lactose.
  15. Liquid lunch
    Yup, and I don’t eat meat. It’s easier than it sounds and there are ways to reduce lectins, soaking, fermenting, pressure cooking. I’ve found I can eat pressure cooked mash potatoes but rice I have to cook it to a mush to make it safe and can’t tolerate fermented soya. Dr gundry also talks a bit about Neu5Gc in meat and dairy which displaces Neu5Ac ...
  16. Liquid lunch
    I’ve had a bit of a breakthrough re other intolerances, largely thanks to knittykitty pointing out that pumpkin seeds contain lectins, I didn’t even know gluten was a lectin! So is avenin in oats, they’re in most foods, chilli is high in lectins. I’ve cut out all lectins and the difference is incredible, I thought everything must be cross contaminated with gl...
  17. Liquid lunch
    @B1rdL0ver I do the same with things of interest, my brain isn’t great these days. Hope you feel better soon, if you’re worried about essential oils being oily then don’t, they are technically oils but very thin and will help dry your skin.
  18. Liquid lunch
    @B1rdL0ver easiest way would be to buy blanched almonds that will already have had the skins removed or you could blanch your own, just dip them in boiling water for about 10 seconds, then run under a old tap to cool and remove the skins. When blanched and peeled just soak them in water overnight in the fridge and then put them in the blender, much cheaper...
  19. Liquid lunch
    @B1rdL0ver easiest way would be to buy blanched almonds that will already have had the skins removed or you could blanch your own, just dip them in boiling water for about 10 seconds, then run under a old tap to cool and remove the skins. When blanched and peeled just soak them in water overnight in the fridge and then put them in the blender, much cheaper...
  20. Liquid lunch
    @B1rdL0ver almonds are high in lectins but it’s in the skin so you could boil and peel some to make your own low lectin milk. I thought I’d been glutening myself with all sorts of things, assumed it was cross contamination with wheat but it turned out to be lectins. There’s various ways to reduce them, peeling, deseeding, high temperatures (pressure cooki...
  21. Liquid lunch
    Hi @B1rdL0ver, I’ve been on a steep learning curve with my issues and found a few things that might help with yours. Skin problems - I use neat cardamom essential oil, clove also works or a blend of the two which smells good. The relief is pretty much immediate, some people advise caution using neat essential oil on skin but I’ve never had a problem wit...
  22. Liquid lunch
    @knitty kitty you might find this interesting.. https://www.sciencedirect.com/science/article/abs/pii/0963996994900965 ‘lectins in tempe and other fermented foods made from beans, can be reduced up to 95%’
  23. Liquid lunch
    @knitty kittyOoh that makes sense. I’m going to need to wait a while before any more experimenting though, collapsed in a heap with ballon belly. Cucumbers are now getting peeled and de seeded so hopefully that’ll help and Tempeh is next on the list of things to test which might be a good alternative. I’m a bit frightened to try pumpkin seeds again...
  24. Liquid lunch
    Further update- feeling rubbish again today so more testing required, it does seem to help/reduce symptoms but I’ll need to wait until I’m feeling better and try again to know if this is completely effective.
  25. Liquid lunch
    @knitty kitty update.. it works I soaked them overnight with glucosamine and although I’m still recovering from the last batch I don’t feel glutened. I’ll wait until I’m healed a bit more before trying again but pretty sure I’m just getting the tail end symptoms of the previous attempt, doesn’t seem to have worsened by eating the glucosamine soaked seed...
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