Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

LaLeoLoca

Advanced Members
 View Profile  See their activity

  • Posts

    21

  • Joined

  • Last visited

  • Days Won

    1

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by LaLeoLoca

  1. LaLeoLoca
    You might consider checking for other food intolerances. I learned I have a sulfur intolerance, plus histamine intolerance. Many people with celiac have several food issues. A big cue for sulfur is if you get sick after eating eggs. You may also look into heavy metals and mycotoxin testing (hair, urine). After years of research I believe they could be...
  2. LaLeoLoca
    A nutritionist I respect said that until the main food sensitivities are found, the body can keep developing new ones. This is the balancing act In facing now, with severe health issues and few things I can keep down. I hope that as the months or years go by, maybe my body will be less sensitive. For today, I feel how frustrating it is. I hope you find things...
  3. LaLeoLoca
    Hello friend! I am just about to hit six weeks gluten free. I am improving at a glacial pace and it feels scary and frustrating. I often poo yellow goo or greasy stuff and believe this is sometimes fat. I’ve replaced pots and pans, dog food, even toothpaste and dental floss. Total overhaul. I’ll share this link that I found this week because it hel...
  4. LaLeoLoca
    I am not complaining. Truly. I am not. I was limited my whole life by illness, then almost died, now am deeply disabled and trying to recover. Home bound for three years now. Isolated. Limited, on oxygen, falling daily. Broken, sure, but mending week to week. I am determined to recover but can’t control when. Trouble with being bedridden is, you h...
  5. LaLeoLoca
    I am using them for mycotoxin binding, they are the more gentle binders. You may like looking into “tox-ease gl” by Beyond Balance® which is great stuff and full of helpful herbs etc that go well with fulvic and help it do its best work. I say, go for it!
  6. LaLeoLoca
    Well, lots of anti juicers as it turns out! But honestly it has been great for me. It’s mostly vegetables and it’s helping me get nutrients in a way my body can handle. It’s not my long term plan, but for however long I need it, it has been very positive. I’m a lot sicker than people can see, and MECFS and POTS are parts of that. I just can’t diges...
  7. LaLeoLoca
    I’m feeling a little attacked, though that is probably not the intention. I will talk to my doctor but so far the juice is helping. My supplements are all approved by her and she is good at what she does. We are all different and I only wanted to talk about juicing, but that is not where the thread is going. Thanks!
  8. LaLeoLoca
    Thanks! For the record, I would be juicing mostly vegetables, so there would not be a lot of sugar. I did very poorly with meats and cooked veg. I also have mycotoxin poisoning which can take years or longer to heal. I’m looking to mostly triage at this point.
  9. LaLeoLoca
    Hi all! I am at four weeks gluten free tomorrow, still a very long way to go but every few days I see a little progress. And that’s a lot! I tried having some vitamixed carrots (liquid) last night, hoping it would be pre digested enough that I could handle the fresh veg. I was up late (3am) with tummy discomfort. Leaky gut is definitely a Big problem. ...
  10. LaLeoLoca
    I get cold (and hot) very very easily. You can also get cold if you don’t have a lot of fat on you. Mine is caused by dysautonomia, a co occurring celiac issue. It is already getting a little easier sometimes with better supplements, per the angels on this stellar forum. Bloodwork may be normal because it could be detecting what you ate, not accurately m...
  11. LaLeoLoca
    If it helos, I only put the pieces together, on my own, just under four weeks ago. I am still very sick, but doing a little better every few days. I refuse to gluten myself to get tested. Many others do as well. I have had it my whole life, but covid kicked it into high gear three years ago and I almost died. So I will not touch gluten on purpose. Some...
  12. LaLeoLoca
    Choline was upvoted by my physician, and higher dose thiamine has also been ordered! Thank You to everyone for being such phenomenal, helpful mentors. I really can’t say how much this helps me. I was even able to walk around the house a little bit today, and take a bath too! Y’all have been so lovely. Thank you. PS my partner is going to the store tom...
  13. LaLeoLoca
    @Wheatwacked I’ve never even heard of choline… Meeting with my doc today and will ask her! She’s a 10 mg of choline are in my multi but I alleviate what you said about how we are not “normal” people, especially in early recovery. Had some more kefir with breakfast and the food didn’t stab inside! Major progress!! I added turmeric and black peppe...
  14. LaLeoLoca
    @knitty kitty My multi is pure encapsulations “o.n.e. Vitamin” which has 3mg (250%) thiamine, as HCI B1. My thiamine bloodwork in October was not low (B6 was low and I take a different supplement just for that, 5880%). Is the thiamine in this multi enough, do you think? Hope it’s okay to ask. I literally have 38 bottles of supplements and meds bucket so it...
  15. LaLeoLoca
    I’m really interested in this, as high dose CBD is the only thing that has ever muted daily severe seizures… And yesterday, after one serving of dairy kefir, I slept seven whole hours! I am constantly awakened by painful gas, bloating, diarrhea, and urinary incontinence, and believe the kefir must have helped. I also had some chicken pate yesterday that tas...
  16. LaLeoLoca
    Hi all! Thanks very much for the thoughtful advice and encouragement. I am today at exactly three weeks off gluten. Pots and pans are gone, dog food now gluten free, even got rid of the rug the dog rolls on. It's a clean sweep. I am far from well, but feeling "a little better" now and then. I had two entire days without a migraine, for the first time...
  17. LaLeoLoca
    I could never lose weight no matter what! Three years ago I got supremely sick (I believe covid activated severe celiac) and put on 20-25 lbs overnight, despite not eating. It was totally bizarre, and very flurpy / blubbery / jiggly. I felt like I was wearing a water mattress all over. 16 days ago, put together the potential celiac pieces, and I have...
  18. LaLeoLoca
    @Christiana, thank you! I appreciate the kind comments, and explanation of why people might ask. I'm entrenched in the US, and really resenting the lackadaisical labeling and what companies can get away with. I don't have kids, and wonder if another country would ever embrace me after I get well enough? Ireland seems pretty great for celiacs, too. I...
  19. LaLeoLoca
    Thanks for the thoughtful replies, all! I'm still a bit of a mess but will try to respond to questions. 1. I'm taking a million supplements, it's a bit much for me but I do it. With three years of profound health crisis, I'm a supplement queen. Will begin L-glutamine today, but off the top of my head I take a quality multi that has thiamine and...
  20. LaLeoLoca
    It could also be the pots and pans you are using for prep, if you have not changed them out. There is a lot of info if you google it. I bit the bullet and am starting over, slowly. Nonstick esp can absorb gluten, so you may have glutened yourself by accident with the brownie pan. Sensitivity can also go up over time, so what didn’t bug you a few months a...
  21. LaLeoLoca
    Hello all! Newcomer here. I slogged through hell barefoot to come to this place of understanding, and am still trying to absorb information, adjust, and heal. My question is about that: Healing. I'm 38 and was struck down by covid three years ago, suddenly. I'd always been exhausted, and suffered bad bouts of viral infection, plus an array of other basically...
×
×
  • Create New...