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Marianne82

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  1. icon Marianne82 reacted to a post in a topic: Clueless where to start
  2. icon Marianne82 reacted to a post in a topic: Clueless where to start
  3. icon patty-maguire reacted to a post in a topic: Anemia
  4. Marianne82
    I did another test, to prove it. I saw my psychiatrist yesterday. He concluded I was very stable, and not depressed or anxious or psychotic. We had a nice chat, a laugh. I'm on dairyfree keto now, which is the best diet for me. I had one single cheat evening meal yesterday. Went out with kid to town and we binged on everything good. From soft...
  5. Marianne82
    No, my GP doesn't want to give me one....
  6. icon Marianne82 reacted to a post in a topic: Clueless where to start
  7. icon Marianne82 reacted to a post in a topic: Clueless where to start
  8. Marianne82
    Thanks for thinking with me. I was so overwhelmed with everything, that I didn't know where to start. I got off the internet. And meticuously stuck to gluten free/dairy free/soy free/egg free the last weeks. And minimal sugar/additives. My GI symptoms calmed down a lot. I did a tiny gluten challenge (ate a gluten free dairy free pancake in a restaurant...
  9. Marianne82
    Thanks! I really wish to get diagnosed, but doctors refuse to do further testing. They think they save money by being extremely frugal on basic testing here. They do not understand, that they make everyone chronically ill in this way. I see a naturopath doctor next week. I hope he is willing to take a better look. If he won't, I will look into...
  10. icon Marianne82 reacted to a post in a topic: Anemia
  11. Marianne82
    Thanks. I don't dare do a gluten challenge at this moment. I just decided to be very careful with what I eat now, and quit gluten and dairy totally. I hope my body will repair itself, if I'm giving it enough rest. Gluten seems to trigger responses every time, so I leave that out.
  12. icon Marianne82 reacted to a post in a topic: Anemia
  13. icon Marianne82 reacted to a post in a topic: Clueless where to start
  14. Marianne82
    Ah, never mind. I'm getting scared, because I have a billion weird responses, from edema to gut issues to hair falling out to exhaustion...and my doc thinks it is no problem. So I'm searching for myself. Which probably isn't helping much.
  15. Marianne82
    I am too tired today to do much, but I decided to carefully start supplementing iron and b-vitamines in tiny doses. I respond to everything now. Something I read about, and am frightened to have, is mast cell activation syndrome. I really don't know, am searching. I respond with GI problems and "mind" problems to almost everything now. I just had covid...
  16. icon knitty kitty reacted to a post in a topic: Clueless where to start
  17. Marianne82
    It is a Dutch company. I haven't looked into them well yet. www.bloodtesting.nl/vitaminen-en-mineralen-best.nl
  18. Marianne82
    I found a bloodtest online, with all sorts of vitamins and minerals. It is expensive, but I think it is worth it. And a lot better than begging doctors for help endlessly. I could drop dead in front of their eyes, and they would still try to explain to me it is in my head.
  19. Marianne82
    Thanks! This may be a clue. I was just at the GP (not my own). Useless. I pushed for B12 and folate to be checked. This he wanted to do. And he prescribed iron pills and some sort of fiber to not be constipated. Nothing else. I will take the natural variants of those. He thought all the other problems were probably a result of my psychiatric symptoms...
  20. icon Marianne82 reacted to a post in a topic: Clueless where to start
  21. Marianne82
    Tried to post link, isnt working.
  22. Marianne82
    My gut always hurts, I'm kind of used to that. I also had psychiatric symptoms though. Psychosis, emotions that were allover the place (hourly fluctations, going from rage to fear to hypomania to shame), traumatic flashbacks, nightmares, suicidal feelings, extreme PMS. Even when not floridly psychotic, I had constant ideas of reference and the like...
  23. Marianne82
    I'm so scared. Since I eliminated dairy and gluten, the most obvious symptoms that ruined my life, and that of my kid, my family...magically cleared up. Getting the test friday just...I grieve. I have begged people to help me with this. And they not only refused, but actively sabotaged it. Both my parents, who from childhood forced me to drink milk...
  24. icon Marianne82 reacted to a comment: The Role of Mast Cells in Celiac Disease
  25. icon Marianne82 reacted to a post in a topic: Complications of Celiac and the Covid Vaccine; collagenous sprue, collagenous colitis
  26. Marianne82
    Also, I'm so sorry this happened to you as well.
  27. Marianne82
    Thanks. I'm having a somewhat bad day (PMS). So I can't take much information in atm. Will read better later. I have quite heavy periods because of a myoma, so this might be part of the issue. I have been binging on meat and craving liver. And still. I dont think I can get enough iron in food indeed. I suspect getting the iron up a bit in some other...
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