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LP023

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by LP023

  1. LP023
    The gene test would be cheaper than a scope. In the lab had several false positive HIV antibody tests that were confirmed false positive with PCR and more accurate test. It was suppose to be 98% accurate and not surprising they can be false positive for a lot of the same illnesses that also cause false positive TTGs. From Beyond Celiac “The test is skewed n...
  2. LP023
    Something else I’m absolutely blown away by is how many people are diagnosed with celiacs by TTG alone and never had a gene test. If you don’t carry the gene you can’t have celiacs. Gene test should be the first test done with a high TTG. It would prevent unnecessary biopsies and rule out false positives.
  3. LP023
    That’s the point I’m trying to make. What works for one doesn’t work for all. When reading this stuff online it causes panic. Too much advice is given online. “Who knows” is correct. That pretty much describes celiacs. It seems nothing is set in stone as far as guidelines and science for celiacs.
  4. LP023
    6-8 weeks is what I’ve seen on several websites and several of the posts on here. Just one more example of different information from several different sources. No one seems to have the same information on anything when it comes to celiacs.
  5. LP023
    Wash your hands with soap and water. Unless you are laying food on top of the pet food you’ll be fine.
  6. LP023
    This is the way I’m leaning. After being told I had celiacs. I started googling. Shouldn’t have done that. There are woman who won’t pick up their kids if they’ve eaten gluten. They won’t kiss their husbands if they are a sandwich. Even even saw where woman were giving up their shampoo because their hair may get in their mouth and it will make them sick. 😳 P...
  7. LP023
    Possibly. But we have people turning their lives upside down and panicking trying to avoid the tiniest speck of flour that would be perfectly fine consuming a piece of toast once a month. There are people with families removing all gluten and washing their kitchen down because of the extreme advice they’re getting online. We do need the nutrition from the f...
  8. LP023
    I agree on the fully healed part. I’m just tired of being bombarded with advice online about how one time of being cross contaminated will cause damage that will last months. The gluten challenge takes 8 weeks to show enough damage to test positive. How can being cross contaminated or eating a steak cooked on grill with a bread crumb on it cause damage o...
  9. LP023
    I guess for me I don’t have symptoms. I get an upset stomach every few months. Nothing major. I know if I go completely gluten free though I may become more sensitive to it and cause more problems than good. We can’t avoid it 100% and I’d rather not be deathly I’ll because a steak was cooked on a surface with a bread crumb on it. Right now I could eat a w...
  10. LP023
    If it takes 8 weeks of gluten for a gluten challenge to cause enough damage why do we worry about cross contamination once in a blue moon. All I’ve seen on the internet is cross contamination will cause damage that will take months to heal and raise you risk of disease. I’m sorry but I’m not buying it. I do believe there are people who are super sensitive to it...
  11. LP023
    Not the one I read earlier but this is interesting and I’ve found many more similar to this. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7075003/
  12. LP023
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7075003/ this isn’t the article I was looking for but it is interesting and there are several more. Interesting article and there are many more.
  13. LP023
    Why would removing the gallbladder improve symptoms temporarily? If it is gluten causing the pain then the gallbladder being removed shouldn’t help.
  14. LP023
    It is estimated that 83% of people with celiacs are undiagnosed. They would literally need to have people eat this amount and other amounts and do repeat scopes to prove this over and over to confirm it.
  15. LP023
    How do we know that all people have the same amount of inflammation? I’m not saying I should indulge. I haven’t. I’m saying that maybe telling people that a bread crumb or cross contamination will cause the same damage to everyone may not be the best advice. Switching my whole house to gluten free and going to extreme measure to avoid cross contamination, and ...
  16. LP023
    I guess that’s the point I’m trying to make. All advice I’ve gotten is avoid it at all cost. Switch my house over to gluten free. Never eat out because of cross contamination and pretty much stress myself out to the point that the stress is actually worse on my body than the gluten. When in reality all of that may not be necessary. The same advice isn’t goo...
  17. LP023
    I’m not sensitive to it now. Im reading and being told the longer I go on a gluten free diet though the more sensitive I will become. I can eat a whole pizza now and not hurt. But from what I’m being told is after going gluten free a bread crumb eaten on accident can cause severe pain and sickness. I’ve gone gluten free and am overly caution of cross conta...
  18. LP023
    So a cutting board laid on another in the dishwasher is enough to cause intestinal damage in one person but cause none in another person? That’s kind of what aggravates me. I’ve been told any amount will cause the same damage in everyone even if there are no symptoms. I do take it seriously and haven’t eaten it at all and am overly careful with cross conta...
  19. LP023
    I don’t feel like we have enough studies done on any of this. I don’t see how it can be proven that one time of being cross contaminated can attack our cells and other organs. Scientist May believe this but may not be proven. Science changes over time and we learn things we didn’t know 20 years ago. For those of us who don’t have symptoms when glutened I truly...
  20. LP023
    I’m just so tired of one study saying one thing and others saying different. I saw a lady on here say her husband laid his cutting board in the dishwasher with hers and she got glutened. One says we need separate dishes and another says it’s fine. I was diagnosed by TTG and was told to keep eating gluten until my biopsy. They scheduled the biopsy for 4 m...
  21. LP023
    But one crumb (cross contamination) will cause damage that takes months to heal is what we are told. One slip up is dangerous and going to cause damage is what I keep seeing in the celiac community.
  22. LP023
    I guess my question is if one crumb (having to be so careful with cross contamination) will cause damage to the villi why eat gluten for 6 weeks. If it takes 6 weeks to show damage for a scope then one crumb isn’t causing a lot of us the damage we were are told it will.
  23. LP023
    A lot of those things can be blamed on poor diets. Not gluten. I’m not saying a lot of people shouldn’t be on a gluten free diet but some people may be ok without it. I read another study where people who had been diagnosed by biopsy years before had an upper endoscopy and were fine because they had been on the gluten free diet for awhile. They were told to ...
  24. LP023
    Many people have it their whole lives with mild symptoms and aren’t diagnosed until 60s or later. All of the studies I’ve read say the number of people undiagnosed is astronomical. Many people are diagnosed at an early age never diet and are in there 50s and 60s and healthy. I just don’t think we know enough about this disease. The contradictions in medic...
  25. LP023
    Sweet potatoes are low histamine. She eats a lot of steamed vegetables. Once you figure out the right beef (hers is organic grass fed and has to be butchered as soon as it’s killed or hung in the freezer immediately)and the right preparation for all of your meat you may find you’re able to tolerate other foods. She couldn’t eat anything until she learned the r...
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