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Papafma

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Papafma

  1. Thank you for all information.They only tested him forAnti-transglutaminase iga and Anti-gliadine IgG-came back negative. i really don’t understand how is possible in 2023 after 1.5 of testing that they are not able to give us an answer. once we finish with the tests i will try him a gluten free diet.For now I don’t want as i dont know if they are...
  2. Hi everyone, you may have read my previous post .My 2.5 years old son was diagnosed with milk protein allergy when he was 3 months.He had silent reflux.Currently he was diagnosed with peanut and soja allergy.When he was 1 years old his blood tests showed elevated liver enzymes.We repeated the tests 4-5 times and were still elevated.Also his lipase.He...
  3. Hi again!!!So after stopping neocate we retested my son. Liver enzymes were decreased but not to the normal.That was back on March.In August he was tested again and they were again elevated (also lipase).Since February has loose poop and blood in his poop( not obvious but confirmed from stool test). i m so lost…He is gaining weight,no tummy pain and h...
  4. Its a rice milk for children older than 1 year old.Its not a formula.It contains all necessary vitamins,minerals etc ( i ve checked it before giving it)
  5. I got a phone call from his doctor today saying that they found bacteria in his stools so he has bacterial gastroenteritis!!!! I know that neocate can cause hypophosphatemia but my son s level are in normal range( also vit D and calcium). its been a month since we ve changed from neocate formula to rice milk .He will be on antibiotics for 10 days and then...
  6. We leave in Belgium and here its not possible to have any test without doctors approval .You don’t have the option to do tests private.As his doctor is sure that he doesn’t have celiac we cannot have the genetic test.I pushed them to have at least the full panel blood test and during summer we plan to have the genetic test in my home country. his voi...
  7. Is DGP tests the anti gliadine IGg? He was tested for that and it was negative.He was tested for nutritional deficiencies but everything came back normal
  8. Hi everyone, my 20 old son was diagnosed with milk protein allergy since he was 3 months and he is in neocate formula since then. At 12 months we had a blood test and his liver enzymes were elevated.We repeated 3 times and there are still evelated. He was tested for celiac(only Anti-transglutaminaseIgA Anti-gliadine IgG ) and came back negative.Ultrasound...
  9. Is there a blood test to check his choline levels?
  10. He is on rice milk only for 3-4 weeks just to make sure that is not neocate the reason for elevated enzymes.Then we need to find an other formula/hypoallergenic .I don t want him to stay on rice milk because of arsenic .
  11. Yes i went back .Actually I don’t have any symptom but i know that gluten generally is not that good so I wanted to try a gluten free diet.
  12. No never .I know that there is a correlation between hashimoto and celiac that s why i was eating gluten free for a year.
  13. I will ask his doctor to run a full test for Celiac and i hope he will agree. If not i will for sure try a gluten free diet .They are testing him for more than 5 months and still no diagnosis so i do believe he has celiac.
  14. . Neocate is an animo acid formula , i ve just checked the ingredients and choline is not in the list. One allergologist in my home country with experience in USA told me that he believes that neocate is caused him this issue with the liver so he asked me to give him rice milk for 3 weeks and to repeat the tests but he said that celiac its not possible...
  15. Thank you for the information.He was tested for Anti-gliadine IgG and it was negative Does this means that there is no chance of having Celiac ?He is not consuming diary and he is on neocate formula( amino acid formula).He eats gluten every day .Doctors believe that he has cystic fibrosis so i m waiting the results from the genetic test .My instinct says...
  16. Hi ,my son is 20 months old and he has allergy to milk protein.At 12 months we had blood tests and his liver enzymes were elevated.We repeated the tests 3 times and they remain elevated.Ultrasound showed fatty liver.He was tested for different virus,hepatitis etc and everything came back normal.They also tested for celiac(Anti-transglutaminaseIgA,Anti-gliadine...
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