Raquel2021
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Raquel2021
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New and Seeking Help
Raquel2021 replied to toothdoc's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Welcome to the forum. Our household is mainly gluten free. I have one kid who also has issues with gluten so we have 2 people who are gluten free and 2 who are not. So we buy everything gluten free Except for gluten bread for our nonceliacs. I also send my non-celiac kid to school with gluten snack so that snacks can be eaten outside of the house and he... -
Fatigue. Blurred vision. Hair loss. Depression/Anxiety/ Insomnia. Weight loss. Pain on my throat as well.
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I also have celiac and hashimotos. Diagnosed with celiac in 2020. Hashimotos in 2022. The gluten free diet can help with Thyroid issues but it has not made Hashimotos go away for me.
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Thank you. I just figured I had it at 60 before and now is 96 and above normal low. I basically spent the whole summer May till Sept outside with no sunscreen. Just had a hat and sunglasses and made my vitamin D go up. Supplements make me feel sick. I tried a few.
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My Vitamin D level is 96nmol/L (range is 70 to 250) How did you find that formula to covert it to ngml? Thanks
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Thank you. My pain is in the upper left abdomen. I call it the gluten pain. Now that I am gluten free it did improve considerably but has not gone away completely.
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Thank you. Did you have your gallbladder removed? I had mine taken out and that I'd when the nightmare really began. I was diagnosed with celiac after that. Thanks again for your reply
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Third chronic diet - new is Celiacs
Raquel2021 replied to Monette Bebow-Reinhard's topic in Related Issues & Disorders
If you have celiac disease please do not eat gluten again. This is gluten free for life -
Thank you. I have also done my own research. This forum has been more helpful than any doctor. My celiac antibodies are normal now, so I think that might rule out refractory celiac disease.
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Thank you. My vitamin D is 96 ng/ml. I just had it tested. I also don't have a gallbladder after the surgery my celiac symptoms really got 10 times worse. So you experience no gut pain? My celiac antibodies are normal but I am beginning to think my symptoms could be caused by the gluten free bread I eat everyday day or rice.
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Thank you. I will give this a try. Thanks Mary. So many things we have to exclude. This is crazy.
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Thanks. Even if it was IBS I think there is no treatment other than gluten-free diet. I have told my Dr but she is not very helpful. It is also possible that because we had undiagnosed celiac for soo long the gut never fully heal
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Thanks. This is very helpful. I am currently using Clubhouse which is under McCormick. They say their single spices only contain the spice it self and that gluten would be listed if it was an ingredient. I react to cumin, paprika and cinnamon
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Hi there Every individual is unique even in the celiac community, so don't feel bad. We might even react to other foods as well. Corn, dairy soy and eggs.
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Thanks so much for this. Do I have hope of ever being able to tolerate cinnamon? I love cinammon. Thanks again for your help
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Hi there Which spices do you use that are gluten free? Thank you
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Yes but some of us can react to even those traces
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I am also very sensitive. So it is possible you could be reacting to it. I thought malt vinegar was a NO no.
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Hello all, I experienced horrendous pain on the left side of my abdomen for years before being diagnosed with celiac disease. Stabbing, sharp pain. Once I adopted the gluten-free diet my pain improved but it has never completely gone away. I suspect I had this disease for at least a decade before diagnosis as my Dr was clueless. My question for you...
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My Son’s celiac test result
Raquel2021 replied to Irishgirl5's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Just my 2 cents a lot of the iron supplements contain gluten. Do some research and try to find one that works. It has been very tricky for me to find one that does not causes pain since our guts are so damaged -
Hi , This week I had a major reaction to a cinnamon stick I used In a recipe. Brand no name. Ingredients: cinnamon sticks. Does anyone else reacts to cinnamon? Crazy. Thanks
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I can relate. I am still experiencing pain every day so thinking about giving up rice as well as gluten free cardboard foods
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I think what I meant to say by remission is: does having normal antibodies should equal no symptoms? My vitamin D levels is 96 just had it checked. Normal is above 70 or something like that. I just had a visit with a neurologist who advised I don't have ms and my neurological symptoms are from being celiac
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One of my kids had issues for years. He was also losing weight eventhough he ate a ton of food. Once I was diagnosed and put him on the gluten free diet and he I'd now thriving. All issues resolved. He is even getting better marks at school. His celiac test came back negative. So you never know. The pediatrician run a ton of tests all negative.
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Exactly. I think even today celiac disease is poorly understood and we have yet to learn a lot. Thank you. I am close to the 3 year mark and don't eat any dairy, soy or eggs as I react to all of those.
