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Mathew

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Mathew

  1. Did the mri show UBOs?
  2. Legend i shall try this. Usually my dopey dog shuffling round the bed, but ill try. Thanks pal. I love this forum. Such lovely helpful people x
  3. She was having the episodes at the time she was tested in Aug 2022. But i hear what ya saying. Would a brain MRI show this that ya talking about?
  4. I have celiacs desease, so did my dad. I had my daughters tested in aug 2022 and my oldest was positive and my yougest negative. Now my youngest is 11 and has been suffering from vacant episodes, dizziness, dream state. She has gluten in her diet. She has been tested for epilepsy and that was negative. She has had a heart tracer (waiting results) and an MRI...
  5. Yes thanks i think i have this. Its hard when u have celiacs desease ive have so much health anxiety 😫
  6. Thanks pal appreciate that. Docs dont know why im sweating at night all bloods were fine although my thyroid was slightly over active. I have more blood tests next week but i assume they will come back as fine as the ussually do.
  7. Ive was diognosed celiac disease 9 months ago. Ive had 5 or 6 bouts of CC exposure in that time. Each time it happens i get violent vomiting, sweat buckets, no real stomach pain just nausea and vomiting for 24 hours, im also feezing cold and cant get warm. Im then left confused, fatigued and ussually lose half a stone each time. My question is, in between...
  8. When i spoke with GI last he said this reaction is more common than reported. And when u get sick u arent doing any long term damage or short term damage. Try freezing some still lucazade to replace electrolites.
  9. Me mate. Vomitting and ive never felt colder. Im frozen to the core. I sweat absolute buckets. This is from CC in a gluten free house. I sweat every night whether ive been glutened or not.
  10. Are we talking about THC vapes. Im celic and get glutened about 3 times a year. Always from CC. I wondered about Cannabis Hypermesis Syndrome. Im fit and healthy but sweat like mad every night. No longer toking in case its adding to my symptoms.
  11. Yes back of the left knee pain and numb burning right thigh pretty much all the time. Seems to be made worse by walking. B12 was fine, vit D and calcium slightly low, im conviced it B1 deficiency as all my other blood work was fine. Im seeing GI tomorrow, but my GP has no idea.
  12. When i wake up my right thigh burns and tingles, then is numb for the rest of the day. Im on gluten-free diet and diagnosed celiac 10 months ago. Legs pretty much numb all the time now. My mucles in my legs aches alot on and off even on gluten-free diet. I was glutened 16 days ago and my legs are ruined still. Calfs ache so much.
  13. Yes i was glutened 17 days ago and still have headaches and really achey legs. Slight pain on and off in left side of abdomen too. Hope you find some peace
  14. My celiac score came back +200 basically maxed out the chart. No need for biopsy at that level. Hope u find peace mate.
  15. Aw dude its really scary isnt it. Im getting my B1 tested as ive read u can get similar symptons from low B1 and its actually really serious so id suggest having that chceked. Ill let u know what doc says next week pal. Much love
  16. Ah ok that puts my mind at ease a little i guess. Trying so hard but it just keeps happeneing. Im awaiting stool results today and need to have calcium levels checked on Monday. Cheers buddy have a top day!
  17. Had bloods back today and full blood count, celiac, folate all fine. Vit D, Calcium a little low and thyroid a lttle over active.
  18. So ive had what i thought was an exposure to cross contamination 9 days ago. I had bloods done yest and celiac score was normal, so was my vit levels. Calcium and vit D slightly low and Thyroid slightly high? Is this normal, if it was a gluten exposure 9 days ago would your levels spike from cross contamination?
  19. Hi me again. Quick question, im really struggling with my mental health on the back of a glutening almost 9 days ago. My mood is so low, im on ssri's to help, this glutening has either done some neurological damage or im just sick of being sick. Im slowly losing friends around me and fam getting well annoyed with me. Any advice?
  20. I also hear that mate. I got sick last sunday, not the one just gone. And im still woozy, tired and so angry and everyone around me. I can watch myself be a bastard. But struggle to stop. Not nice
  21. Aw mate i know its awful. I was just away in the highlands 8 hours from home. Spent the week shivering and throwing up, luckcily there was a log fire and unkin hot baths on hand. Worst week of my life. What do u take if anything when it happens i have an anti sick tablet and when i can keep it down, some paracetamol. My most recent flare took nearly 5 days...
  22. Cant thank you all enough. Hope someones watching and blesses you all today. B12 organic from My Kind Organics and a trip to doctors monday to get my tests booked.
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