Reneemb

The fatigue is still terrible. I'm trying to get him to the Mayo for more answers. gluten-free diet s need to help a little. It worked on me in 3 days but not quite the case for him. Thank you for your concern.

Oh wow. That is interesting. When I went to the Mayo it was 1996. I don't think they even knew about it then because I really didn't fit the fibromyalgia diagnosis. I never had the 12 trigger spots. It was gluten all along causing inflammation in my body.

It's going to kill me to give him gluten tomorrow but but I will. Uggg! It's so much worse then it's your kid then yourself. I put up with it for 30 plus years before finding out. The Mayo told me it was CFS and fibromyalgia. I guess I'm glad to understand it and be able to help my son because I have first hand knowledge. It's just so hard because really...

Yes. I agree. He gets tested on Thursday so I'm wondering if I should wait for him to go completely gluten free until after. We just started today.

Yes, I was diagnosed with NCGS. It took me months to see a doctor at the Celiac Center at UIC in Chicago. By then I had been on the diet for several months. Anyhow, thank you for the info. I will talk to his doctor on Thursday and try to get him tested right away since I'm trying the gluten-free diet on him now to get him to wake up. This is so scary...

I found out I had gluten intolerance many years back and suspected my son had it as a young boy. Skip to now he is 16 years old. He started to feel completely fatigued about 2 months ago. He cannot go to school and really never wakes up unless Im forcing him to eat. He was a physically fit boy who played football. After the doc tested him for mono etc...