I am in my 30s and new to Celiac. I was diagnosed a few weeks ago. Apparently the my villi are quite damaged. I had been having pretty bad abdominal pain for a while and went to see a specialist. Honestly I was relieved when I got the diagnosis. It was an answer. That’s when things got worse.
There is no gluten in our house. I haven’t eaten out anywhere. Yet I have felt progressively worse. Every morning I have horrible stomach pain. A week of horrible stomach pain changed to stomach pain and diarrhea the next week. It seems like the problem is getting worse instead of better. Has anyone else experienced this? Could this just be transition to a new diet, and I need to be more gentle with myself?
Interestingly enough, this did happen to me as well. I had symptoms for 10 years before my diagnosis, and I was relieved to finally have an answer and finally be able to do something about my pain. When I was diagnosed in January 2022 with celiacs, I was told I had 3B villi damage (meaning barely any villi left). For 3 months after my diagnosis I was still having horrible symptoms, even on a super strict gluten free diet. However, I never checked the ingredients on my daily vitamins, which contained wheat flour as the second ingredient. Turns out, I was getting exposed daily and didn’t even know it for months. Please please PLEASE double check the labels on everything friend, as you could possibly be getting exposed and not even realize it.
Everything Worse After Celiac
in Post Diagnosis, Recovery & Treatment of Celiac Disease
Posted
Interestingly enough, this did happen to me as well. I had symptoms for 10 years before my diagnosis, and I was relieved to finally have an answer and finally be able to do something about my pain. When I was diagnosed in January 2022 with celiacs, I was told I had 3B villi damage (meaning barely any villi left). For 3 months after my diagnosis I was still having horrible symptoms, even on a super strict gluten free diet. However, I never checked the ingredients on my daily vitamins, which contained wheat flour as the second ingredient. Turns out, I was getting exposed daily and didn’t even know it for months. Please please PLEASE double check the labels on everything friend, as you could possibly be getting exposed and not even realize it.