416510
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by 416510
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Test results inconclusive?
416510 replied to 416510's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks for your response and link. We’re keeping our mind open and of course looking forward to hopefully getting it resolved soon. Fyi here is where I pulled (approximately) 15% chance (with the specific combo of elevated tTG iga and negative endomysial antibody - sorry if that was confusing) from: https://pubmed.ncbi.nlm.nih.gov/33166550/ https:/... -
Test results inconclusive?
416510 replied to 416510's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Our doctor asked us to wait 3 weeks and retest. The new tTG-iga is now only 2x the upper limit of normal. Previously it was 4.5x the upper limit of normal. This time they also ran an endomysial antibody test and it was negative. My internet research says this combo is unlikely to be celiac disease (about 15%). But I can’t figure out what might cause the t... -
Thanks - this well may be similar in Germany and I hadn't thought of that. Although I have started to worry about lunch at daycare.
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Yes, that makes sense. The doctor was not talking to me in their mother tongue so it was a bit unclear. Thanks very much for the resource! In your response to my other post you say you would not be keen to get the endoscopy. While I agree that seems unpleasant would it be beneficial to rule out non-celiac gluten sensitivity and simply confirm such a life...
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Test results inconclusive?
416510 replied to 416510's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks so much for this detailed reply! He’s 3.5. -
Or, what do you wish they did differently? My 3.5yo son may have celiac (His pediatrician has to get the labs checked by a specialist because his iga is 92.5 and she said under 20 is normal and over 200 is celiac? Any thoughts on THAT?) Anyway, I want to be prepared. I have type 1 and I know how beneficial it is to try to be one step ahead of your care team...
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Test results inconclusive?
416510 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My son has not been keeping up with his growth and his doctor ran a transglutiminase antibody iga test. She called and said the test is inconclusive and she will let me know more when she hears back from a specialist. His value is 92.5 and normal is up to 20 but because it’s not 10x the normal (200) she’s not sure. My understanding after googling is that it ...
