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Jenn D

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Jenn D

  1. That is true, but usually the older you get the less likely it is to have a high fever. His friends the same age aren't having an immune response like this. The only difference is the Celiac....Very good point though. I really appreciate it
  2. I am curious to hear anyone's thoughts on the immune system.and Celiac Disease. My 12 year old son was diagnosed a year ago. He was always catching colds etc. pre diagnosis. The strange thing is since he's been gluten free his immune system reacts strongly. For example, all of his friends caught 5th disease (a viral skin rash) he had a fever of 102 for...
  3. thank you for all the info😊
  4. His numbers started off at +100 at first diagnosis. After 6 months down to 9. And now down to 6. 0-3 would be considered normal. He is at a weak positive niw. His ALP is slowly coming down as well, but still not in normal range.
  5. He has been glutened once. His celiac level tested at a 6, which is a weak positive. So she feels him being glutened could've skewed the numbers or it just takes time. He is pretty good and eating clean so i dont feel he is ingesting any gluten.I did read that children do have elevated ALP due to puberty, but the dr never thought that as a reason. Although...
  6. My 12 year old son was diagnosed April 2023. His ALP was elevated to 489. (Normal range is 150-409). Dr. was not concerned. 6 months later his follow up bloodwork showed decrease in celiac numbers and his ALP decreased to 467. I told her I was concerned but she wasn't. Today his bloodwork came back and his ALP decreased to 441 which is still high. I expressed...
  7. My 12 year old son was diagnosed with Celiac o 4/20/23. At the time his bloodwork was done, his ALP ( which is a liver enzyme) was 489...( Normal level rangers from 150-409). the dr said it could be low vitamin D. His bloodwork was tested again 6 months later and his celiac numbers went down and his ALP went down to 467 and his Vitamin D levels were normal...
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