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pikauchu

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  1. pikauchu
    She said I didn’t have anemia and that my levels were messed up due to low b 12. I am however going to mention this because I did look into that condition and it sounds plausible. Also still think I have possible celiac from the one positive test and it’s just really early. I have a bunch more tests to complete. Tomorrow is my echo. further inf...
  2. pikauchu
    They said it was normal. But from what I gathered the doctor performed some in the stomach too. And only took I think 3 from the intestines.
  3. icon Scott Adams reacted to a post in a topic: An update-More tests and information
  4. pikauchu
    Yeah I had a previous endoscopy but they are going to redo that when I’m healed more from surgery. My gallbladder removal was good, but it was stuck to my stomach apparently and really hard to get out. They said it had years of damage and inflammation to it as well. he will redo bloods and stuff in a few weeks when I am more healed. I mentioned to him t...
  5. pikauchu started following Biopsy results and An update-More tests and information
  6. pikauchu
    So, I got a second opinion about my gallbladder from a different doctor. This time a Gastrointestinal surgeon. He quickly looked at the tests that I had done and was very confused they even did a Hyda scan. He said it was completely and 100 percent unneeded. He said, once I showed I had gallstones on my ultrasound that they should have immediately booked...
  7. icon Scott Adams reacted to a post in a topic: Biopsy results
  8. pikauchu
    I’m looking for a second opinion currently. What makes me more worried is that my PCP hasn’t been checking my Graves’ disease either, and no one else seems to concern that I was genetic tested positive for familial Mediterranean fever when I was pregnant with my son. Either way, I see a different doctor in June as a second opinion and I’m wondering whether...
  9. pikauchu
    I ate a lot of gluten, but I wouldn’t say I ate 2 slices of bread every day for 2 weeks.
  10. pikauchu
    I am going to make a post about what happened today when I tried to get a second opinion, but basically his office didn’t call or speak with me at all with any information. I called and they told me he basically is sending me off to a general surgeon for my gullbladder and as far as he’s concerned there’s no issue in regards to celiacs disease or any other...
  11. pikauchu
    Yeah, that’s what I thought lol but wasn’t sure why they would put benign. Is it doesn’t look like they gave me a Marsh score at all. So it would be 0 by this?
  12. pikauchu
    1. Duodenum, Biopsy: Small bowel mucosa with A. Normal intact villous surface. B. No significant inflammation, no granulomas. 😄 No viral inclusions or other organisms on routinely stained sections. 2. Stomach, Random Biopsies: A. Benign gastric mucosa without diagnostic abnormality. so if I’m reading this righ...
  13. icon pikauchu reacted to a post in a topic: Super confused
  14. pikauchu
    Well hopefully biopsy comes back positive and saves me the trouble of arguing with this doctor. And hopefully they can give me some answers soon. I really appreciate all y’all’s help. Only thing I’m not sure of is when to stop eating gluten since I’m still doing tests I guess. Maybe I talk to them about it next week.
  15. pikauchu
    Yes, I am awaiting to have them call me to schedule an appointment. Okay so if it is positive it’s celiac disease and if not then possibly NCGS.
  16. pikauchu
    Yes, I def am going to be talking to them about this too. I was reading up on it, is that some kind of precursor to celiacs? would that also cause the DH rash? I’m hoping the biopsy will tel me something new but I just hate waiting. Wait we must though lol
  17. pikauchu
    I wonder if that’s possible. I do not have the results back yet but he was very confident it looked normal to my husband. I hope the rash is DH as it would improve the chances for an early diagnosis. I just think he’s not taking this seriously or following a typical diagnosis when I’ve never fit into typical.
  18. pikauchu
    Yeah I can still test positive for that if the edg biopsy says negative? That would mean celiacs disease, guess I just wonder why there’s no damage to villi if that’s the case. Still off by him saying looked normal, where maybe microscopic is still showing something. I hate waiting
  19. pikauchu
    Yeah this does give me some perspective. I just have always been told I’m crazy or I look too hard into things. But I was the only one who believed there was something wrong with my ear, and lo and behold a cholosteatoma (excuse my spelling) and it made me half deaf. Doctors told my parents I just didn’t want to listen. I got a second opinion when I was 18 ...
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