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Emanon

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  1. Like I have repeatedly stated they do not ever go away. I fundamentally cannot agree with your repeated posting of NCGS. Perhaps it is a fad but I'm far from being in the mood. My doctor ordered IGA tests twice now and I haven't tested positive. The experience is completely savage. He hasn't ordered EMA/IGG and I haven't seen the results myself. I...
  2. Symptoms don't go away if I go gluten free, they do become milder. But its not even beginning to be sustainable. It not being treated is out of the question. On my medical record I was treated for it as a child with Prednisone. I did not eat any/significant gluten in the months leading up to the endoscopy. You can be NCGS with the genetic marker...
  3. I was tested for the celiac gene, and tested positive, the GI doctor insists on doing a gluten challenge (again), and I've long forgotten everything I wrote and learned about. The last test, turned negative, but they were missing a bunch of data [paraphrasing doc] so he wanted it done again. Progress has been very slow, because of the long time...
  4. Failed to test positive. Doc finally says that he begins process for GI referral. After dropping inflammation hard, the bleeding became pretty serious. If I ingest irritants, the excretion will not be visible through the redness of the blood. Seems like primary problem is ingestion of food. The color depends on the degree of the irritant...
  5. For me I historically used various ways to stress my immune system to reduce symptoms. Afaik, this jives with Prednisone being estimated as highly effective during childhood, but my memory recall is completely shot rn. Problem is more than simply gluten free, for myself I have a baseline of immune dysfunction, and celiac puts that into overdrive...
  6. Problems are the following: Gluten or not I have a persistent immune dysfunction, as well as a mild(er) reaction to presence of food in general The doctor won't prescribe any medication to treat even the gluten issue w/o diagnosis The immune dysfunction intensifies whenever my health improves The gluten makes it significantly temporarily...
  7. I received papers for celiac blood testing, but this situation increases my anxiety, as gluten functionally incapacitates me completely regardless of any countermeasure efforts. Those prevent me from staring into space for 8 hours, but do not address the fundamental problem; the gluten challenge situation is disabling. I believe reintroduction of gluten...
  8. Better part of this year? I do not have precise time frame. <1200 calorie for much longer. Like I said I was rather dedicated to self persecutory delusion that my diet predicts my weight, not particularly aided by uniquely helpful advice. I do not fear death in these situations so am not sure I am within profile. However electrolytes seems good concern...
  9. The other one is really apparent reaction to any food. I get knocked down hard by one light meal. Trying to hit the calorie target, the immune response functionally incapacitates me. I can feel myself "going stupid" in real time, and it takes a night to recover. Am not sure how to proceed on this point. While this is mitigated somewhat by anti allergens...
  10. Probably the greatest challenge is actually meeting nutrition requirements. For so long, I have been deluding myself my diet causes my weight, that I'm unable to eat a necessary amount of food. To reach even a 1600 calorie target seems like a Herculean task. The moment I worked on related deficiencies (iron, magnesium [metabolism], etc) this became a...
  11. Yes. Occurs primarily with gluten, rice included, even if quantity is a few spoons. Generally lack of "burp" otherwise.
  12. Only incompetents at ER have blood sugar tested. After drinking 2L of juice I could test blood sugar normal. Yes. It is also sustained so completely I thought it would simply be a fact of life.
  13. Borderline catatonic state. Sometimes occurs that not able to remember a single sentence so have to look at the page and write every letter. It still won't go into memory so I have to try that for hours. But this is just one example, and far from the worst case. Studying for 12 hours is luxury. Difficulty walking is a given, lower...
  14. I understand that. However at the moment simply digesting a solid meal, not even glutenous, can take me down for the better part of a day. Your "easy test" is asking for 42 days of Ataxia during course season. It is certainly quite easy if I don't mind failing out of university.
  15. I understand. Not overwhelming. Seem like nothing working at optimum. Immune function is good; minus FF part. I should explain throughout life constant battle to prevent immune system from killing me. Despite all efforts to self sabotage, immune system even near death test normal. Am moving to GFD, mostly not have much/any to start with...
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