Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

Emanon

Advanced Members
  • Posts

    23
  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Emanon

  1. Like I have repeatedly stated they do not ever go away. I fundamentally cannot agree with your repeated posting of NCGS. Perhaps it is a fad but I'm far from being in the mood. My doctor ordered IGA tests twice now and I haven't tested positive. The experience is completely savage. He hasn't ordered EMA/IGG and I haven't seen the results myself. I...
  2. Symptoms don't go away if I go gluten free, they do become milder. But its not even beginning to be sustainable. It not being treated is out of the question. On my medical record I was treated for it as a child with Prednisone. I did not eat any/significant gluten in the months leading up to the endoscopy. You can be NCGS with the genetic marker...
  3. I was tested for the celiac gene, and tested positive, the GI doctor insists on doing a gluten challenge (again), and I've long forgotten everything I wrote and learned about. The last test, turned negative, but they were missing a bunch of data [paraphrasing doc] so he wanted it done again. Progress has been very slow, because of the long time...
  4. Failed to test positive. Doc finally says that he begins process for GI referral. After dropping inflammation hard, the bleeding became pretty serious. If I ingest irritants, the excretion will not be visible through the redness of the blood. Seems like primary problem is ingestion of food. The color depends on the degree of the irritant...
  5. For me I historically used various ways to stress my immune system to reduce symptoms. Afaik, this jives with Prednisone being estimated as highly effective during childhood, but my memory recall is completely shot rn. Problem is more than simply gluten free, for myself I have a baseline of immune dysfunction, and celiac puts that into overdrive...
  6. Problems are the following: Gluten or not I have a persistent immune dysfunction, as well as a mild(er) reaction to presence of food in general The doctor won't prescribe any medication to treat even the gluten issue w/o diagnosis The immune dysfunction intensifies whenever my health improves The gluten makes it significantly temporarily...
  7. I received papers for celiac blood testing, but this situation increases my anxiety, as gluten functionally incapacitates me completely regardless of any countermeasure efforts. Those prevent me from staring into space for 8 hours, but do not address the fundamental problem; the gluten challenge situation is disabling. I believe reintroduction of gluten...
  8. Better part of this year? I do not have precise time frame. <1200 calorie for much longer. Like I said I was rather dedicated to self persecutory delusion that my diet predicts my weight, not particularly aided by uniquely helpful advice. I do not fear death in these situations so am not sure I am within profile. However electrolytes seems good concern...
  9. The other one is really apparent reaction to any food. I get knocked down hard by one light meal. Trying to hit the calorie target, the immune response functionally incapacitates me. I can feel myself "going stupid" in real time, and it takes a night to recover. Am not sure how to proceed on this point. While this is mitigated somewhat by anti allergens...
  10. Probably the greatest challenge is actually meeting nutrition requirements. For so long, I have been deluding myself my diet causes my weight, that I'm unable to eat a necessary amount of food. To reach even a 1600 calorie target seems like a Herculean task. The moment I worked on related deficiencies (iron, magnesium [metabolism], etc) this became a...
  11. Yes. Occurs primarily with gluten, rice included, even if quantity is a few spoons. Generally lack of "burp" otherwise.
  12. Only incompetents at ER have blood sugar tested. After drinking 2L of juice I could test blood sugar normal. Yes. It is also sustained so completely I thought it would simply be a fact of life.
  13. Borderline catatonic state. Sometimes occurs that not able to remember a single sentence so have to look at the page and write every letter. It still won't go into memory so I have to try that for hours. But this is just one example, and far from the worst case. Studying for 12 hours is luxury. Difficulty walking is a given, lower...
  14. I understand that. However at the moment simply digesting a solid meal, not even glutenous, can take me down for the better part of a day. Your "easy test" is asking for 42 days of Ataxia during course season. It is certainly quite easy if I don't mind failing out of university.
  15. I understand. Not overwhelming. Seem like nothing working at optimum. Immune function is good; minus FF part. I should explain throughout life constant battle to prevent immune system from killing me. Despite all efforts to self sabotage, immune system even near death test normal. Am moving to GFD, mostly not have much/any to start with...
  16. Hypothesized mother share this gene but not father side. And this an incompatibility exist. Looking at family history. Father has no noticeable problems and practices formidable ableism. However choice to introduce more rice into diet stress system and possibility introduce shortage indicated. I do not eat American style.
  17. On severity, I do say, it may be considerable. However, I am not aware of how to communicate the difficulty experienced in such a way to convince the family doctor. Am currently using a dosage of 120 mg Allegra, but am fairly certain prednisone may be a superior option. Considering that I have not had a sickness that appears to fall outside the range of autoimmune...
  18. Green maybe just blueberries addition or some other, blood lower not probable. Blood elsewhere not known, however can feel smth like reduced amounts of blood during process in body, yet have not seen bleeding. Only when I am 7-9 I have cases of perceptible blood iirc.
  19. That is the implication, am doing so already. Blood loss maybe consistent. Wondering why process is so exhausting. If this is so then it is decidedly necessary to somehow repair this damage. Assuming prolonged numb state is ataxic... Implies at least ~2-3 year at very high severity. Not including preceding periods. Considering state of self, this...
  20. Considering diet characteristics, meat, salad, liver, this is most likely severe malabsorption. Solid waste is more like fine sand, or thick diarrhea, black, painful (abdominal) passing with odd, green color. Looks like any meal in general is fairly challenging for it. When I refer to gaslight I do not simply mean to doubt symptoms.
  21. I did not outgrow it I think. Body weight correspond to intensifying symptoms of disease imo. Seem like body weight itself is symptom, as related to instantaneous volume (one meal, volume eaten) and not energy (disregards deficit). Sun is good, I was covering too much so despite fair amount of walking, was not received VitaD probably. Seem...
  22. Been trying to remove, but pan fried egg, well maybe even egg itself, result in problem, for energy levels, and imply health reduction. Just precipitous considerable drop in energy. So much I must avoid much as possible. Can cause such serious crash, push to sleep or just numb state. Problem ironic considering digestive performance, is obesity....
  23. Not Diagnosed Not Tested (waiting on appointment) Reaction fully or partially to anti allergic ? And decreases duration? or attacked? Overweight, but body 'seems' malnutrit, almost alike cushings body shape? Complete with lesions [stretch marks last for many years???]? Weak digestive system, slow digestion and very low fullness indicator. Considerable...
×
×
  • Create New...