Lissasmmarie
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Lissasmmarie
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Yes...we are very fortunate to have 2 great specialist, as I have heard others not have this level of care for either disease which is heartbreaking. And thank you for your responses- you have given me insight to things we hadnt considered and offered new topics/questions for me to discuss with our care team. You are amazing to everyone in this forum...
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Thanks for the comment Scott - Her endocrinologist shared that stat with us at the time of her T1D diagnosis which is what sparked the entire celiac testing process - she never had signs of celiac so we didn't have concerns. It was just one of the many blood tests they do because of the relationship between the two autoimmune diseases. I do not believe...
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Thank you for sharing this - Her GI office actually called me yesterday to meet earlier as all the results were back and he seemed a bit perplexed. His initial thought when recommending the endoscopy was that she would absolutely have Celiac. Also - for reference, she has had multiple elevated TTG-IGAs in the past... 2 of the 5 have been elevated, 2 were...
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Ahhh - I actually am reviewing this again as her latest test came back and her tissue transglutaminase IGA value came back negative (her result was 4.4 and the standard result is <7). So I am utterly confused as to what is happenniiinnngg!!!!
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Hi Trents! Thank you for the quick response! We had discussed her high TTg-IGA with her endo (and then GI) doc and they ultimately said, it's likely she had celiac, but needed to confirm via the endoscopy. When I saw the results, I was surprised that it didn't actually confirm it haha. Just that we need to rely on the blood test, which again, is totally...
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Scott! Thank you so much for your response! I had read that finding as well and discussed with her endo at the time of her diabetes diagnosis that her TTG was significantly high - she is obviously not a GI doctor - but was perplexed by some of the other blood tests coming back normal. I was somewhat surprised that the GI requested an endoscopy at all ...
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And for reference - the blood test TTG was High (result 132.7 - normal range is less than 20) Gliadin (result 4 - normal range is 0-19) IGA (result 131 - normal rang is 25-124)
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Hello all - I have a 5yr old daughter that was diagnosed as Type 1 diabetic at the age of three. It is standard procedure to run blood tests for celiac for type 1's as they run a high risk of having the disease as well. Her results were not "positive" across the board for celiac - so an endoscopy was recommended. CVD 19 then hit and we were unable...
